Healthcare Professionals Directory – United States

Jump to your state by using the links below.


Alaska

Kristen L. Coletti-Giesler, NP-C
Functional Medicine Family Practice

Functional Medicine of Alaska
43335 Kalifornsky Beach Road
Building E Suite 8
Soldotna, AK 99669
https://functionalmedicineofalaska.com
907-290-7063
fmoa@functionalmedicineofalaska.com

Hospital affiliations:

  • Central Peninsula

>> Show more information about this practice/clinic

Functional Medicine of Alaska offers patient-centered care to promote health as a positive vitality, beyond just the absence of disease. We believe that functional medicine is the future of medicine. The focus of functional medicine is that it seeks to identify and address the root causes of disease and take a “no band aid” approach to care. We view the body as a whole, and not a collection of systems and sub-medical specialties from pediatrics to geriatrics. Functional medicine addresses the underlying causes of disease by shifting the traditional disease-centered focus of medical practice to a more patient-centered approach. Functional medicine addresses the whole person, not just an isolated set of symptoms. At Functional Medicine of Alaska, we spend time with our patients, listening to their histories and looking at the interactions among genetic, environmental, and lifestyle factors that can influence long-term health and complex, chronic disease. In this way, we are able to support the unique expression of health and vitality for each individual.

<< Show less information about this practice

Shoulder, Elbow, and Hand Surgery 


E Frances Seater, Ed.M., M.Ed., M.S. CCC-SLP, M.Ed., Certified Brain Injury Specialist
Cognition, language, speech, voice, swallowing

Functional Therapy of Alaska
4041 Wright Street
Anchorage, Alaska 99508
http://fta.clinic
907-360-8513
info@functionaltherapyofalaska.com

Professional Boards and Affiliations:

  • Certified Brain Injury Specialist
  • American Speech-Language Hearing Association

>> Show more information about this practice/clinic

Private clinic specializing in medically complex adult rehabilitation.

<< Show less information about this practice

Shoulder, Elbow, and Hand Surgery 


Margaret Arwood, DMD, DDS
Preventative dentistry, restorative dentistry, oral surgery, cosmetic dentistry, pediatric dentistry, emergency dentistry

Dental Innovations
3161 E Palmer-Wasilla Hwy
#5
Wasilla, ALASKA 99654
https://www.dentalinak.com/
907-357-5214
Margaret.arwood@gmail.com

Professional Boards and Affiliations:

  • Alaska Board of Dental Examiners

>> Show more information about this practice/clinic

Our vision is to exceed the expectations of the community by providing our patients with an experience that will promote a lifelong relationship built on trust, quality of work and exceptional patient care. We make our contribution to a better society not only through the best dental care possible, but also by being an example of what is possible in dentistry.

We listen first, prevent disease, & care for you!

<< Show less information about this practice


Arizona

Elissa Gartenberg, DO
Family Medicine, Medical Acupuncture

Modern Family Medicine
7522 E 1st Street
Scottsdale, AZ 85251
http://www.modernfamilymedicine.com
602-363-1631
info@modernfamilymedicine.com

Hospital affiliations:

  • Honor Health

>> Show more information about this practice/clinic

At Modern Family Medicine, we offer a unique health care setting embracing the Mind, Body, and Spirit. Offering not just diagnoses and prescription medications but alternative treatments such as; Osteopathic Manipulation, Medical Acupuncture, Cupping, Trigger Point injections,Vitamin injections, a “Breathing Bar™”, a meditation atrium, classes and more!

<< Show less information about this practice


Paul Pannozzo, M.D.
Family Medicine, Physical Medicine, Rehabilitation residency

Summa Pain Care
2525 W. Carefree Highway
Ste. 134
Phoenix, AZ 85085
https://summapaincare.com
623-580-4357
summahealthcare@gmail.com

>> Show more information about this practice/clinic

Looking for pain management doctors in Phoenix and surrounding areas in Arizona? Summa Pain Care Center is perfect fit for you. Summa Pain Care is located in down town Phoenix, Arizona. Our medical clinic provide various treatment services like back pain treatment, knee pain treatment, spinal pain treatment, lower back pain treatment, head pain treatment and more. Our pain specialists provide complete pain management solutions in Arizona. Summa Pain Care doctors are leading pain management specialist in Phoenix, Arizona. Book an appointment today.

<< Show less information about this practice


Emily Rich, OTR/L – occupational therapist
Occupational therapy; EDS; POTS; CFS/ME

Tucson Medical Center
5395 E. Erikson Dr.
Tucson, AZ 85750
https://www.tmcaz.com/outpatient-services/occupational-therapy
520-324-7005
emily.rich@tmcaz.com

Hospital affiliations:

  • Tucson Medical Center

>> Show more information about this practice/clinic

At TMC outpatient therapy we serve children and adults with a variety of diagnoses. We offer OT, PT, ST, and nutritional services. We accept nearly all forms of insurance. To request an evaluation, have your physician send a referral to (520) 324-6498. Emily specializes in EDS and conditions of dysautonomia.

