Our Boards

Board of Directors

Officers

John Zonarich, Esq.
Vice-Chair & Secretary
Rob Rubin, CPA
Treasurer

Directors

Medical and Scientific Board

Clair Francomano, MD
Chair
Geneticist (USA)
Fransiska Malfait, MD, PhD
Vice Chair
Geneticist/Rheumatologist (Belgium)
Patrick Agnew, DPM
Podiatrist (USA)
Qasim Aziz, MBBS, FRCP, PhD
Gastroenterology (UK)
Peter Byers, MD
Geneticist (USA)
Marco Castori, MD, PhD
Geneticist (Italy)
Heidi Collins, MD
Physical Medicine and Rehab (USA)
Raymond Dalgleish, PhD
Geneticist (Leicester, UK)
Cecilia Giunta, PhD
Geneticist (Switzerland)
Alan Hakim, MA, FRCP
Rheumatologist (UK)
Fraser C. Henderson, Sr., MD
Neurosurgeon (USA)
Hanna Kaz Kaz, BA, MSc, MB
Rheumatologist (UK)
Tomoki Kosho, MD
Geneticist (Japan)
Netali Levi, DClinPsy
Clinical Psychologist (UK)
Brad Tinkle, MD, PhD
Geneticist (USA)
Louise Tofts, MB BS, DCH, MRCPCH, MSpMed, FAFRM, FRACP
Paediatric Rehabilitation Specialist (Australia)
Jennifer Tjernagel
Data and Registry Expert (USA)