Research

The Ehlers-Danlos Society supports research for the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related disorders. We also aid in the development of external research through recruitment assistance. Join us! Help us advance EDS and HSD research, awareness, and support—worldwide!

Research is at the center of what we do. We have funded research projects to improve our understanding of topics with profound impacts on individuals who live with EDS and HSD, including diagnosis, pain, life-threatening vascular complications, and genetic evaluation. Learn more. 

The Ehlers-Danlos Society, in conjunction with The EDS and HSD International Consortium, established a roadmap to develop and convey its research priorities. The research roadmap presents a long-term action plan for the prioritisation of EDS and HSD as focal points for research, worldwide, providing opportunities to enhance the speed and effectiveness of research. Learn more.

The Ehlers-Danlos Society aspires to offer grants annually, with calls for clinical research proposals early in the year and for basic science later in the year. We also offer grants of varying value to reflect the different nature of researcher requirements, including microgrants. Learn more.

Researchers are welcome to apply to share their surveys with the Ehlers-Danlos Society’s patient and caregiver communities. If you have a survey in need of recruits, submit your request here.

Research surveys that have IRB approval can be found here.

With your help, The Ehlers-Danlos Society and our affiliated scientific researchers and medical professionals are preparing the next phases of Ehlers-Danlos research. We are determined to bring hope to those living with Ehlers-Danlos syndromes and related disorders. With each new discovery, their lives and the lives of their families will improve through better, more consistent diagnosis, management, and care.

Our strength begins with hope. And our hope begins with you.