Our Boards

Board of Directors

Officers

Susan Hawkins

Chair

John Zonarich, Esq.

John Zonarich, Esq.

Vice-Chair & Secretary

Rob Rubin, CPA

Treasurer

Directors

Sandra Aiken Chack

Sandra Aiken Chack

Edward (Ward) J Fitzgerald III

Edward (Ward) J Fitzgerald III

Woodrow Gandy, MD

Woodrow Gandy, MD

Susan Haskel

Elizabeth Herndon

Elizabeth Herndon

Melanie Macleod

Melanie Macleod

Linda Neumann-Potash, RN, MN, CBN

Linda Neumann-Potash, RN, MN, CBN

Amy Rochlin

Medical and Scientific Board

Clair Francomano, MD

Clair Francomano, MD

Chair

Geneticist (USA)

Fransiska Malfait, MD, PhD

Fransiska Malfait, MD, PhD

Vice Chair

Geneticist/Rheumatologist (Belgium)

Patrick Agnew, DPM

Patrick Agnew, DPM

Podiatrist (USA)

Qasim Aziz, MBBS, FRCP, PhD

Qasim Aziz, MBBS, FRCP, PhD

Gastroenterology (UK)

Peter Byers, MD

Peter Byers, MD

Geneticist (USA)

Marco Castori, MD, PhD

Marco Castori, MD, PhD

Geneticist (Italy)

Heidi Collins, MD

Heidi Collins, MD

Physical Medicine and Rehab (USA)

Raymond Dalgleish, PhD

Raymond Dalgleish, PhD

Geneticist (Leicester, UK)

Cecilia Giunta, PhD

Cecilia Giunta, PhD

Geneticist (Switzerland)

Rodney Grahame CBE, MD, FRCP, FACP, FRSA

Rodney Grahame CBE, MD, FRCP, FACP, FRSA

Rheumatologist (UK)

Alan Hakim, MA, FRCP

Alan Hakim, MA, FRCP

Rheumatologist (UK)

Fraser C. Henderson, Sr., MD

Fraser C. Henderson, Sr., MD

Neurosurgeon (USA)

Hanna Kaz Kaz, BA, MSc, MB

Hanna Kaz Kaz, BA, MSc, MB

Rheumatologist (UK)

Tomoki Kosho, MD

Tomoki Kosho, MD

Geneticist (Japan)

Netali Levi, DClinPsy

Netali Levi, DClinPsy

Clinical Psychologist (UK)

John Mitakides, DDS, DAACP

John Mitakides, DDS, DAACP

TMJ (USA)

Cathy Raggio

Orthopaedics (USA)

Sherene Shalhub, MD, MPH, FACS

Sherene Shalhub, MD, MPH, FACS

Vascular Surgeon (USA)

Jane Simmonds, MCSP, MMACP, FHEA

Jane Simmonds, MCSP, MMACP, FHEA

Physiotherapist (UK)

Glenda Sobey, MB ChB, BSc Med (Hons), FC Derm

Glenda Sobey, MB ChB, BSc Med (Hons), FC Derm

Geneticist (UK)

Brad Tinkle, MD, PhD

Brad Tinkle, MD, PhD

Geneticist (USA)

Louise Tofts, MB BS, DCH, MRCPCH, MSpMed, FAFRM, FRACP

Louise Tofts, MB BS, DCH, MRCPCH, MSpMed, FAFRM, FRACP

Paediatric Rehabilitation Specialist (Australia)

Jennifer Tjernagel

Jennifer Tjernagel

Data and Registry Expert (USA)