Finding opportunities to take part in research can sometimes be difficult. We share research opportunities through TrialPort, a platform that helps connect people with potential research and clinical studies.
Please note that these studies are not run or endorsed by The Ehlers-Danlos Society, and we are not responsible for the content or operation of the pRxEngage platform or the studies listed there.
Taking part in research is completely voluntary, and you may wish to discuss participation with your healthcare professional before deciding whether it is right for you.
Clinical trials are research studies that assess how safe and effective an investigational medicine or medical device is. Clinical trials are an important part of developing new treatments for different conditions and diseases. There are currently no disease-specific treatments for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD). Research through clinical trials helps improve understanding of these conditions and supports the development of better management options.
A clinical trial must be approved by regulatory and ethical authorities before participants can volunteer and agree to take part. Clinical trials must follow strict ethical and safety standards to protect participants and participation is completely voluntary.
Clinical trials are often run in hospitals or clinics. Some trials are decentralised, meaning parts of the study can take place at home, such as remote monitoring or home visits. This may make participation more accessible for some people and families.
If you choose to take part, any information you provide will be handled according to TrialPort’s Privacy Policy.
You can view TrialPort’s FAQs here.