<< Show less information about this practice


Gina Rooney, PT, LMT
Myofascial release, craniosacral therapy, wound care
Set Your Fascia Free
800 N Swan, #112
Tucson, AZ 85711
Https://www.setyourfasciafree.com
520-870-5794
gina@setyourfasciafree.com

>> Show more information about this practice/clinic

Non-insurance based private physical therapy and massage therapy practice specializing in sustained release myofascial release and Upledger craniosacral therapy. Appointments are 60-90 minutes direct one-on-one care with a PT, and are customized to each patient‘s specific needs.

<< Show less information about this practice


David Saperstein, MD
Neurology, Neuromuscular Disorders, Autonomic Disorders

Center for Complex Neurology, EDS & POTS
1010 E McDowell Road
Suite 101
Phoenix, AZ 85006
http://www.complexneurology.com/
602-900-9404
info@complexneurology.com

Hospital affiliations:

  • Banner University Medical Center, Phoenix, AZ

>> Show more information about this practice/clinic

In addition to seeing patients with Neuromuscular disorders I have a focus on EDS and dysautonomia. I currently follow over 400 patients with EDS. I diagnose and manage their EDS, POTS, migraines, TMJ and MCAS. I also work with physical therapists, orthotists, allergists, orthopedists, gastroenterologists, cardiologists, geneticists and dentists knowledgable about EDS and its complications. In my office we can perform autonomic testing, EMG, EEG, and small fiber neuropathy testing.

<< Show less information about this practice


Andrew Sharobeem, DO
Rheumatology

Arizona Arthritis & Rheumatology Associates
5681 W. Beverly Ln.
#100a
Glendale, AZ 85306
https://azarthritis.com
480-443-8400

>> Show more information about this practice/clinic

Single specialty private group (Rheumatology) consisting of 4 Rheumatologists, 2 NPs and 1 PA. Handle and care for a wide variety of arthritic and rheumatic illnesses as well as osteoporosis, chronic pain syndromes and dysautonomia.

<< Show less information about this practice


Jennifer Robblee, MD MSc FRCPC
Headache Neurology

Barrow Neurological Institute
240 W Thomas Rd
Suite 400
Phoenix, AZ 85013
https://www.barrowneuro.org/get-to-know-barrow/centers-programs/jan-tom-lewis-migraine-treatment-program/
855-995-5783

Hospital affiliations:

  • Dignity Health St. Joseph’s Hospital and Medical Center

Professional Boards and Affiliations:

  • American Headache Society
  • American Academy of Neurology
  • Royal College of Physicians and Surgeons

>> Show more information about this practice/clinic

At the Jan & Tom Lewis Migraine Treatment Program, our expert headache specialists have the tools and knowledge to accurately diagnose migraine and other headaches, as well as the experience and technology to minimize their effects on your daily life. Our team of neurologists who specialize in migraine, headaches, and headache disorders are adept at finding relief for headaches regardless of their cause. The team can tailor a migraine or headache treatment plan for the unique features of your diagnosis. We recognize that migraine and other headache disorders can co-exist with other disabling conditions like EDS, POTS and MCAS.

<< Show less information about this practice


Natalie Black, OTD
Occupational therapist, EDS specialist

Spooner Phsyical Therapy
2122 E. Highland Avenue #200
Phoenix, Arizona 85016
https://www.spoonerpt.com/
602-778-0900
n.black@spoonerpt.com

>> Show more information about this practice/clinic

Our therapy practice consists of talented practitioners who work as specialists within one or two areas of rehabilitation. Natalie Black, OTR/L focuses on treatment with patients who diagnosed with Hypermobile EDS (hEDS), Classical EDS (cEDS), and other EDS types. She is empathetic and understanding of how those with these conditions need rehabilitative physical/occupational therapy that is appropriate rather than those physical therapists who think those with a type of EDS or HSD need to ignore their pain and push through it while doing exercises designed for those without joint disability or for those who do not have vascular fragility.

<< Show less information about this practice


Theresa Dowell, DNP, PT
EDS, Chronic Fatigue Syndrome, Fibromyalgia, Mast Cell Activation, Dysautonomia

Four Peaks Healthcare Associates
1515 E Cedar Ave Ste C-1
FLAGSTAFF, AZ 86004
http://www.fourpeakshealthcare.com
928-773-9714
info@fourpeakshealthcare.com

Professional Boards and Affiliations:

  • Board certified Family Nurse Practitioner

>> Show more information about this practice/clinic

Four Peaks Healthcare Associates is a medical clinic located in Flagstaff, Arizona that specializes in Fibromyalgia, Chronic Fatigue Syndrome, hEDS, Mast Cell Activation and Dysautonomia. Our mission is to provide compassionate, patient-guided care. We believe that through empathy, communication, trust and shared decision making our patients will achieve optimal outcomes. We get to know and develop relationships with our patients by minimizing staff and operating our clinic on a small scale. .

