DICE EDS & HSD Global Registry Researcher Applications

Healthcare professionals and researchers who wish to access the DICE EDS & HSD Global Registry, can complete one of the two application forms below. All applications will undergo a thorough review, if you have any questions do contact our team here.

Researchers who wish to request access to the DICE Global EDS & HSD Registry can complete the formal application below.

Requests for data access undergo a thorough review twice yearly. If the application is approved data access is granted to the researcher after all regulatory and legal requirements are met.

Researchers who wish to share a survey on the DICE Global EDS & HSD Registry can complete the formal application below.

Primary Investigator Name*
Institution/Organization Address
Has this study been subjected to an ethical board process?*
As your survey will be shared via the DICE EDS & HSD Global Registry it will fall under our IRB, you will need your own IRB approval and will need to join us for further approval. We will contact you if your application is accepted with relevant processes and timelines.
Max. file size: 2 MB.
Please provide a lay summary which can be shared via The Ehlers-Danlos Society website and social media channels.
Please provide additional details such as eligibility for participation, research methods, etc.
Any file format is accepted
Max. file size: 2 MB.

The Ehlers-Danlos Society are willing to share surveys for research purposes to our community through social media. All applications need to have full ethical approval and be able to show outcome evidence. 

  • Has this study been subjected to an ethical board process?
  • Please upload evidence of the outcome of the ethical board process.
    Max. file size: 2 MB.
  • Up to 1000 characters.
  • Up to 1000 characters.