Fundraising for The Ehlers-Danlos Society

Join us in supporting the Ehlers-Danlos Society and making a difference in the lives of those living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

Your fundraising efforts help fuel vital research, provide educational resources, and offer community support for individuals and families affected by these complex conditions.

Together, we can drive awareness, advance medical understanding, and foster hope. Whether through hosting an event, creating a personal campaign, or simply spreading the word, every contribution matters. Let’s work hand in hand to build a brighter, healthier future for everyone impacted by EDS and HSD.

Our dedicated development team is here to support you every step of the way on your fundraising journey. Meet our experts and reach out to them if you have any questions:

Danielle Hohlier ([email protected]) : For all major donors and campaigns enquiries.

Briony Corbett ([email protected]): For all Sponsorships enquiries.

Emily Shotbolt ([email protected]): For all community fundraising and Teen Council enquiries.

Janae Davis ([email protected]): For all corporate donations, corporate partnerships and Walk & Roll enquiries.

We’re here to ensure your success at every stage!

  • Join Our Black and White Fundraising Campaign

    Join Our Black and White Fundraising Campaign

    Are you ready to make a difference? The Ehlers-Danlos Society invites you to unleash your creativity and participate in our exciting Black and White Fundraising Campaign! This unique initiative encourages supporters like you to get involved, raise awareness, and contribute to our mission in a fun and impactful way.

    Why Black and White?

    The black and white theme symbolizes the clarity and strength we seek in our fight against Ehlers-Danlos Syndrome. By embracing this theme, you’re not only raising funds but also standing in solidarity with those affected by EDS, showcasing the beauty in our community’s diversity while uniting for a common cause.

    How to Get Involved:

    Request Your Fundraising Pack: Kickstart your fundraising journey by requesting a Black and White Fundraising Pack! This comprehensive guide is filled with tips, tricks, and inspiration to help you organize a successful fundraiser.

    Get Creative: Whether you host a black and white dinner party, a themed bake sale, or a stylish gala, the possibilities are endless! We encourage you to think outside the box and design an event that reflects your personality while aligning with our theme.

    Create a fundraising page: Use the link below to create a fundraising page which can be shared with all your friends and family.

    Spread the Word: Use your social media platforms to promote your fundraiser. Share your journey, invite friends and family to join, and educate them about EDS and the work of the Ehlers-Danlos Society.

    Make it Meaningful: Connect with your supporters and share why this cause is important to you. Personal stories and experiences can motivate others to get involved and contribute.

    Celebrate Your Impact: After your event, share your successes with us! We love to see how your creativity has helped raise awareness and funds for our mission.

    Black and White Fundraiser

    Join Us in Making a Difference

    We are thrilled to welcome all supporters to participate in our Black and White Fundraising Campaign. Together, we can raise awareness, support those affected by EDS, and contribute to vital research efforts.

    Are you ready to get started? Request your Black and White Fundraising Pack today, and let your creativity shine!

    For more information or to request your pack, please contact [email protected].

  • Fundraising Resources

    Request a fundraising pack: Our fundraising pack is filled with tips, resources, and creative ideas to help you plan and execute a successful fundraiser for the Ehlers-Danlos Society. It’s everything you need to make your efforts impactful and fun while supporting a meaningful cause!

    A-Z list of fundraising ideas: Want to fundraise for The Ehlers-Danlos Society, but not sure what you want to do? We’ve got lots of quick and easy ideas, as well as fun things you can do at work or with friends.

    Printable materials and resources: Explore our selection of printable brochures, posters, and presentations to help raise awareness and support for the Ehlers-Danlos Society. These resources are perfect for sharing information at your fundraising event.

    Donate after your event: If you’ve completed a fundraising activity or event, we’re here to help you donate the money you’ve raised. Your contribution will make a meaningful difference, and we deeply appreciate your generosity and dedication. Below are ways your can donate:

    By phone: 

    We can accept your donation via phone at US +1-410-670-7577 or UK +44-203-887-6132.

    Donate online: 

    Online donations can be made here.

    You may also send a check or money order by mail to The Ehlers-Danlos Society at the following addresses:

    The Ehlers-Danlos Society 447 Broadway 2nd Fl #670, New York, NY 10013, USA

    or

    The Ehlers-Danlos Society, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, UK

  • Join Our Monthly Fundraiser Incentive Program

    At The Ehlers-Danlos Society, we believe in celebrating our incredible fundraisers! That’s why we’re excited to introduce our Monthly Fundraiser Incentive Program, designed to reward your hard work and dedication.

