Nancy was a resident of Pennsylvania for most of her life. She and her husband relocated to Charleston four years ago. A registered nurse for 25 years, she is currently working with the movement disorders neurology program at MUSC. She is the representative for the Charleston support group chapter of the Chiari & Syringomyelia Foundation. She has three grown daughters, two of whom have Ehlers-Danlos syndrome, and grandchildren, four of whom have been diagnosed with EDS. Two of the other grandchildren are very symptomatic of EDS, but not yet diagnosed. One of her daughters and four of her grandchildren have suffered many of the co-morbidities that go along with EDS.
Chiari & Syringomyelia Foundation patient representative (USA)