The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Research Priorities

In collaboration with The International Consortium on EDS and HSD, The Ehlers-Danlos Society has established a roadmap to develop and convey its research priorities. Our aim is to inform researchers and funders of areas of interest that they may wish to explore or support. Learn more.

Research Grant Program

The Ehlers-Danlos Society aspires to offer grants annually, with calls for clinical research proposals early in the year and for basic science later in the year. We will also offer grants of varying value to reflect the different nature of researcher requirements, including microgrants.

As a researcher, please look out for announcements of grant-funding rounds on our website, here.

Research Inner Circle (RIC)

The RIC connects passionate supporters with researchers to fund and advance cutting-edge studies in EDS and HSD. Through quarterly webinars, researchers present proposals directly to RIC members, who have the opportunity to invest in impactful research projects. Learn more.

Open Access Funding

The program supports researchers in publishing their EDS and HSD studies in open-access journals, ensuring that new discoveries are freely available to clinicians, scientists, and the global community. This program removes financial barriers to publication, promotes transparency, and accelerates the sharing of knowledge that can advance diagnosis, treatment, and care. Learn more. 

Funded Research

View funded research by year below.