    How It Works

    Fundraise: Raise at least $50 through any fundraising activity during the month. Whether you’re hosting an event, running a marathon, or sharing a donation link, every effort counts!
    Win Amazing Prizes: At the end of each month, we’ll randomly select one lucky winner to receive a fantastic item from our online store. Prizes may include exclusive merchandise, gift cards, and more!

    Why Participate?

    Support a Great Cause: Your fundraising efforts help us continue our mission to advancing and accelerating research and education in Ehlers-Danlos syndromes and hypermobility spectrum disorders.
    Community Engagement: Join a community of like-minded individuals making a difference.
    Exciting Rewards: Win fabulous prizes while supporting The Ehlers-Danlos Society.

    How to Get Started

    Terms and Conditions

    • Only one entry per month per fundraiser.
    • Fundraising must be done via an online platform such as Just Giving UK, Just Giving US, Tiltify, or Funraise.
    • Fundraisers must raise at least $50 to be entered into the drawer.
    • The winner will be contacted via email and they will also be shared on social media.
  • How to Create a Fundraising Page

    We’ve made fundraising easy and accessible with a variety of platforms to suit your preferences!

    Whether you’re connecting with friends on Facebook and Instagram, creating campaigns through JustGiving UK or US, engaging with gaming communities on Tiltify, or using Funraise for creative projects, there’s a platform for everyone. Choose the one that works best for you and start making an impact for the Ehlers-Danlos Society today!

    Facebook

    To create a fundraiser on Facebook for The Ehlers-Danlos Society, follow these steps:

    • Log in to Facebook, or click the link above.
    • Ensure you’re logged in to your Facebook account.
    • Go to the Fundraisers Section.
    • On the desktop, click on the “Menu” (three horizontal lines) in the top right corner, then scroll down and select “Fundraisers” under the “Explore” section.
    • On mobile, tap the three horizontal lines, scroll to the “Fundraisers” section.

    Create a Fundraiser:

    • Click “Raise Money” or “Create Fundraiser”.
    • Select Nonprofit as the category.
    • Search for The Ehlers-Danlos Society.

    Set Your Goal:

    • Set a financial goal for your fundraiser (e.g., £500, $1,000).
    • Set an end date for your fundraiser.

    Customize Your Story:

    • Add a title and a personal story explaining why you are fundraising for The Ehlers-Danlos Society.
    • Include information about the Ehlers-Danlos Syndrome and why it matters to you.

    Create the Fundraiser:

    • Review everything and click “Create” to launch your fundraiser.
    • You can share your fundraiser link with your network to start collecting donations.

    Just Giving UK

    JustGiving UK is a popular platform for fundraising in the UK. To create a fundraiser for The Ehlers-Danlos Society:

    • Go to JustGiving UK.
    • Sign Up or Log In.
    • Create an account or log in if you already have one.

    Create a Fundraiser:

    • Click “Fundraise for this cause” or “Create a Fundraiser” button.

    Search for The Ehlers-Danlos Society:

    • Use the search function to find “The Ehlers-Danlos Society”.

    Set Up Your Fundraiser:

    • Add a title, set your fundraising goal, and write a compelling message.
    • You can also upload photos or videos to personalize your campaign.

    Share and Promote:

    • Once your fundraiser is created, share the link with your friends and family to start receiving donations.

    Just Giving US

    Go to JustGiving US.

    Sign Up or Log In:

    • Create a new account or log in if you have an existing one.

    Create a Fundraiser:

    • Click on “Start Fundraising”.

    Find The Ehlers-Danlos Society:

    • Search for The Ehlers-Danlos Society or type in their cause directly in the search box.

    Set Fundraiser Details:

    • Enter your fundraising goal, create a compelling story, and upload media like photos or videos to make it personal.

    Share Your Fundraiser:

    • After creating your fundraiser, share the link with friends and family to start gathering support.

    Tiltify

    Tilitfy is a fundraising platform that integrates with various organizations and causes. Here’s how to set up a fundraiser:

    • Go to the Tilitfy.
    • Create an Account or Log In.
    • If you don’t have an account, sign up. If you already have one, log in.
    • Search for The Ehlers-Danlos Society.
    • Use the search function to find The Ehlers-Danlos Society’s fundraising page.

