2024 Global Learning Conference - From Head to Toe. Philadelphia PA, USA. July 17-21, 2024

Meet Our Sponsors

Body Braid

The Body Braid’s Core Body Braid is a posture support which acts as external connective tissue which helps to reinforce the body’s internal connective tissue. The Core Braid’s soft, elastic fabric bands spiral around the body, engaging the core and gently aligning different body parts into an integrated whole.

DM Orthotics Ltd

We provide soft fabric orthoses to help adults and children with challenging conditions like EDS. Our orthoses help with pain management, postural realignment and reduce subluxation and dislocation through the strategic way our fabrics are manufactured, providing you with a product that helps improve daily life.
Our orthoses are clinically proven with some linked to evidence-based research. You can find out more about our research in our research & development section.
We aspire to maintain our consistently high standards and are always looking ahead to see what advances can be made for the future, in order to continually find innovative developments for all our orthoses.

Silver Ring Splint

In 1974, occupational therapist Cynthia Garris was forced to take a new look at splint therapy – in that year, she was diagnosed with Rheumatoid Arthritis. She had long believed in the value of splinting, but soon realized that none of the existing technologies addressed the long-term use of splints. While plastic splints were adequate for treating short-term trauma, they were not an ideal solution for lifetime wear. In 1985, she set out to design and manufacture a new series of splints that were both more effective and more attractive than the splints then in use. In the process, she revolutionized splint therapy. Wearing SilverRing™ Splints removes the stigma of splinting and increases patient compliance. Patients experience positive reactions from others which improves their perspective on treatment. Whether they need finger stability for hand-intensive work or for everyday tasks like cooking and holding a pencil, thousands of people have made SilverRing™ Splints a valued part of their everyday lives. SilverRing™ Splints encourage complete patient well-being, medically effective hand therapy and a positive self-image

Aytu BioPharma

Aytu is a pharmaceutical company focused on commercializing novel therapeutics. The Company’s prescription products include Adzenys XR-ODT® (amphetamine) extended-release orally disintegrating tablets (see Full Prescribing Information, including Boxed WARNING) and Cotempla XR-ODT® (methylphenidate) extended-release orally disintegrating tablets (see Full Prescribing Information, including Boxed WARNING) for the treatment of attention deficit hyperactivity disorder (ADHD), Karbinal® ER (carbinoxamine maleate), an extended-release antihistamine suspension indicated to treat numerous allergic conditions, and Poly-Vi-Flor® and Tri-Vi-Flor®, two complementary fluoride-based prescription vitamin product lines available in various formulations for infants and children with fluoride deficiency. Aytu is also building a therapeutic pipeline, which includes AR101 (enzastaurin), a PKCβ inhibitor in development for the treatment of vascular Ehlers-Danlos Syndrome (VEDS). To learn more, please visit aytubio.com.

Lumia Health™

(formerly STAT Health)

We’re building the world’s first wearable device capable of tracking drops in blood flow to your head in POTS, Syncope, OH and other forms of Dysautonomia. Visit us online to learn more about our in-ear wearable device, and come by our table at the EDS Global Learning Conference to participate in special research shedding light on the role of blood flow changes in orthostatic intolerance in EDS, HSD and other connective tissue conditions.

  • Aria Health

    Aria Health is a community project bringing patients together to strengthen their voices and drive forward research and innovation related to various health conditions, with a first focus on Ehlers-Danlos Syndrome (EDS). My Aria is a free app that rewards you for taking care of your health and contributing to medical research. The app offers tools for tracking medications, monitoring symptoms, and participating in research surveys. We believe that the patient’s voice should be at the forefront of determining the future of our healthcare system, our medicines, and our health tools. By leveraging the collective insights of My Aria users, Aria Health aims to improve treatments and outcomes for Ehlers-Danlos Syndrome and many more conditions.

  • Guava

    Guava is a personal health tool that helps people manage chronic illness and wellness.

