News

The Ehlers-Danlos Society Launches The New DICE EDS and HSD Global Registry

Non-surgical assessment and management of upper cervical instability (UCI)

We are aware of the challenges globally around finding expert help for upper cervical instability...

Aytu BioPharma Announces Indefinite Suspension of AR101 Clinical Development Program for vEDS

With a heavy heart, we report that Aytu Biopharma, following a corporate review, has announced...

Aortic Dissection: A life-threatening complication

Judith Giller-Leinwohl

Judith Giller-Leinwohl struggled with Ehlers-Danlos syndrome for many of her 30 years. Repeated shoulder dislocations...

Applications Now Open: Microgrants Round 1

The Ehlers-Danlos Society is now welcoming applications for the 2022 Microgrants Round 1.  This grant...

Aytu BioPharma Announces Initiation of the AR101 PREVEnt Trial for the Treatment of Vascular Ehlers-Danlos Syndrome

The specialty pharmaceutical company,  AytuBio Pharma, announced the initiation of the global Phase 3 PREVEnt...

Pregnancy, Childbirth, and Postnatal Care in EDS and HSD

A small number of studies have looked at the challenges the Ehlers-Danlos syndromes (EDS) and...

Applications Now Open: $200k Rarer Types of Ehlers-Danlos Syndrome Research Grant

The Ehlers-Danlos Society is now welcoming applications for the 2022 Rarer Types of Ehlers-Danlos Syndromes...

The Ehlers-Danlos Society Funds HSD and hEDS Proteomic, Whole-Genome Sequencing, and Epigenetic Study

The Ehlers-Danlos Society is funding a series of vital research studies to further the understanding...

Aytu BioPharma Announces PREVEnt Trial Start Planned for Late 2022 or Early 2023

The specialty pharmaceutical company,  AytuBio Pharma, announced this week that it anticipates the PREVEnt trial will...

Tethered Cord Syndrome in EDS Research

Internationally renowned general neurosurgeon, Dr. Petra Klinge, et al, have published new research, Diseased filum...