Fundraising and Awareness

Raising Funds for The Ehlers-Danlos Society

We are so grateful that you have chosen to fundraise for The Ehlers Danlos Society! There are many ways to get involved, and our Development Team is here to help with your fundraising efforts. Read on for ways you can get involved and give HOPE to those affected by EDS and HSD.

A zebra strong fundraising and awareness event shows a crowd of our community

Organize it!

A great way to fundraise and raise awareness of EDS and HSD is to organize your own event!

We encourage you to print and hand out our brochures, posters, and presentations, as they are wonderful tools to help teach others about the Ehlers-Danlos syndromes and hypermobile spectrum disorders. Click here to read our ‘Top Tips for Fundraising’ brochure!

If you intend to hold a fundraiser, please fill out our Third-Party Fundraising Agreement and Liability Release form. Approved fundraisers will have use of our Supporter logo and will be listed on the EDS and HSD Fundraisers Around the World webpage! Please note that while The Ehlers-Danlos Society is grateful to all who raise funds, we are unable to assist you with your fundraising event by sending staff or providing printed materials.

Raise it!

In minutes you can create your own fundraising page to share your personal story, fundraising photos, and keep your supporters up to date with your progress and event! Follow the steps to create a US Based Page or a UK/EU page, then share your page with friends and family, by email, and on social media using the included and easy templates.

Funds that you raise will go to The Ehlers-Danlos Society’s general fund to support our shared mission.

A mother hugs her children and smile into the camera


Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases when you shop at or (only eligible on AmazonSmileUS and AmazonSmileUK). On your first visit to AmazonSmile, you’re prompted to select a charitable organization – simply type in The Ehlers-Danlos Society to start raising funds at no additional cost to you!

eBay for Charity

There are many ways to support us on eBay! You can sell your products for charity and donate a portion directly to The Ehlers-Danlos Society, or you can donate when paying for your purchase. Click here to get started!

Questions, ideas, or want advice planning a fundraiser?

Please reach out and contact our Development Team who are here to help you!

The Ehlers-Danlos Society uses The Network for Good platform to receive online donations and their details will appear on your credit card statement following a donation to our organization. Network for Good’s Donor Advised Fund is an accredited charity by the Better Business Bureau.