  • The Zebra Club

    Jeannie Di Bon is a Movement Therapist with over 15 years clinical experience
    working with the hypermobile community. She is based in London and is the proud creator of The Zebra Club app.
    Jeannie specializes in working with people with hypermobility, Ehlers-Danlos Syndrome (EDS) and chronic pain both in person and online globally. Originally trained in Pilates, over the past decade her research and study have gone on to encompass biomechanics, anatomy, neuroscience and pain management.
    Jeannie has hypermobile Ehlers-Danlos Syndrome and rehabbed her body and mind from chronic pain with her Integral Movement Method (IMM).
    In July 2019, Jeannie launched The Zebra Club – a comprehensive online platform for people with hypermobility, EDS and chronic pain. In November 2021, The Zebra Club was transformed into an easily accessible app for home use. The app comprises of three elements.
    Movement – a graded, safe approach to movement with a range of classes,programs and audio meditations specifically designed for hypermobility. New classes are added every month and cover a wide variety of topics. All abilities are catered for, and classes range from gentle upwards.
    Education – live monthly events with EDS guest experts. Gain valuable knowledge and access to a vast resource library from the comfort of your own home.
    Community – a thriving global community to meet friends, share experiences and even enjoy movement classes together through our unique Zebra Zoomies platform. The community also has a number of smaller specialized sub-groups focusing on niche topics like menopause, parenting, teenage years, chronic fatigue and neurodiversity. Our team of Ambassadors are on
    board to help and guide you through your EDS / HSD journey.
    The Zebra Club aims to improve quality of life through mindful movement, education, and the support of a thriving community. We look forward to welcoming you to The Zebra Club soon. Available on the App stores or at www.zebra.club.

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  • Lipedema Foundation

    The Lipedema Foundation is a private, non-fundraising foundation with a mission to fund research to define, diagnose and develop treatments for Lipedema. The Foundation is the world’s largest funder of Lipedema research, with more than $12.5 million awarded in the US and internationally. The Foundation’s research focuses on collaboration, connecting patients and researchers, and fostering basic and translational research across disciplines including physiology, genomics, immunology and endocrinology.

    The Foundation also maintains the Lipedema Foundation Registry, an online registry platform created to help patients, families, clinicians, and caregivers learn more about the condition, understand barriers to diagnosis, assess quality of life impact, and point the way to potential treatment approaches.

    Find out more about this exciting research field at www.lipedema.org.

  • Gwen Miller Studio

    Gwen Miller Studio blends Hendrickson Method® Manual Therapy, yoga therapy, Pilates and movement therapy for pain relief and as a pathway and foundation for optimal function in life. Gwen is the author of Safe Movement for All Spines – A Guide to Spinal Anatomy and How to Work with 21 Spine and Hip Conditions, a resource and guide for Pilates and fitness teachers, yoga therapists, allied health professionals, and for anyone living in a body that needs extra care. Teacher training and continuing education programs are ongoing and available for all. Gwen enjoys mentoring and collaborating with teachers and healthcare providers to increase accessibility of yoga, Pilates and other forms of movement for people with spine, joint, and hip conditions, including osteoarthritis, osteoporosis, hypermobility and scoliosis.

  • Zebra Splints

    Here at Zebra Splints, our mission is simple-to provide high-quality ring splints to help those who are suffering from pain and disability. Each splint is precision handcrafted by a professional silversmith with 20 years of experience in the jewelry industry and 8 years of dedicated experience in the design and fabrication of comfortable and effective metal ring splints. It has always been our main goal to keep pricing low so that our splints are as accessible as possible, so unlike many other places, we sell at cost. We have dedicated ourselves to the study of hand conditions and splinting to ensure we’re able to provide knowledgeable support and use all hypoallergenic metals so even those with severe metal sensitivities have options. Everything is done at cost in the hopes of making them accessible for all.

  • WAT Medical Enterprise

    WAT Medical Enterprise develops innovative wearable medical devices that are safe and effective alternatives to medication. The products are clinically proven and cleared by multiple federal medical agencies like the FDA, Health Canada, and TGA across the world. The anti-nausea wristband, EmeTerm is the #1 non-medicine solution to nausea and vomiting on Amazon. The anti-migraine device, HeadaTerm 2, is one of the only OTC anti-migraine devices in the US. WAT Medical strives toward excellence in innovation and patient care through its technologies. The team has and will continue to partner with world-renowned research institutions and independent physicians to conduct clinical studies. Any researcher who is interested is always welcome to reach out.

