Susan is from Toronto, Canada and the parent of a daughter with Hypermobile Ehlers-Danlos Syndrome. She works part-time at the family business, Canerector and has a BA in Economics and an MBA from York University.
Susan has held various volunteer positions over the years and is presently on the board of The ILC Foundation, a Canadian charity that addresses Ehlers-Danlos Syndrome. Her previous board positions were on Habitat for Humanity Toronto, Havergal College and Trinity College School.
Susan’s goal is to improve the care for patients afflicted with this poorly understood condition in Canada, the US and around the world.