Mental Health Resources

Updated: September 24, 2020

A slightly overhead perspective of two disabled Black women (one wearing compression gloves, and the other in a power wheelchair) holding hands while on sitting across from each other on a coffee date.

Focusing on your physical health with EDS and HSD is important, but it is also important to spend some time taking care of your mental and emotional well-being. The stress of dealing with a chronic illness and the barriers to care that can occur can be damaging to mental health; the frustration from not being believed, and having pain dismissed, can cause a range of emotions from anxiety to depression. Below is a compiled list of global mental health resources to help you in building your own coping strategies. This resource library will continue to be developed and updated with more resources as we continue to research. 

Global Resources

Area Specific Resources and Hotlines

From challenges of isolation to increased anxiety around the uncertainty of COVID-19, resources around coping and support can be found here. 

Disclaimer: The Ehlers-Danlos Society is a 501(c)(3) health advocacy organization. The Ehlers-Danlos Society does not provide medical and mental health advice or treatment. Information provided by The Ehlers-Danlos Society is not a replacement for care from a doctor, therapist, or other health care provider. If you believe you may have a medical or mental health emergency, call your country’s emergency number immediately.

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed above. There are no formal listing criteria, and The Ehlers-Danlos Society does not endorse, recommend, or certify any of these individuals. This is not intended to be an exhaustive list, if you have resources that you would like included please email breakingdownbarriers@ehlers-danlos.com

Photo credit: Affect the Verb