Did you participate in a previous version of the EDS & HSD Global Registry?
It is important that you register through the invitation link that applies to you.
If you registered in PEER
You are already in the DICE EDS and HSD Global Registry; however, the questions have been reorganized and updated to provide enhanced quality and specificity for researchers. To take part in the DICE Global Registry, you should use the individualized link sent to you via email and NOT the public link you may see on social media and/or The Ehlers-Danlos Society website.
If you registered in Luna DNA
You will still be able to access your information via your own LunaDNA account, however this data is not part of the DICE EDS and HSD Global Registry. You will need to re-register on REDCap to take part in the DICE Global Registry. Please proceed to the link on this page.
If you didn’t participate in the Registry previously and are a new participant, you may register via the button below.