Join us for a dedicated day focused on vascular Ehlers-Danlos syndrome (vEDS) at the 2026 Global Learning Conference. Taking place on Friday, 24 July, this hybrid program will bring together individuals and families living with vEDS, caregivers, clinicians, and researchers from around the world for a day of learning and connection.
Designed to create a focused and supportive space, the vEDS program will combine expert insights, lived experiences, and interactive discussions that place the community at the heart of the conversation.
The conference will be held at the Courtyard by Marriott Dallas Allen at the Event Center, 210 E Stacy Rd, Allen, TX 75002, United States and live-streamed worldwide for virtual attendees.
About the vEDS Program
This dedicated vEDS day will take place in the Watters Ballroom on Friday 24 July from 09:00 am – 17:30 pm. The event has been developed to explore some of the most important and emerging topics in vascular Ehlers-Danlos syndrome, creating space for both scientific discussion and community voices.
Attendees can expect a dynamic program featuring:
- Expert-led presentations on clinical care and emerging research
- Real-world case discussions
- Lived experience and family perspectives
- Interactive panel discussions and audience Q&A sessions
- Community-led conversations and unconference-style sessions
- Opportunities for networking and informal connection
Topics, Themes and Features Speakers
Topics and Themes
Sessions and discussions are expected to explore a range of themes, including:
- Current clinical management and care pathways in vEDS
- Emerging research and future developments
- Genetics, variants, and diagnostic uncertainty
- Vascular and pulmonary complications
- Pediatric presentations and symptom burden
- Chronic pain, fatigue, and quality of life
- Family experiences and community perspectives
- Future priorities for research, care, and support
Featured Speakers
The program will include presentations and discussions from internationally recognized clinicians and researchers, with speakers currently including:
- Peter Byers
- Jonah J. Stulberg
- Siddharth Prakash
- María Alejandra
- Enid Neptune
- Clair Francomano
- Shaine Morris
Additional speakers and session details will be announced as the program develops.
Beyond the Sessions
Attendees joining us in person will also have the opportunity to enjoy a range of wider conference activities and social events, including line dancing, honky-tonk bingo, and the conference welcome reception. These events provide additional opportunities to relax, connect with others, and continue conversations beyond the sessions.