<< Show less information about this practice


Arkansas

Thomas Lowder, PhD
Pulmonary function, immunology, muscle physiology

University of Central Arkansas
201 Donaghey, Farris Center 101
Conway, ARKANSAS 72035
501-450-5713
tlowder@uca.edu

>> Show more information about this practice/clinic

My research focuses on pulmonary function, women’s health, and immune function in rare diseases. I am investigating sleep as well as the role of exercise in disease as well. I am new to EDS but have a couple of patients I am beginning to work with.

<< Show less information about this practice


California

Derik Anderson, DC
functional rehabilitation, chiropractic (low force)

Muscle & Joint Clinic
10 G St.
San Rafael, CA 94901-1720
http://www.MuscleJointClinic.com
415-488-5372
DrAnderson@MuscleJointClinic.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Muscle & Joint Clinic specializes in Hypermobile Ehler-Danlos Syndrome diagnosis and treatment. We develop indiviualize strengthening and functional rehabiitation programs for patients with hypermobility due to EDS.

<< Show less information about this practice


Margaret Aranda, MD, PhD
Anesthesiology, Critical Care, Forensic Science, Regenerative and Age Management, Pain Management
Aranda MD Enterprises
21900 Burbank Blvd, Suite 300
Woodland Hills, CA, 91367
http://www.thechroniclifediet.com
800-992-9280
maranda@cenegenics.com

>> Show more information about this practice/clinic

We have about 200 patients from all over the world, many of whom were patients of Dr. Forest Tennant for the past 30 years. Patients find us mostly by referral, and we are grateful to be using Dr. Tennant’s protocol. We operate the clinic twice per week and are in the office on Mondays and Fridays. That is because my staff also has arachnoiditis and EDS, so we mostly work from home.

Our practice is about 80% telemedicine and 20% in person. We try to maintain a high standard of documentation and use an electronic medical record.

About once per month, we do procedures which are mostly umbilical cord mesenchymal cell injections. We also draw a lot of blood, and do diet, exercise, and hormone replacement therapy. We want our patients to be strong.

Most patients get better.

<< Show less information about this practice


Barbara Bogorad, PsyD
Psychology, Trauma

Dr. B. Bogorad
18600 Main Street
Suite 295
Huntington Beach, CA 92648
United States
714-914-0409
PsyDocB@gmail.com

>> Show more information about this practice/clinic

I am a State licensed Psychologist (California and New York) currently currently doing telehealth sessions and in private practice in Huntington Beach, CA. Previously I was the director of a trauma unit on Long Island, New York, where many of my patients were dual diagnosis. Currently, I work with individuals and couples struggling with a variety of psychological and emotional issues, typically with medical complications. An increasing number of my patients with immune system problems are finally being recognized as having connective tissue disorders, most often hEDS. I am looking to be of increasing service to such individuals, providing therapy and hopefully group support.

<< Show less information about this practice


Brianna Cardenas, MS, PA-C, ATC
Pain Management, EDS/HSD, Spinal CSF Leak, Dysautonomia, Craniocervical Instability

Brianna Cardenas
1160 Dewey Way B
Upland, CA 91786
https://www.healedandempowered.com/
909-703-3977
healedandempowered@gmail.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

We are a private pain management practice specializing in holistic and non-medication options to help patients feel their best. Appointments take place over a half-day period in order to give ample time to understand each patient’s needs. Our goal is to empower patients with the tools they need to feel better and manage their pain from a comprehensive, whole-person standpoint. Brianna is Physician Assistant, Athletic Trainer, and hEDS patient, and can help patients understand their health condition(s) and how to manage them.

<< Show less information about this practice


Christine Dao, LAc
LAc, Functional Medicine, Master Practitioner of NLP

Practice / Clinic 1
Dao Integrated Health
379 S LIVERMORE AVE, Ste B
Livermore, CA 94550
http://www.daointegratedhealth.com

Practice / Clinic 2
DAO INTEGRATED HEALTH
1050 Marina Village Pkwy
Ste 104
Alameda, ca 94501
http://www.daointegratedhealth.com
510-957-8260
christine@daointegratedhealth.com

>> Show more information about this practice/clinic

I specialize in Chronic Pain conditions including Hypermobility and Ehler’s Danlos in addition to Auto-Immune conditions and Cancer. I work with patients to get proper and thorough testing of all organ systems to provide a comprehensive solution to reducing pain and improving quality of life. I look at the role of chronic stress and provide lifestyle coaching to help mitigate and provide tools to manage their pain conditions.

I personally suffer from Hypermobility and understand the complexity in getting proper testing, the role of nutition, tailored exercise, lifestyle and stress management tools for those of us who suffer from these conditions.

