DICE EDS & HSD Global Registry Researcher Applications

Request to Share a Survey via the Registry

Researchers who wish to share a survey on the DICE Global EDS & HSD Registry can complete the formal application below.

Primary Investigator Name*

First Last

Primary Investigator Email*

Primary Investigator Phone*

Name of Institution or Organization*

Institution/Organization Address

Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country

Institution/Organization Email*

Institution/Organization Phone*

Has this study been subjected to an ethical board process?*

As your survey will be shared via the DICE EDS & HSD Global Registry it will fall under our IRB, you will need your own IRB approval and will need to join us for further approval. We will contact you if your application is accepted with relevant processes and timelines.

Yes

Please upload evidence of the outcome of the ethical board process.

Max. file size: 2 MB.

Lay summary of study*

Please provide a lay summary which can be shared via The Ehlers-Danlos Society website and social media channels.

Details of study*

Please provide additional details such as eligibility for participation, research methods, etc.

Please attach a file which contains the questions you would like to include in your survey*

Any file format is accepted

Max. file size: 2 MB.

Request to Promote a Survey via The Ehlers-Danlos Society Website and Social Media Platforms

The Ehlers-Danlos Society are willing to share surveys for research purposes to our community through social media. All applications need to have full ethical approval and be able to show outcome evidence.

Applicant's Name*
First Last
Applicant's Email*
Applicant's Phone*
Name of Institution or Organization*
Institution/Organization Address*
Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country
Institution/Organization Email*
Institution/Organization Phone*
Supervisor's Name*
First Last
Supervisor's Email*
Supervisor's Phone*
Ethical Board Process*
Has this study been subjected to an ethical board process?
- Yes
- No
Ethical Board Outcome Evidence
Please upload evidence of the outcome of the ethical board process.
Max. file size: 2 MB.
Details of Study*
Up to 1000 characters.
How do you plan on including and/or addressing diversity factors within your research study?*
Up to 1000 characters.
Link to survey*
Acknowledgement of The Ehlers-Danlos Society*
- I agree to include a link to the DICE EDS and HSD Global Registry in my survey
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Data Request Application

Primary Applicant Information

Co-Applicant Information

Post Graduate Students

Study Information & Data Access

Request to Share a Survey via the Registry

Request to Promote a Survey via The Ehlers-Danlos Society Website and Social Media Platforms