EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes – Jpn

EDS ECHO イベント シリーズ:希少病型 エーラス・ダンロス症候群 


エーラス・ダンロス症候群の希少病型に焦点を当てたEDS ECHO サミットシリーズのバーチャルイベントが2021年5月29日に開催されます。このイベントでは、以下の病型に関する最新の研究成果、治療や経験についての情報が提供されます。ふるってご参加ください。 

  • 多発関節弛緩型EDS  Arthrochalasia EDS (aEDS 
  • 脆弱角膜症候群  Brittle Cornea Syndrome (BCS) 
  • 心臓弁型EDS  Cardiac-valvular EDS (cvEDS) 
  • 類古典型EDS  Classical-like EDS (clEDS) 
  • 皮膚脆弱型EDS  Dermatosparaxis EDS (dEDS) 
  • 後側彎型EDS  Kyphoscoliotic EDS (kEDS) 
  • 筋拘縮型EDS  Musculocontractural EDS (mcEDS) 
  • ミオパチー型EDS  Myopathic EDS (mEDS) 
  • 歯周型EDS  Periodontal EDS (pEDS) 
  • 脊椎異形成型EDS  Spondylodysplastic EDS (spEDS) 




 お住まいの地域における開催時刻につきましては world time buddy でご確認ください) 

この会議は Zoom Webinarを利用してオンラインで開催されます。 ご自身の経験をCommunity Voices を通して届けることを希望される方、またご質問がおありの方は events@ehlers-danlos.com までメールでご連絡ください。 


EDS ECHO イベント シリーズ:希少病型エーラス・ダンロス症候群 参加申し込み受付中! 

EDS ECHO イベント シリーズ:希少病型エーラス・ダンロス症候群」に参加ご希望のは、患者コミュニティ、または医療関係者用の申し込みボタンの案内に従ってお申し込みください。





In support of improving patient care, Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.  

Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards of Commercial Support, requires anyone who is 
in a position to control the content of an activity discloses all relevant financial relationships they have had within the last 12 months with a commercial interest related to the content of the activity. The Planners and Presenters of this activity disclose that they have no financial relationships with any commercial interest. Professor Lara Bloom, Stacey Simmonds, Sacha Aziz, Prof Fransiska Malfait, Dr. Johannes Zschocke, Dr. Serwet Demidras, Dr. Anthony Vandersteen, Dr. Marianne Rohrbach, Dr. Roberto Mendoza-Londono, Dr. Tomoki Kosho, Dr. Fleur Van Dijk, Ines Kapferer-Seebacher, Dr. Ulrike Lepperdinger.

Supporting Sponsors

Lipedema Foundation

Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms that occurs almost exclusively in women. It is a common but underrecognized disorder. Lipedema may cause pain, swelling, and easy bruising and be accompanied by an unusual texture within the fat that can feel like rice, peas, or walnuts beneath the surface of the skin.  

At the Lipedema Foundation, we support collaborative research that addresses the basic biology, genetics, and epidemiology of lipedema with a mission to define, diagnose and develop treatments. 

Please visit our website lipedema.org to learn more about the Lipedema Foundation. 

39 Lewis Street,
4th FloorGreenwich,
CT 06830
+1-203-489-2989 | info@lipedema.org

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