What is the Research Inner Circle?

The Ehlers-Danlos Society Research Inner Circle is a group of passionate and devoted supporters interested in funding and advancing high-level research in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). This unique initiative aims to provide a direct pathway for researchers to engage with donors keen on supporting diverse research efforts related to EDS and HSD.

Through quarterly webinars, researchers and their teams will have the opportunity to present their research proposals directly to the Research Inner Circle members, who will have the opportunity to invest in and impact future discoveries.

Follow the supporter or researcher routes below to find out more information.

I am a…

SUPPORTER

…looking to participate in the Inner Circle

I am a…

RESEARCHER

…looking to participate in the Inner Circle

2025 Research Funding Awardees

Dr. Fereshteh Jahanbani

Stanford Center for Genomics and Personalized Medicine, Stanford, California, USA

Award Amount: $2,682,000

Dr. Brent Dooland

The Hospital for Sick Children, Elizabeth Street, Toronto, ON, Canada

Award Amount: $14,080.50

Dr. Maggie Bartlett

Johns Hopkins University, Baltimore, MD, USA

Award Amount: $1,290,000

Dr. Bethany Holt

Mass General Brigham / Harvard University, Cambridge, MA, USA

Award Amount: $264,000

2024 Research Funding Awardees

Ganna Bilousova

University of Colorado Anschutz Medical Campus, Bolder, Colorado, USA

Grant Awarded: $1,299,333

Scalable manufacturing of patient-specific 3D skin tissue models for studying Ehlers-Danlos syndromes and developing personalized therapeutic approaches.

Fereshteh Jahanbani

Stanford Center for Genomics and Personalized Medicine, Stanford, California, USA

Grant Awarded: $1,049,469

Unraveling the Genetic-Mucosal Barrier-Infection-Autoimmunity Nexus in hEDS/HSD: A Multi-Omics Approach to High-Performance Biomarker Development

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