Will I receive any information from The Ehlers-Danlos Society before the event?
Yes, we email final information to all delegates one week before the event, which will include the times that registration and the program will begin, directions to the venue, information on our event app, and a copy of the program.  
What meals are included in the ticket price?
Lunch and refreshment breaks are usually included in your ticket price. Please refer to individual ticket types for meal and break inclusions. 
I have complex dietary needs
We take our attendees’ dietary restrictions and food allergies very seriously. Please carefully complete the dietary request section when you purchase your ticket, including any food allergies. If you have any questions or concerns about the catering at this event, please email [email protected]. 
I have a speaker suggestion
Please email [email protected] with the potential speaker’s name, job title, organization, email address, and a brief (100 words max) description of what they would talk about. Your suggestion will be considered by the conference organizing committee and we will let you know via email if the speaker has been accepted.
I cannot attend in-person. Will this event be viewable online?
Will I receive a certificate of attendance from attending the event?
If you are a healthcare professional, you can request a Certificate of Attendance by email at [email protected].
I need a copy of my receipt for this event. Where can I find this?
You can find your full order history and a copy of your receipt in your website Account Dashboard, navigate to Order History to view this.
Presentation and materials
We will upload the event presentations on to our website and event app, Whova, after the event, along with any other media (video/audio etc.) which may have been produced. Please allow up to six (6) weeks for the full content to be uploaded. Registrants will have lifetime access to this content. 
Is the venue fully accessible?
The venue is wheelchair accessible in all areas. Please inform us if you are bringing a wheelchair when you purchase your ticket.
I am travelling alone
Many of our conference attendees are solo travelers. Our goal is to make you feel as welcome and comfortable as possible. We recommend making the most of our dedicated event app, to communicate with your fellow attendees and arrange and attend meetups during the event. Full details on the app will be announced a week before the event. 
Will my seats be together?
We do not offer reserved seating. We suggest arriving at the sessions as early as possible to ensure you are seated with family members or caregivers.
Do you have appropriate seating for individuals with medical conditions?
We strive to make our events as comfortable as possible for our community. For community events, whenever space permits, we have “cabaret style” seating, which are round tables with seats around them in a crescent to enable you to lean and rest on the tables. We encourage you to take a break when you need to stretch out or have some quiet time. 
Are pets allowed?
You are welcome to bring your service dog (this must be declared when you purchase your ticket), but other pets are not permitted. 
What items am I not allowed to bring into this event?
Outside food and drink is not permitted anywhere inside the venue unless it is on medical grounds. You may bring cell phones and electronic devices but photographing or recording the sessions is not permitted.  
Is there a way for me to get updates as the event gets closer as well as on the day of the event, in case there are weather or traffic delays, or other problems that could affect the event?
Yes, we have a dedicated event app which will be loaded with all you need to know in the run up to the event and will be updated regularly with alerts on what you need to know. Full details on the app and how to download it will be sent to the email address you provided at registration a few weeks before the event.
Can I purchase EDS merchandise at this event?
Yes! We will have our popular EDS shop open at this event. Payment is taken by credit card. As we can only stock a small range of our products on site, you might like to visit the shop page on our website to view the entire range.
Tickets & Registration
Can I register more than one person in the same transaction?
Yes, you can add as many attendees as you like to your cart, and then check out with one payment.
What types of payment do you accept?
Payment can be made by credit or debit card. We do not accept checks or cash. The only way to purchase a ticket is through the event webpage (link to symposium page) on our website.
How will I get my tickets if I buy them online?
Your tickets will be sent electronically to you by email. We do not send paper tickets by post. If you cannot find your ticket, please email [email protected] and we will look up your reservation and resend you your ticket/s.
What if the event is cancelled or postponed?
If the event is cancelled, you will be offered a full refund or a credit to use towards a future Ehlers-Danlos Society event. If the event is postponed, we will email you to inform you of the new dates and offer you an automatic transfer of your registration to the new dates, or a full refund. 
Can I show my tickets on my phone at the door or do I need to have the physical tickets with me?
You can either show your ticket on your phone or print a copy off to show at registration.
The event I want to attend is fully booked; can I join a waiting list?
If the event becomes fully booked, we will remove the registration options and open a wait list. We’ll only be able to offer spaces if delegates cancel, so we cannot advise on the likelihood of being able to attend. However, we’ll start to contact those on the waiting list as soon as we receive notice of cancellation.
The name on the ticket doesn’t match the attendee’s name. Is that okay?
If you would like to swap a delegate’s name you must inform us at least seven days before the event so that we can update the registration. We cannot accept name swaps on–site. 
For a multi-day event, is my ticket good for all days?
If you purchase a ticket for the entire event you are free to come and go as you please and attend as many or few sessions as you wish. If you purchase a one-day ticket it can only be used on the specified day you purchased for. 
Can I purchase tickets at the door?
Tickets can only be purchased online and in advance (up to the event day) subject to availability.
Can you provide an invoice as proof of payment?
We are unable to provide invoices to a third party for event registrations. All bookings must be made through our website using a credit or debit card. A receipt for any event bookings will be provided to help you to claim back costs.
I haven’t received a confirmation email. How can I check if my registration was successful?
If your registration was successful, you will receive a confirmation email within a few minutes. Please check your spam folder and add [email protected] to your safe senders list. If you have not received a confirmation or cannot find your confirmation, please email [email protected] so that we can resend it to you.
I have booked an event but can no longer attend. How can I cancel, and will I get a refund?
If you cancel before midnight (Eastern Time US & Canada) on August 16, 2025, you will be entitled to a full refund. Unfortunately, if you cancel after this date, we are unable to issue a refund. However, we are happy to accept replacement delegates up to 7 days before the event. In the event of this happening please notify us immediately so that we can update your registration.
To cancel a booking, email [email protected] stating your full name and the event title. If you have arranged for another delegate to take your place, include this in your email so that we can make the necessary arrangements.  
If you are unable to attend due to extenuating circumstances, please contact [email protected] for further advice.
I am a community member, can I attend the full event?
No, community members are only welcome to join the event on September 21. The Scientific Symposium on September 17–20 is suitable for healthcare professionals only.  
I am a healthcare professional, can I attend Community Day?
Yes, healthcare professionals who are interested in learning from a more lay perspective are welcome to join the community event on September 21.
Can I attend virtually?
This is a fully hybrid event which can be attended virtually from anywhere in the world. Virtual registration options are available on the event webpage.
Events Code of Conduct Policy
Please note The Ehlers-Danlos Society’s Event Code of Conduct Policy, which all attendees, speakers, exhibitors, organizers, and volunteers are required to abide by.