Get Involved

Please use the links below to navigate to the page of your choice.

• Volunteer
• Donate
• The EDS and HSD Global Registry
• Become a Patient Advocate
• EDS ECHO Advocacy
• Tributes
• Fundraising
• Sponsor a Conference
• Fundraising Tips
• Tips for Raising Funds and Awareness
• Printable Materials
• 2020 May Awareness Month
• Breaking Down Barriers
• Send a Photo
• Tell Us Your Story
• Shop