<< Show less information about this practice


George Davis, MD
Orthopedic

Children’s Hospital of Los Angeles
3699 Wilshire Blvd
Suite 850
Los Angeles, CA 90010
https://blog.answering365.com/topic/medical-answering-service
310-854-5090
answering365@gmail.com

>> Show more information about this practice/clinic

George Davis MD, is a private-practice, Orthopedic Doctor specializing in Regenerative Medicine. This is a non-surgical procedure for pain in the joints which can heals ligaments and tendons.

<< Show less information about this practice


John Fagan, MD
Family Medicine, Geriatrics

Aspen Family Medicine
10787 Laurel Ave
Rancho Cucamonga, CA 91730
United States
909 982 7741
Admin@aspenfamilymedicine.org

Hospital affiliations:

  • San Antonio Reginal Hospital
  • Casa Colina Hospital

>> Show more information about this practice/clinic

I am a 58 year old Family Medicine Physician with Certificate of Added Qualification in Geriatrics. I have a 30 year old daughter with Hypermobile EDS (hEDS). I have attended multiple conferences concerning EDS including several in Baltimore (Johns Hopkins). I have over 100 patients with hEDS in my practice and see patients from all over Southern California and the West for hEDS related issues.

<< Show less information about this practice


Catherine Karimov, MD
Clinical genetics, OB/GYN

Children’s Hospital of Los Angeles
4650 Sunset Blvd. #90
Los Angeles, CA 90027
https://www.chla.org/medical-genetics
323-361-2178
ckarimov@chla.usc.edu

Hospital affiliations:

  • Children’s Hospital of Los Angeles
  • Keck Medical Center

>> Show more information about this practice/clinic

Dr. Karimov provides specialized testing, diagnosis, and counseling for anyone who wishes to obtain information about a medical condition with a known or possible genetic component affecting them or a family member. She is trained in diagnosing inherited diseases, identifying unaffected and affected individuals through specialized testing and examination, determining a person’s chance of developing or passing on a genetic disorder, and managing inherited diseases as it effects someone’s health. She works in close association with the medical team to help guide every aspect of the personalized medical plan and provides education and support.

In addition, Dr. Karimov is interested in all aspects of general obstetrics and gynecology for women with connective tissue disorders, cardiac disorders, metabolic disorders, and cancer predisposition syndromes. She has expertise and interest in fetal anomalies, cardiac defects, and ultrasound for prenatal diagnosis of genetic syndromes.

<< Show less information about this practice


Harold Kraft, MD
Anesthesiology; Pain Management

Practice / Clinic 1
LaserMD Pain Relief
1821 Wilshire Blvd #300
Santa Monica, CA 90403

Practice / Clinic 2
LaserMD Pain Relief
2809 N. Sepulveda Blvd
Manhattan Beach, CA 90266

http://www.lasermdpainrelief.com/
213-550-5600
hhk@lasermdpainrelief.com

>> Show more information about this practice/clinic

I am the most experienced MD in US with high-dose laser pain “No Needle Epidural” treatment. Have treated 45 EDS patients with high-dose non-invasive pain laser, and 90% have excellent or very good pain reduction without side effects. Can treat soft tissue, joint, spine, bone, skin, sciatica pains. New non-invasive treatment modality.

<< Show less information about this practice


Vivian Rice, OD
TBI, EDS, vision therapy

Vision Care Clinic
2730 Union Avenue
San Jose, CA 95124
http://www.visiondiva.com
408-377-1150
rice@visiondiva.com

>> Show more information about this practice/clinic

Many EDS patients suffer from visual problems that require more specific care. I see a larger than average EDS population because they refer each other once they realize there are vision issues that are not always addressed by every eye care professional. the biggest problems I see are with convergence (using the two eyes together as a team) and tracking. People with convergence problems, read slower, lose their place while reading, can experience headaches with prolonged close work and work less efficiently with close work as on the computer or reading. To read more about convergence problems and symptoms, go to www.covd.org..

<< Show less information about this practice


Roxana Torres, Certified Massage Therapist
Myofascial Release Technique

Practice / Clinic 1
Spirit and Bodywork
49 South Baldwin Avenue
Sierra Madre, CA 91024
https://spiritandbodywork.com/

Practice / Clinic 2
Spirit and Bodywork
49 South Baldwin Avenue
Suite D
Sierra Madre, CA 90124
https://spiritandbodywork.com/

Practice / Clinic 3
Spirit and Bodywork
49 South Baldwin Avenue
Suite D
Sierra Madre, CA 90124
https://spiritandbodywork.com/

818-395-1439
roxanavtherapy@gmail.com

>> Show more information about this practice/clinic

At Spirit and Bodywork we help improve and support people with many conditions on a path to freedom by reducing pain and increasing mobility in there bodies. I specialize in myofascial therapy that has helped my long term clients live an extraordinary life.