    Start a Fundraiser:

    • Once you’ve found the organization, click the “Start Fundraising” or similar button.
    • Fill in the fundraiser details, including your goal, story, and any media you wish to include.

    Share Your Fundraiser:

    • After creating the fundraiser, Tilitfy will provide you with a link to share via social media, email, or direct messages.

Join Our Black and White Fundraising Campaign

Are you ready to make a difference? The Ehlers-Danlos Society invites you to unleash your creativity and participate in our exciting Black and White Fundraising Campaign! This unique initiative encourages supporters like you to get involved, raise awareness, and contribute to our mission in a fun and impactful way.

Why Black and White?

The black and white theme symbolizes the clarity and strength we seek in our fight against Ehlers-Danlos Syndrome. By embracing this theme, you’re not only raising funds but also standing in solidarity with those affected by EDS, showcasing the beauty in our community’s diversity while uniting for a common cause.

How to Get Involved:

Request Your Fundraising Pack: Kickstart your fundraising journey by requesting a Black and White Fundraising Pack! This comprehensive guide is filled with tips, tricks, and inspiration to help you organize a successful fundraiser.

Get Creative: Whether you host a black and white dinner party, a themed bake sale, or a stylish gala, the possibilities are endless! We encourage you to think outside the box and design an event that reflects your personality while aligning with our theme.

Create a fundraising page: Use the link below to create a fundraising page which can be shared with all your friends and family.

Spread the Word: Use your social media platforms to promote your fundraiser. Share your journey, invite friends and family to join, and educate them about EDS and the work of the Ehlers-Danlos Society.

Make it Meaningful: Connect with your supporters and share why this cause is important to you. Personal stories and experiences can motivate others to get involved and contribute.

Celebrate Your Impact: After your event, share your successes with us! We love to see how your creativity has helped raise awareness and funds for our mission.

Black and White Fundraiser

Join Us in Making a Difference

We are thrilled to welcome all supporters to participate in our Black and White Fundraising Campaign. Together, we can raise awareness, support those affected by EDS, and contribute to vital research efforts.

Are you ready to get started? Request your Black and White Fundraising Pack today, and let your creativity shine!

For more information or to request your pack, please contact [email protected].

Fundraising Resources

Request a fundraising pack: Our fundraising pack is filled with tips, resources, and creative ideas to help you plan and execute a successful fundraiser for the Ehlers-Danlos Society. It’s everything you need to make your efforts impactful and fun while supporting a meaningful cause!

A-Z list of fundraising ideas: Want to fundraise for The Ehlers-Danlos Society, but not sure what you want to do? We’ve got lots of quick and easy ideas, as well as fun things you can do at work or with friends.

Printable materials and resources: Explore our selection of printable brochures, posters, and presentations to help raise awareness and support for the Ehlers-Danlos Society. These resources are perfect for sharing information at your fundraising event.

Donate after your event: If you’ve completed a fundraising activity or event, we’re here to help you donate the money you’ve raised. Your contribution will make a meaningful difference, and we deeply appreciate your generosity and dedication. Below are ways your can donate:

By phone: 

We can accept your donation via phone at US +1-410-670-7577 or UK +44-203-887-6132.

Donate online: 

Online donations can be made here.

You may also send a check or money order by mail to The Ehlers-Danlos Society at the following addresses:

The Ehlers-Danlos Society 447 Broadway 2nd Fl #670, New York, NY 10013, USA

or

The Ehlers-Danlos Society, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, UK

Join Our Monthly Fundraiser Incentive Program

At The Ehlers-Danlos Society, we believe in celebrating our incredible fundraisers! That’s why we’re excited to introduce our Monthly Fundraiser Incentive Program, designed to reward your hard work and dedication.

How It Works

Fundraise: Raise at least $50 through any fundraising activity during the month. Whether you’re hosting an event, running a marathon, or sharing a donation link, every effort counts!
Win Amazing Prizes: At the end of each month, we’ll randomly select one lucky winner to receive a fantastic item from our online store. Prizes may include exclusive merchandise, gift cards, and more!

Why Participate?

