Fundraising and Awareness

Spread Awareness by Raising Funds

One of the best ways to help spread awareness is to fundraise! Please note that while The Ehlers-Danlos Society is grateful to all who raise funds, we are unable to assist you with your fundraising event by sending staff or providing printed materials.

We do encourage you to print and hand out our brochures, posters, and presentations, as they are wonderful tools to help teach others about the Ehlers-Danlos syndromes and hypermobile spectrum disorders.

If you intend to hold a fundraiser, please fill out our Third Party Fundraising Agreement and Liability Release form. Approved fundraisers will have use of our Supporter logo and will be listed on the EDS Fundraisers Around the World webpage.

Start an individual fundraising page

In minutes you can create your own fundraising page to share your personal story and photos! Follow the steps to create a US Based Page or a UK/EU page. Then share your page with friends and family with emails and on social media using the included and easy templates.

Funds that you raise will go to The Ehlers-Danlos Society’s general fund.


Amazon will donate 0.5% of the price of your eligible AmazonSmile purchases when you shop at or (only eligible on AmazonSmileUS and AmazonSmileUK).

eBay for Charity

Sell for charity and donate a portion directly to The Ehlers-Danlos Society or donate when paying for your purchase; please visit

Questions, ideas or want advice planning a fundraiser? Please contact our Development Director, Carissa Hocevar.