  • Strive Physical Therapy

    Professional care with a personal touch. Since 2005, Strive PT has been committed to providing expert, compassionate care that targets your root problem, resulting in lasting relief. As a physical-therapist owned practice, our passion for serving the community and helping people get better drives our work. Our mission is to help you return to the life you love. That’s why we’re committed to helping you achieve your health goals so you can live on your own terms again. The Strive PT process allows you to: Find hope and confidence in your healing. Ready for improved sleep and mental health? With our compassionate care, you’ll gain confidence in your ability to recover and feel optimistic about a future without limitations. Receive dedicated support from an expert team. Throughout your healing journey, you’ll have access to an accomplished team who values your trust in their hands-on care. Feeling seen and heard, you’ll always know where to turn for future support. Enjoy the life you deserve. With effective treatment that actually works, you can pursue your life unencumbered, making time for the activities and people you love most.

  • Actively Autoimmune

    Actively Autoimmune is an online studio run by Zoe McKenzie, an integrative Physiotherapist, Pilates instructor and exercise coach. Zoe’s inspiration for creating Actively Autoimmune stemmed from living alongside chronic conditions, including EDS. Through her own experiences, she saw how challenging it is to engage in exercise whilst living with symptoms like pain and fatigue. She created an online Pilates studio including ‘Bed Pilates’ where all movements are whilst lying down and members are encouraged to meet their body where it is with a gentle approach to movement. She also supports clients through 1:1 and group coaching around the world to help integrate consistent movement with compassion and support.

  • LHCCDE

    Lighthouse Complex Care of Delaware Inc. is a medical clinic that guides patients with complex neurological, immunological, genetic, and metabolic issues to optimal health by providing comprehensive, individualized medical care. Our approach utilizes the best of both Functional Medicine and Traditional Medicine to maximize results. The conditions we treat include, but are not limited to:
    autoimmune conditions, immunodeficiencies, medical comorbidities to
    developmental disorders including Autism, genetic disorders, encephalopathies
    including PANS/PANDAS, mitochondrial dysfunction, Dysautonomia/POTS,
    Histaminosis/MCAS, connective tissue diseases/collagen defects including Ehlers Danlos Syndrome, metabolic disorders, allergies, eczema, asthma, Chronic Fatigue Syndrome, and Long Covid Syndrome. Our providers have experience with complex patients both personally and professionally. After the frustrations we experienced as patients, we are committed to creating a positive experience for families seeking expert care. To help make this a reality, we accept multiple insurance plans as well as Medicare and Medicaid from some states. We operate in a hybrid model and can currently start and continue care both in person and via telemedicine appointments.

  • EDS Guardians

    EDS Guardians, Inc., is the world’s first patient-to-patient, caregiver-to-caregiver, “pay-it-forward” organization dedicated to helping Ehlers-Danlos Syndromes (EDS) patients who lack support and need vital medical treatment, community, and compassionate care.

    EDS Guardians is a 501(c)(3) public charity founded by EDS patient and healthcare advocate Kate Colbert, on the principle that the world would be a better place for children and adults with chronic illness if the patients themselves — the true experts — charted the course toward a brave new future where EDS patients finally feel fully seen and believed, medically and practically cared for, and valued and loved for their inherent strength and beauty.

    EDS Guardians was founded in late 2023 with a Board of Directors comprising EDS patients, caregivers, and medical experts, and will be unveiling practical and inspiring programs to bring together caregivers and patients in need with those who are strong enough to help.

    The organization will be offering travel grants for patients needing to travel for medical care, as well as other practical support programs and educational offerings.

  • XRP Healthcare

    Introducing XRP Healthcare, the first Pharma and Healthcare platform on the XRP Ledger, aiming to transform global healthcare through fast decentralized payments, mergers & acquisitions, and blockchain advancements. Enjoy up to 80% savings on prescriptions at 68,000+ pharmacies like Walgreens, CVS, and Walmart. Download your free XRPH Prescription Savings Card on Google Play or IOS now!

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