<< Show less information about this practice


Gloria Tucker, MD
Prolotherapy, EDS, Hypermobility

250 Bel Marin Keys
Novato, CA 94949
https://gloriatuckermd.com/
415-506-4907
orthomedoffice@gmail.com

>> Show more information about this practice/clinic

I am a private-practice, Orthopedic Doctor specializing in Prolotherapy/Regenerative Medicine. This is a medical, non-surgical procedure for joint pain which actually heals ligaments and tendons. It is very effective in EDS and Hypermobility issues.

<< Show less information about this practice


Gerry Van Dyke, PT, SCS, ATC
Physical Therapy, Sports Medicine, Massage Therapy

California Orthopedic and Sports Physical Therapy Services
6193 Soquel Drive
Aptos, CA 95003
http://www.coast-physical-therapy-services.com
831-462-1212
gerry@coast-physical-therapy-services.com

>> Show more information about this practice/clinic

We are a locally owned and independent private practice serving greater Santa Cruz since 1995. The staff qualifications and the expertise of our physical therapists, massage therapists, and personal trainers remain unparalleled in the Tri-County region. We are an evidence based practice committed to providing convenient high quality, one-on-one physical therapy care in a friendly and caring atmosphere. We work with each patient individually and design a customized program that provides them the best opportunity for a speedy and optimal recovery.

<< Show less information about this practice


Tina Wang, MD
Physical Medicine & Rehabilitation, Fascia & Regenerative Medicine

Tupelo Pointe Healing Arts
429 N Central Ave
Upland, CA 91786
http://tupelopointe.com
909-667-2920
tinawang@tupelopointe.com

>> Show more information about this practice/clinic

EDS specific consults include a chart review of prior medical records and a detailed report with references to aid with comprehensive management and communication with other medical professionals. Consults are 2-3 hours and include ultrasound examination, detailed history, and osteopathic/fascial manipulation as indicated.

Dr. Wang is a specialist in the field of fascia and connective tissue and studies fascia and clinical interventions for treatment fascia based disorders.

Dr. Wang will work with your unique & individual needs to develop tailored and customized interventions utilizing the power of regenerative injections, Functional/ Integrative Medicine, fascial manipulation, movement rehabilitation with the ultimate goal of helping you achieve optimal living.

Treatments Include ultrasound guided injections (PRP, prolotherapy, stem cells, hydrodissection, and more), laboratory results guided supplementation (vitamins, proteins), dietary interventions, osteopathic manipulation, Fascia Manipulation, Functional Movement Screening (FMS), exercise programming, colder laser, alpha stim, Microcurrent therapy.

Dr. Tina J Wang practices a unique blend of Osteopathic Medicine, Functional/Integrative Medicine and Regenerative Medicine at Tupelo Pointe. Her focus is not just treating musculoskeletal (MSK) ailments but also facilitating Health by meeting the functional, nutritional, and unique needs of the Person seeking Health. At Tupelo Pointe, she practices bespoke MSK medicine, customized to her patient’s individualized needs. By recognizing that all her patients are unique, she is able to adeptly utilize healing techniques across many discipline tailored to her patients’ needs.

<< Show less information about this practice


Kelli Schneider, PT, DPT, OCS
Clinical specialist in orthopedic physical therapy, subspecialty in performing artists and runners

Evolution Physical Therapy and Fitness
2425 Colorado Ave
Suite 100
Santa Monica, CA 90404
http://evolutionphysicaltherapy.com/santa-monica
310-829-2420
kelli@evolution-pt.com

>> Show more information about this practice/clinic

The mission of Evolution Physical Therapy and Fitness is to help all of our patients and clients perform at their highest potential, to completely redefine the profession of physical therapy and to provide the community with exceptional rehab services, fitness, performance training, injury prevention, wellness and recovery. Our doctors of physical therapy are highly skilled and knowledgeable, utilize modern equipment and techniques and have an unparalleled drive to help you get better.

As a dancer myself, I grew up with injuries related to hypermobility as well as the never ending quest in the dance community to become more flexible. During my final clinical rotation in PT school, I spent 3 months training at Cincinnati Children’s Hospital Medical Center which had a specialty program for children with EDS. Following graduation, I moved to Chicago where I saw a large population of non-dancers and dancers with EDS as well as non-EDS related joint hypermobility. I’m passionate about teaching patients how to safely move and engage in desired activities for long term health benefits and social interaction.

<< Show less information about this practice


Cindy Liang, PT, DPT
Orthopedics, sports, triathletes, runners, soccer players, vestibular, post-concussion

Evolution Physical Therapy
2425 Colorado Ave
Suite 00
Santa Monica, CA 90404
http://evolutionphysicaltherapy.com/santa-monica
310-829-2420
cindy@evolution-pt.com

>> Show more information about this practice/clinic

Our mission is to help all of our patients and clients perform at their highest potential, to completely redefine the profession of physical therapy and to provide the community with exceptional rehab services, fitness, performance training, injury prevention, wellness and recovery. Our doctors of physical therapy are highly skilled and knowledgeable, utilize modern equipment and techniques and have an unparalleled drive to help you get better.

