Last Updated: 11 February 2025
The Ehlers-Danlos Society
Funding for Medical Research Policy
The Ehlers-Danlos Society (hereby referred to as The Society) Funding for Medical Research policy serves as the terms and conditions of The Society grant awards. By accepting an award, the grantee agrees to comply with the requirements of The Society policy except where the notice of an award states otherwise.
We support programs and initiatives that offer healthcare providers and community members access to educational information on disease awareness, therapeutic management and scientific advancements in our area of EDS and HSD interest. Funds are awarded to educate a broad audience and may not be used to educate a sole individual.
More details on our research priorities can be found here.
Examples of our recent funding can be found here.
The Society has high expectations on the research we fund having a large impact on the EDS and HSD community. In selecting projects for funding, The Society seeks professionals for original initiatives led by outstanding community members. It is the hope of The Society that all research initiatives prioritize diversity efforts.
Eligibility
To be considered for research funding, the below eligibility criteria must be met;
- The study must align with our research priorities, provide value to patients and healthcare professionals, and be innovative and cost-effective.
- The study fitting within the scope of the Research Funding Announcement (RFA).
- Research team must submit the application before the funding round deadline.
- The study must have IRB approval or being in the approval process.
- There are no geographic limitations for applying for funding.
- Applicants must demonstrate knowledge and understanding of EDS and HSD, including disease awareness, management, and scientific advancements.
- Funded research must lead to clear, scientifically supported conclusions.
- Research teams must provide reports as outlined in their grant agreement.
- A final grant report must include details on spending and research findings, the requirements are outlined in the grant agreement.
- Research teams currently receiving funding must be in good standing with our requirements as outlined in the grant agreement before applying for additional funds for a new study.
- If awarded new funding, funds will not be distributed until the ongoing study is completed and all required reports are submitted.
- All applications are review and approval will be given by the Scientific Review Committee, overseen by the CMSO.
Ineligibility
The Society will not provide funding for research under the following conditions:
- Your organization is political or sectarian.
- Your organization is a private physician’s office, or a group practice.
- You are an organization that discriminates based on race, religion, gender, gender expression, and/or identity, age, national origin, disability, marital status, sexual orientation, military status, and/or any other protected status is ineligible for funding.
- If your organization is an accredited provider but you will be utilizing a non-accredited third-party implementation provider to implement the proposed activity:
- The third-party implementation provider must not be owned in whole or in part by or controlled by an individual who is an immediate family member of the practicing physician or any other health care provider.
- The third-party implementation provider must not be owned in whole or in part by or controlled by a practicing physician or other health care provider, or a group of practice physicians or health care providers regardless of size.
- Funding requests from applicants who have received past grant funding, have yet to provide required information, or have not returned unused funds.
- Funding request that contains unacceptable budget line items such as:
- Funding for healthcare professionals and or partners/guests.
- Prizes, gifts, or swag items.
- Food
- Funding must not be used for:
- Supporting a religious purpose.
- Promotion of any kind that could lead to influence formulary decisions.
- Travel, lodging, or registration fees for non-faculty health care professionals to attend training programs.
- Operating expenses that are not directly and exclusively dedicated to the research program.
- Supporting a promotional event or exhibit.
- Entertainment or social events.
- Advertising
- Fundraising events
The Society does not provide funding for the purchase of construction or renovations. On some occasions, The Society will support the purchase of scientific/medical tools and equipment (i.e. diagnostics tools, physio kits) if such is essential to the success of the supported research project.
Policy Review and Amendments
This policy will be reviewed annually, by the end of the first quarter (Q1), to ensure that it continues to meet the needs of The Society and its community.
How to Contact Us
If you have any questions about The Society’s Medical Research Funding Policy, please do not hesitate to contact us.
Email us at: [email protected]
Call us: +1 410-670-7577 or +44 203 887 6132
Or write to us at: The Ehlers-Danlos Society Headquarters, 447 Broadway, 2nd FL #670, New York, NY, 10013, USA or The Ehlers-Danlos Society Europe Office, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, United Kingdom