Agrupación Peruana del Síndrome Ehlers Danlos
Lima, Lima, Peru
About this Group
Peruvian Ehlers-Danlos Syndrome Group (Agrupación Peruana del Síndrome de Ehlers-Danlos)
The Peruvian Ehlers-Danlos Syndrome Group is a patient-led community based in Peru, dedicated to supporting individuals and families living with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). We aim to raise awareness, promote education, and build a network of mutual support through online meetings, educational content, advocacy efforts, and connection with local health professionals.
We offer a safe and inclusive space for people living with EDS, HSD, and related conditions—regardless of age, diagnosis status, or background. Family members, caregivers, and medical professionals interested in learning more or supporting the community are also welcome to join.
Together, we work toward visibility, understanding, and improved quality of life for those affected by these complex connective tissue disorders in Peru and beyond.
Meeting Schedule
We hold meetings once a month, both virtually and in person, depending on availability and member needs. All meeting details—including the exact date, time, location, or virtual link—are shared in advance through our group WhatsApp chat, which serves as our main channel of communication with members.
- Support Group
- Global Alliance Member
- This group holds in-person meetings
- This group holds virtual meetings
- This group holds in-person support groups
- This group holds virtual support groups