<< Show less information about this practice


Amy Selinger, PT, DPT, OCS
Clinical specialist in orthopedic physical therapy specializing in musculoskeletal pain including pelvic pain and incontinence for adults of all levels of activity.

Practice / Clinic 1:
Back to Life
403 49th St.
Oakland, CA 95609
http://www.backtolife.net
510-601-1288

Practice / Clinic 1:
Back to Life
870 Market St.
Suite 709
San Francisco, CA 94102
http://www.backtolife.net
415-538-7878

office@backtolife.net

Professional Boards and Affiliations:

  • Member APTA
  • Clinical Faculty UCSF

>> Show more information about this practice/clinic

Our practice specializes in chronic spine (back and neck), shoulder, hip and pelvic pain including sacroiliac joint pain, painful intercourse and incontinence of urine, faeces and gas. We treat adults and youth, athletes and people who are more sedentary. We see a great number of individuals with EDS and this group often has cumulative strain over years of compensating for strains in school, the workplace and even at home where appliances and furniture is not ideal for the body who happens to be using it. Our specialty is to help people use t heir bodies with less strain by improving the balance of muscles around each joint and the way we move through our lives. Our main goal is to help you learn to not need us!

<< Show less information about this practice


Natalie Russell, PT, DPT
Physical Therapy, Orthopedics and pelvic floor 

Back to Life Physical Therapy
403 49th St.
Oakland, CA 95609
http://www.backtolife.net
510-601-1288
natalie@backtolife.net

Professional Boards and Affiliations:

  • OCS

>> Show more information about this practice/clinic

I am a PT at a small private practice that specializes in orthopedic and pelvic floor dysfunction.

<< Show less information about this practice


Iris Warchall, DPT
Physical Therapy

Back to Life Physical Therapy, Inc
403 49th St.
Oakland, CA 95609
http://www.backtolife.net
510-601-1288
iris@backtolife.net

>> Show more information about this practice/clinic

Outpatient physical therapy practice

<< Show less information about this practice


Michael Plude, PT, DPT, CSCS
Physical Therapy

Michael S Plude, PT
438 S Hamel Road
West Hollywood, California 90048

203-9013-7353
Drpludept@gmail.com

>> Show more information about this practice/clinic

Outpatient physical therapy and performance clinic in Los Angeles. Offering home visits (Los Angeles) and telehealth (California and New York States).

<< Show less information about this practice


Stephanie H. Abrams, MD, MS
Pediatric Gastroenterology, Hepatology & Nutrition; General Pediatrics, ABOM Certification

Practice / Clinic 1
Children’s Gastroenterology, MCSG
3640 Lomita Blvd, #102
Torrance, CA 90505

Practice / Clinic 2
Chronic Fatigue Telemedicine
Telemedicine: Active California and Texas Medical Licenses

310-710-0251
drstephanieabrams@gmail.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

Hospital Affiliations: 

  • Miller Children’s Hospital/Long Beach Memorial Medical Center
  • Little Company of Mary, Torrance
  • Torrance Memorial Medical Center

Professional Boards and Affiliations:

  • American Board of Pediatrics: General Pediatrics
  • American Board of Pediatrics: Pediatric Gastroenterology, Hepatology, & Nutrition
  • American Board of Obesity Medicine: Adults & Pediatrics

>> Show more information about this practice/clinic

Dr Abrams is triple board certified with her primary practice in Pediatric GI & Nutrition. As a woman with EDS, Dr Abrams has always had a special interest in the GI manifestations of EDS/hypermobility syndrome. Originally working as an NIH funded researcher & hepatologist at Baylor College of Medicine, she had a focus on obesity and fatty liver disease. Dr Abrams transitioned into clinical medicine in California in 2013. After going through an emotionally traumatizing Chronic Fatigue Syndrome journey with her sister, Dr. Abrams became a super-specialist in Chronic Fatigue. Dr. Abrams has telemedicine practices in California & Texas that are highly focused on the nutritional management (including supplements such as CBD, as well as a focus on LDN consults) for patients with suspected or confirmed EDS, MCAS, POTS, CFS/ME and autoimmune diseases such as IBD, Psoriasis/Psoriatic arthritis, MS, RA, SLE, Hashimotos, Graves and MG.

<< Show less information about this practice

 


Jennifer Nava, LMFT
Anxiety, Depression, Trauma, PTSD/Cumulative Trauma

Jennifer Nava, Licensed Marriage and Family Therapist
1665 Creekside Dr. Suite 106
Folsom, CA 95630

916-710-0503
jennifernavamft@gmail.com

Professional Boards and Affiliations:

  • Board of Behavioral Sciences

>> Show more information about this practice/clinic

I am a Licensed Marriage and Family Therapist who works with individuals, couples, and teens. My specialty is in trauma and trauma related symptomology. Individuals may experience many psychological symptoms associated with chronic illness such as anxiety, depression, grief/loss. I utilize many techniques in my practice including Eye Movement Desensitization Reprocessing (EMDR), Cognitive Behavioral Therapy (CBT), Internal Family Systems (IFS), and talk therapy.