Support a Great Cause: Your fundraising efforts help us continue our mission to advancing and accelerating research and education in Ehlers-Danlos syndromes and hypermobility spectrum disorders.
Community Engagement: Join a community of like-minded individuals making a difference.
Exciting Rewards: Win fabulous prizes while supporting The Ehlers-Danlos Society.

How to Get Started

Terms and Conditions

  • Only one entry per month per fundraiser.
  • Fundraising must be done via an online platform such as Just Giving UK, Just Giving US, Tiltify, or Funraise.
  • Fundraisers must raise at least $50 to be entered into the drawer.
  • The winner will be contacted via email and they will also be shared on social media.

How to Create a Fundraising Page

We’ve made fundraising easy and accessible with a variety of platforms to suit your preferences!

Whether you’re connecting with friends on Facebook and Instagram, creating campaigns through JustGiving UK or US, engaging with gaming communities on Tiltify, or using Funraise for creative projects, there’s a platform for everyone. Choose the one that works best for you and start making an impact for the Ehlers-Danlos Society today!

Facebook 

To create a fundraiser on Facebook for The Ehlers-Danlos Society, follow these steps:

  • Log in to Facebook, or click the link above.
  • Ensure you’re logged in to your Facebook account.
  • Go to the Fundraisers Section.
  • On the desktop, click on the “Menu” (three horizontal lines) in the top right corner, then scroll down and select “Fundraisers” under the “Explore” section.
  • On mobile, tap the three horizontal lines, scroll to the “Fundraisers” section.

Create a Fundraiser:

  • Click “Raise Money” or “Create Fundraiser”.
  • Select Nonprofit as the category.
  • Search for The Ehlers-Danlos Society.

Set Your Goal:

  • Set a financial goal for your fundraiser (e.g., £500, $1,000).
  • Set an end date for your fundraiser.

Customize Your Story:

  • Add a title and a personal story explaining why you are fundraising for The Ehlers-Danlos Society.
  • Include information about the Ehlers-Danlos Syndrome and why it matters to you.

Create the Fundraiser:

  • Review everything and click “Create” to launch your fundraiser.
  • You can share your fundraiser link with your network to start collecting donations.

Just Giving UK 

JustGiving UK is a popular platform for fundraising in the UK. To create a fundraiser for The Ehlers-Danlos Society:

  • Go to JustGiving UK.
  • Sign Up or Log In.
  • Create an account or log in if you already have one.

Create a Fundraiser:

  • Click “Fundraise for this cause” or “Create a Fundraiser” button.

Search for The Ehlers-Danlos Society:

  • Use the search function to find “The Ehlers-Danlos Society”.

Set Up Your Fundraiser:

  • Add a title, set your fundraising goal, and write a compelling message.
  • You can also upload photos or videos to personalize your campaign.

Share and Promote:

  • Once your fundraiser is created, share the link with your friends and family to start receiving donations.

Just Giving US 

Go to JustGiving US.

Sign Up or Log In:

  • Create a new account or log in if you have an existing one.

Create a Fundraiser:

  • Click on “Start Fundraising”.

Find The Ehlers-Danlos Society:

  • Search for The Ehlers-Danlos Society or type in their cause directly in the search box.

Set Fundraiser Details:

  • Enter your fundraising goal, create a compelling story, and upload media like photos or videos to make it personal.

Share Your Fundraiser:

  • After creating your fundraiser, share the link with friends and family to start gathering support.

Tiltify 

Tilitfy is a fundraising platform that integrates with various organizations and causes. Here’s how to set up a fundraiser:

  • Go to the Tilitfy.
  • Create an Account or Log In.
  • If you don’t have an account, sign up. If you already have one, log in.
  • Search for The Ehlers-Danlos Society.
  • Use the search function to find The Ehlers-Danlos Society’s fundraising page.

Start a Fundraiser:

  • Once you’ve found the organization, click the “Start Fundraising” or similar button.
  • Fill in the fundraiser details, including your goal, story, and any media you wish to include.

Share Your Fundraiser:

  • After creating the fundraiser, Tilitfy will provide you with a link to share via social media, email, or direct messages.

Questions, or ideas, or need advice on planning a fundraiser? Please reach out to our Development Team who are here to help you! 

The Ehlers-Danlos Society uses Funraise platform to receive online donations and their details will appear on your credit card statement following a donation to our organization.  

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