Last Updated: 10 October 2024

The Ehlers-Danlos Society

Alliance and Partnerships Policy 

EDS & HSD Global Alliance 

The Ehlers-Danlos Society strives to improve care, access, research, and education for those around the world who have Ehlers-Danlos syndrome (EDS), hypermobility spectrum disorder (HSD), and related conditions. Local organizations are working hard to help those with EDS and HSD in their communities around the world. The Ehlers-Danlos Society invites these organizations to apply for The EDS and HSD Global Alliance.  

The Ehlers-Danlos Society recognizes the importance and value of collaboration between organizations. The EDS and HSD Global Alliance establishes a strong network that encourages awareness, research, and change. 

To join the EDS and HSD Global Alliance, an organization must be a registered charity or non-profit or hold regular support group meetings. 

Disclaimer 

Members of the Alliance have no legal connection or association to The Ehlers-Danlos Society. The Ehlers-Danlos Society holds no legal responsibility for work carried out by members of the EDS and HSD Global Alliance. Members of the EDS and HSD Global Alliance are not umbrella organizations of The Ehlers-Danlos Society. 

The Ehlers-Danlos Society is unable to provide financial assistance in the creation, development, or activities of those who become members of the EDS and HSD Global Alliance.  

Members are not permitted to use The Ehlers-Danlos Society’s contact or EIN tax code information. The Ehlers-Danlos Society does not have any ownership or direct financial interest in members of the EDS and HSD Global Alliance.  

Work published by members of the EDS and HSD Global Alliance is not automatically endorsed by The Ehlers-Danlos Society. 

The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by members of the EDS and HSD Global Alliance.  

The Ehlers-Danlos Society reserves the right to remove members from the EDS and HSD Global Alliance at our discretion. 

Agreement 

Alliance members are expected to adhere to a set of guidelines described in the Global Alliance agreement. These guidelines have been established to promote a culture of collaboration, integrity, and accountability within the Alliance. You can find the Alliance Agreement here.  

Partnerships 

On a case-by-case basis, The Ehlers-Danlos Society may form partnerships with organizations and individuals with whom support a specific project or goal. While we are eager to work with other organizations, these relationships must align with our values, mission, and strategy. Organizations who wish to partner with The Ehlers-Danlos Society are encouraged to reach out to [email protected] with your inquiry.  

Terms and conditions are determined per partnership, dependent on their program of work. The Ehlers-Danlos Society will continually evaluate partnerships to ensure they are supporting our strategic mission.  

Policy Review and Amendments 

This policy will be reviewed annually, by the end of the first quarter (Q1), to ensure that it continues to meet the needs of The Ehlers-Danlos Society and its community. 

How to Contact Us 

If you have any questions about The Society’s Alliance and Partnerships Policy, please do not hesitate to contact us. 

Email us at: [email protected] 

Call us: +1 410-670-7577 or +44 203 887 6132. 

Or write to us at: The Ehlers-Danlos Society Headquarters, 447 Broadway, 2nd FL #670, New York, NY, 10013, USA, or The Ehlers-Danlos Society Europe Office, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, United Kingdom.