EDS ECHO Summit: Neurological Complications

EDS ECHO Summit: Neurological Complications

Healthcare Professionals Day, September 25, 2021

Community Day, September 26, 2021

We are delighted to be hosting a dedicated virtual event for neurological complications in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The conference will take place online via Zoom Webinar. If you have questions please email events@ehlers-danlos.com

September 25 is suitable for Healthcare Professionals. September 26 is suitable for Community Members, and Healthcare Professionals who wish to learn from a lay perspective. A total of 11.5 CME/CEU/CE credits are available for Healthcare Professionals to claim for attending both days live.

September 25, 2021, will be Healthcare Professionals Day.

Sessions will take place from 08:45 AM – 4:45 PM Eastern Time. (Please use the converter world time buddy to find the correct times in your location)

Join us as leading experts present the latest research, management, and scientific information including the following topics:

  • Persistent headaches and migraine
  • Orthostatic headache
  • Indications for surgical referrals and outcomes
  • Peripheral Neuropathy
  • Cardiovascular autonomic dysfunction – pathophysiology and management

A total of 11.5 CME/CEU/CE credits are available for Healthcare Professionals to claim for attending both days live. The full agenda and registration information can be found below.

September 26, 2021, will be Community Day.
This day is for members of the EDS and HSD community, their families, and caregivers. The community day will take place from 08:45 AM – 4:45 PM Eastern Time.

Community Day presentations will include:

  • Management of headache and migraine
  • What is orthostatic headache?
  • How your physical therapist can help manage lumbar-sacral instability
  • Symptoms and management of tethered cord
  • Management of cardiovascular autonomic dysfunction

The full agenda for Community Day, registration information, and scholarship application details can be found below.


Please follow the healthcare professionals sign-up button to find registration options for September 25 and September 26, and the Community Day sign-up button below for September 26.

The full agenda can be viewed below.


Scholarship Applications Now Open!

Thanks to the generosity of our donors, The Ehlers-Danlos Society is able to offer a number of scholarships to the Community Days of the EDS ECHO Summit Series events. Applications will be accepted through September 5, 2021 (until midnight, Eastern Time US/Canada).

AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 11.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards of Commercial Support, requires anyone who is in a position to control the content of an activity discloses all relevant financial relationships they have had within the last 12 months with a commercial interest related to the content of the activity. The Planners and Presenters of this activity disclose that they have no financial relationships with any commercial interest. Professor Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Alan Hakim, Dr. Manjit Matharu, Dr. Salwa Kamourieh, Dr. Fraser Henderson, Dr. Petra Klinge, Dr. Valeria Iodice, Dr. Leslie Russek, Dr. David Saperstein.


Sponsorships are available for this conference; please see our prospectus and commitment form, or contact the development team at giving@ehlers-danlos.com

Supporting Sponsors

Lipedema Foundation

Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms that occurs almost exclusively in women. It is a common but underrecognized disorder. Lipedema may cause pain, swelling, and easy bruising and be accompanied by an unusual texture within the fat that can feel like rice, peas, or walnuts beneath the surface of the skin.  

At the Lipedema Foundation, we support collaborative research that addresses the basic biology, genetics, and epidemiology of lipedema with a mission to define, diagnose and develop treatments. 

Please visit our website lipedema.org to learn more about the Lipedema Foundation. 

39 Lewis Street,
4th FloorGreenwich,
CT 06830
+1-203-489-2989 | info@lipedema.org


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