C-Suite
Lara Bloom
President and CEO
Sinead Waugh
Chief Operations Officer
Eric Alley
Chief Financial Officer
Dacre Knight
Chief Medical Officer
Maggie Bartlett
Chief Scientific Officer
Operations Department
Sam Lynch
Executive Assistant to the CEO
Rosie Harper
People & Culture Manager
Sarah Hamilton
Senior Global Alliance Coordinator
Grace Kully
HCP Outreach Coordinator
Development Department
Danielle Hohlier
Development Director
Briony Corbett
Senior Partnerships Coordinator
Randi Christodoulou
P2P Fundraising Coordinator
Research Department
Alan Hakim, MA, FRCP
Principal Investigator Registry & Biobank
Amelia Conley
Research Data & Access Director
Oumaima Nehaili
Research Programs Director
Beth Pillow-Edwards
Biobank Manager
Anthony Barrios
Registry Coordinator
Emma Wimbury
hEDS/HSD Criteria Study Coordinator
Sarah Birhanzl
Research Program Coordinator
Learning & Education Department
Amrat Khorana
Learning & Education Director
Stacey Simmonds
Senior Program Manager – EDS ECHO and Model of Care (MoC)
Scarlett Eagle
Community Education Manager
Paul Gardener
MOOCs Manager
Kellen Roach
Senior EDS ECHO Program Coordinator
Ely Jewett
Community Education Coordinator
Janae Davis
EDS ECHO Program Coordinator
Lauren Hand
Community Engagement Coordinator
Events Department
Faye Moran
Events Manager
Nagat Abduljalil
Events Coordinator
Communications Department
Erin Simons (Consultant)
Senior Marketing Director
Rachel Boon
Creative and Digital Communication Director
Charli Peck
Senior Website, IT & App Manager
Jack Annable
Senior Graphic Designer
Barney Pedryc
Graphic & Motion Designer
Mark Martino
Editor
Joseph Malam
Website & App Developer
Bronte Walker
Website, IT and App Coordinator
Stephanie Honey
Graphic Designer
Adriana Dyrda
Graphic & Motion Designer
