Last Updated: 22 March 2024

The Ehlers-Danlos Society

Funding for Medical Research Policy

The Ehlers-Danlos Society (hereby referred to as The Society) Funding for Medical Research policy serves as the terms and conditions of The Society grant awards. By accepting an award, the grantee agrees to comply with the requirements of The Society policy except where the notice of an award states otherwise.  

We support programs and initiatives that offer healthcare providers and community members access to educational information on disease awareness, therapeutic management and scientific advancements in our area of EDS and HSD interest. Funds are awarded to educate a broad audience and may not be used to educate a sole individual. 

More details on our research priorities can be found here.  

Examples of our recent funding can be found here.  

The Society has high expectations on research we fund having a large impact on the EDS and HSD community. In selecting projects for funding, The Society seeks professionals for original initiatives led by outstanding community members. It is the hope of The Society that all research initiatives prioritize diversity efforts. 

Eligibility 

 To be considered for research funding, the below eligibility criteria must be met; 

  • Research program requests for funding must be submitted at least 90 days prior to the research program start date. 
  • Research must be aligned with our research priorities, funded programs must provide value to patients, and health care professionals and must be innovative and cost effective in nature. 
  • Research will not have any geographic limitations for applying for funding. 
  • The researcher must show potential knowledge and understanding of EDS and HSD including disease awareness, management of disease, and scientific advancements. 
  • Funded research is expected to result in tangible, scientifically centered conclusions. 
  • Research funding requests must specify the educational need. 
  • Research organizations which also perform promotional activities must have sufficient separation (firewalls) between the grant requesters or partners promotional and medical business units. 
  • Research teams must provide monthly reports documenting how funds are being used. 
  • Research teams must submit a grant report that includes spending, as well as conclusion to research study. 
  • Research teams that have currently received funding from The Society and are applying for further funding, must have their current funded research completed within six months of receiving new funds. If new funds are awarded they will not be distributed until  the current funded research is completed and all reports are received.

Ineligibility 

The Society will not provide funding for research under the following conditions; 

  • Your organization is political or sectarian. 
  • Your organization is a private physician’s office, or a group practice. 
  • You are an organization that discriminates based on race, religion, gender, gender expression, and/or identity, age, national origin, disability, marital status, sexual orientation, military status, and/or any other protected status is ineligible for funding. 
  • If your organization is an accredited provider but you will be utilizing a non-accredited third party implementation provider to implement the proposed activity: 
  • The third-party implementation provider must not be owned in whole or in part by, or controlled by an individual who is an immediate family member of the practicing physician or any other health care provider. 
  • The third party implementation provider must not be owned in whole or in part by, or controlled by a practicing physician or other health care provider, or a group of practice physicians or health care providers regardless of size. 
  • Funding requests from applicants who have received past grant funding, have yet to provide required information, or have not returned unused funds. 
  • Funding request that contain unacceptable budget line items such as: 
  • Funding for healthcare professionals and or partners/guests. 
  • Lodging or expense reimbursement. 
  • Prizes, gifts, or swag items. 
  • Food 
  • Funding must not be used for: 
  • Supporting a religious purpose. 
  • Promotion of any kind that could lead to influence formulary decisions.  
  • Travel, lodging, or registration fees for non-faculty health care professionals to attend training programs. 
  • Operating expenses that are not directly and exclusively dedicated to the research program. 
  • Supporting a promotional event or exhibit. 
  • Entertainment or social events. 
  • Staff, professional, or personal development. 
  • Advertising 
  • Fundraising events 

The Society does not provide funding for the purchase of construction, renovations, laboratories, or equipment. On some occasions, The Society will support the purchase of scientific/medical tools (i.e. diagnostics tools, physio kits) if such is essential to the success of the supported research project. 

Policy Review and Amendments 

This policy will be reviewed annually, by the end of the first quarter (Q1), to ensure that it continues to meet the needs of The Society and its community. 

How to Contact Us  

If you have any questions about The Society’s Medical Research Funding Policy, please do not hesitate to contact us.  

Email us at: [email protected] 

Call us: +1 410-670-7577 or +44 203 887 6132 

Or write to us at: The Ehlers-Danlos Society Headquarters, 447 Broadway, 2nd FL #670, New York, NY, 10013, USA or The Ehlers-Danlos Society Europe Office, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, United Kingdom 

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