Our Boards

Board of Directors

Officers

Susan Hawkins
Chair

John Zonarich, Esq.
Vice-Chair & Secretary

Rob Rubin
Treasurer

Directors

Edward (Ward) Fitzgerald III

Woodrow Gandy, MD

Francie Fitzgerald

Paul Segal

Medical and Scientific Board

Clair Francomano, MD
Chair
Geneticist (USA)

Fransiska Malfait, MD, PhD
Vice Chair
Geneticist/Rheumatologist
(Belgium)

Patrick Agnew, DPM
Podiatrist (USA)

Qasim Aziz, MBBS, FRCP, PhD
Gastroenterology (UK)

Peter Byers, MD
Geneticist (USA)

Marco Castori, MD, PhD
Geneticist (Italy)

Heidi Collins, MD
Physical Medicine and Rehab (USA)

Raymond Dalgleish, PhD
Geneticist (UK)

Alan Hakim, MA, FRCP
Rheumatologist (UK)

Fraser C. Henderson, Sr., MD
Neurosurgeon (USA)

Hanna Kaz Kaz, BA, MSc, MB
Rheumatologist (UK)

Tomoki Kosho, MD
Geneticist (Japan)

Netali Levi, DClinPsy
Clinical Psychologist (UK)

Sherene Shalhub, MD, MPH, FACS
Vascular Surgeon (USA)

Jane Simmonds, MCSP, MMACP, FHEA
Physiotherapist (UK)

Glenda Sobey, MB, ChB, BSc Med (Hons, FC Derm
Geneticist (UK)

Brad Tinkle, MD, PhD
Geneticist (USA)

Louise Tofts, MB BS, DCH, MRCPCH, MSpMed, FAFRM, FRACP
Paediatric Rehabilitation Specialist (Australia)

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Our Boards

Board of Directors

Officers

Directors

Medical and Scientific Board

#TogetherWeDazzle

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