Oregon Area Ehlers-Danlos Society
Portland, Oregon, United States
About this Group
Our mission is to raise awareness for Ehlers-Danlos Syndrome and provide support and education to all interested in the greater Oregon Area. People who have HSD or EDS and those suspected of having HSD or EDS are welcome, along with their family members.
We have a very active closed Facebook group called Oregon Area Ehlers-Danlos Support Group as well as a website. Events are listed on our website, where you can also sign up for our email list – www.oreds.org. We host speakers several times a year and also offer support-style meetings once a month. We have in person gatherings 2-3 times a year.
Meeting Schedule
Usually the 3rd Saturday of the month 7-9pm PST in summers and 5-7pm in Fall-Spring. See our website for the calendar of events www.oreds.org and for a mailchimp sign up to get invitations to meetings.
- Global Alliance Member
- Charity Organization
- Support Group
- This group holds in-person meetings
- This group holds virtual meetings
- This group holds in-person support groups
- This group holds virtual support groups