<< Show less information about this practice


Colorado

Caroline Creager, DPT
Physical Therapy Doctors

247 Mountain Avenue
PO Box 1319
Berthoud, CO 80513
http://www.physicaltherapydoctors.net/
970-532-2533
caroline@carolinecreager.com

>> Show more information about this practice/clinic

Physical Therapy Practice Specializing in EDS, Intercranial Hypertension, Intercranial Hypotension, Tethered Cord, Chiari, and Pelvic Health.

<< Show less information about this practice


Alex Lanton, DPT
Physical Therapy

Atlas Physical Therapy
3401 S Quebec St
Denver, CO 80207
303-322-4900
stapletonsupport@atlasptco.com

>> Show more information about this practice/clinic


Atlas Physical Therapy is a small practice with big heart, our therapists work closely with their exercise specialists to make sure that our patients receive the very best care. We treat all kinds of patients, from post operative repairs to sprained ankles, older individuals to young athletes, whatever it is we can make them feel better.

<< Show less information about this practice


Brian Polvi, DC
Chiropractic, Physical Therapy, Pain Management

Absolute Health Center, Inc.
3910 S. Carefree Circle
Suite A
Colorado Springs, CO 80917
http://www.absolutehealthcenter.com
719-533-1000
appointments@absolutehealthcenter.com

>> Show more information about this practice/clinic

Our facility specializes in soft tissue disorders and we have trademarked a specialized soft tissue technique, Myodynamic Remodeling, that was developed by the lead health care provider in our facility. This treatment has proven to be extremely effective in assisting with the recovery or associated pathology affecting soft tissue disorders. The treatment frequently requires coordination of medical pain management procedures that are performed within the medical office building. Additional treatments performed within our facility may be found on our website.

<< Show less information about this practice


Lisa Ralston, PT
Physical Therapy, foot care, manual therapy

All Sports Physical Therapy
19201 E Mainstreet # 205
Parker, CO 80134
http://www.allsportspt.net
303-840-1323
skatingpt@msn.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

We are a private out patient physical therapy practice for adolescents and adults. We have experience and care in treating EDS and hyper mobility syndromes.

<< Show less information about this practice


Allison Rector, MPT, Certified Orthopaedic Manual Therapist, Orthopedic Clinical Specialist
Physical Therapy

Practice / Clinic 1:
ProActive Physical Therapy, LLC
9320 Grand Cordera Parkway
Suite 125
Colorado Springs, CO 80924

Practice / Clinic 2:
ProActive Physical Therapy, LLC
1808 Woodmoor Drive
Suite 130
Monument, CO 80132

https://www.proactiveptco.com/
719-535-2757
proactivept@me.com

>> Show more information about this practice/clinic

Allison was a gymnast, gymnastics coach and judge. She became a Physical Therapist to help the gymnastics community to understand and treat gymnasts with hyper-mobility related injuries and instabilities. As a Certified Orthopaedic Manual Therapist and Orthopedic Clinical Specialist she treats a variety of athletes and individuals with various types of EDS.

<< Show less information about this practice


Scott Rezac, PT, DPT, OCS, FAAOMPT, CSCS
Board certified orthopedic specialist, Fellow of the American Academy of Orthopedic Manual Physical Therapists

Rezac & Associates Physical Therapy
855 Citadel dr E
Colorado Springs, CO 80909
http://www.rezacpt.com/
710-465-1502
Scott.rezac@rezacpt.com

>> Show more information about this practice/clinic

Ambulatory outpatient clinic focusing on a whole body approach to rehabilitation.

<< Show less information about this practice


Kimberly Saunders, DPT
Physical Therapy

Foothills Orthopedic and Sport Therapy
3938 JFK Parkway
Fort Collins, CO 80525
http://www.foothillstherapy.com/
970-207-1500
kim.saunders@foothillstherapy.com

>> Show more information about this practice/clinic

We are a small private practice clinic with a focus on individualized one on one care. I have been working with individuals with generalized joint hypermobility/HSD/hEDS since 2003 and focused on this topic while achieving a post-professional doctorate (PP-DPT) completed in 2014. Over half of my caseload is individuals with hypermobile joints, abnormal connective tissue &/or chronic pain and fatigue. I have additional specialty training in peri-partum care and have supported women with GJH/HSD/hEDS through this phase. I experience GJH and meet 2017 criteria for hEDS, so I truly understand the pain and struggle that my patients live each day. My approach is focused on training body awareness and optimal movement strategies (Movement Impairment Syndromes Approach) and empowering individuals to take control of their daily lives. I have developed a style of manual therapy through trial and error that provides temporary symptom relief and augments the home exercise program and movement strategies. I also focus on training self care skills for pain management (TENS, hot/cold, massage, sleep hygiene, etc). I offer no miracles, but promise better management of our very unique bodies.

