A warrior of Ehlers-Danlos syndrome, she fought so hard against EDS and gastroparesis and other conditions that go with EDS. We are all very proud of Amy. She fought hard through her life to get better and stay alive. She was an inspiration to us all, spreading awareness of EDS and what it was like to live on a daily basis, every day in her life. Her legacy will live on forever. Our thoughts to go out to her boyfriend, Tom, and her family and friends. May she rest in paradise; sleep tight, Amy, no more suffering or pain. Fly-high Amy will always be loved by everyone who knew her.
(Sandra Jeffery)
