Jessica Bowen is a UK registered genetic counselor and has worked in clinical genetics since 2004. Having been part of the UK EDS National Diagnostic Service since its foundation in 2009 she has developed a wide experience of all types of EDS. As a genetic counselor she works closely with families before, during and after diagnosis. Together with colleagues, Jess has developed resources for patients and professionals, including a medical emergency card for vascular EDS. Collaborating with EDS support groups and charities in the UK, she has helped to organize patient support days and conferences. Jess is particularly interested in the psychosocial outcomes and consequences of early and accurate diagnosis of rare disease.
Registered Genetic Counsellor GCRB