Washington State EDS Group (WAEDS)
Washington, United States
About this Group
WAEDS is open to current adult residents of Washington State with a formal diagnosis of a type of hypermobility spectrum disorder (HSD) or Ehlers Danlos Syndrome (EDS) and any of their local support people (parents of children with the condition are welcomed).
The goal of this group is to spread medical information and promote awareness activities. We maintain a preferred provider list of local doctors with experience treating people with EDS and HSD.
This group gathers in person roughly twice a year for didactic/support meetings at the University of Washington in Seattle.
- Support Group
- This group holds in-person meetings