Get Involved

Please use the links below to navigate to the page of your choice.

• Volunteer
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• The EDS/HSD Global Registry
• Become a Patient Advocate
• Tributes
• Fundraising
• Sponsor a Conference
• Fundraising Tips
• Tips for Raising Funds and Awareness
• Printable Materials
• 2018 Awareness Month
• Send a Photo
• Tell Us Your Story
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