Healthcare professionals and researchers who wish to access the DICE EDS & HSD Global Registry, can complete one of the two application forms below. All applications will undergo a thorough review, if you have any questions do contact our team here.
Researchers who wish to request access to the DICE Global EDS & HSD Registry can complete the formal application below.
Requests for data access undergo a thorough review twice yearly. If the application is approved data access is granted to the researcher after all regulatory and legal requirements are met.
Researchers who wish to share a survey on the DICE Global EDS & HSD Registry can complete the formal application below.
The Ehlers-Danlos Society are willing to share surveys for research purposes to our community through social media. All applications need to have full ethical approval and be able to show outcome evidence.