<< Show less information about this practice


Jill Schofield, MD
Internal Medicine; two year training in multi-specialty autoimmune disease

Center For Multisystem Disease
8101 E. Lowry Blvd.
Suite 250
Denver, CO 80230
United States
https://www.centerformultisystemdisease.com/
303-366-6633
admin@centerformultisystemdisease.com

>> Show more information about this practice/clinic

My practice specializes in evaluating patients with complex, multisystem disease including patients with diagnosed or suspected dysautonomia, autoimmunity and/or mast cell activation syndrome. A significant subset of these patients have hypermobility spectrum disorder or Ehlers-Danlos syndrome. Three hours of face-to-face time is spent for most new patients at the initial evaluation to allow enough time to address all issues and to properly evaluate patients for important comorbidities and underlying causes and to provide proper education about these complex conditions.

<< Show less information about this practice


Camille Sinclair, PhD
Clinical Psychology, Health Psychology, Neuropsychology,

Camille Sinclair PhD
50 S. Steele Street
Suite 950
Denver, CO, 80230
https://www.psychologytoday.com/us/therapists/camille-sinclair-denver-co/247918
845-533-2789
camillesinclair@hotmail.com

>> Show more information about this practice/clinic

As a clinical and health psychology practice we treat clients with a myriad of health problems and emotional concerns secondary to those health issues. Our clients typically come to us presenting with autoimmune conditions, vascular and cardiac disease as well as pain, anxiety, medical traumas and grief issues related to serial losses. Our practice help clients to better cope with their illness and lead more meaningful lives aligned with their values and capabilities.

<< Show less information about this practice


Patricia Stott, DPT, PT, MS, ATC, CHT
Functional Medicine, Health and Wellness, Physical Therapy, Reiki

Elevation Wellness
10200 West 44th Ave
Suite 139
Wheat Ridge, CO 80033
http://www.elevationwellness.co
720-815-6433
info@elevationwellness.co

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

I offer Functional Medicine, Health and Wellness, Physical Therapy, Reiki

We focus on overall health and wellness for the individual with EDS in examining overall systemic inflammation (especially due to underlying chronic viral issues, tick borne illnesses, and mold exposure), treating with a natural approach to restore well being. Our practice provides a good deal of education to the patient to assist in long term management of HSD/EDS and associated conditions, while focusing on individualized treatment plans.

I also am a telehealth provider outside of my state, internationally as needed.

<< Show less information about this practice


Mairead Jacobs Dougherty, MA, R-DMT, LPCC
Chronic illness, chronic pain, trauma, depression, anxiety, medical PTSD, stress, grief, low self-esteem

Rise Wellness Center
10200 W 44th Ave Suite 139
Wheat Ridge, CO 80033
http://www.therisewellnesscenter.com
720-649-0557
mairead@therisewellnesscenter.com 

>> Show more information about this practice/clinic

Rise Wellness Center offers somatic counseling for children and adults in Colorado. We specialize in working with chronic illness, chronic pain and disabilities. Our founder has lived experience with EDS and knows how important it is to have a therapist that just “gets it.” At Rise, we use body-based approaches and mindfulness practices to support patients in uncovering their resilience and connecting to meaning and empowerment.

<< Show less information about this practice


Alyssa Paglia, Registered Dietitian Nutritionist (RDN)
Nutrition, Dietetics, EDS, digestive diseases, TPN and enteral nutrition

Spoons & Stripes Nutrition
Telehealth
Denver, CO 80204
http://www.spoonsandstripes.com
970-343-4387
Info@spoonsandstripes.com

Professional Borads and Affiliations: 

  • Commission on Dietetic Registration

>> Show more information about this practice/clinic

I am a Registered Dietitian Nutritionist who owns a private nutrition practice specializing in gastrointestinal disorders, EDS, and autoimmunity. All services are conducted virtually via a HIPAA compliant telehealth platform. I am able to accommodate patients in most states.

<< Show less information about this practice


Alyssa Paglia, Registered Dietitian Nutritionist (RDN)
Nutrition, Dietetics, EDS, digestive diseases, TPN and enteral nutrition

Spoons & Stripes Nutrition
Telehealth
Denver, CO 80204
http://www.spoonsandstripes.com
970-343-4387
Info@spoonsandstripes.com

Professional Borads and Affiliations: 

  • Commission on Dietetic Registration

>> Show more information about this practice/clinic

I am a Registered Dietitian Nutritionist who owns a private nutrition practice specializing in gastrointestinal disorders, EDS, and autoimmunity. All services are conducted virtually via a HIPAA compliant telehealth platform. I am able to accommodate patients in most states.

<< Show less information about this practice


Connecticut

Rebecca McConnell, PT, IMT.C
Physical Therapy, Integrative Manual Therapy, Craniosacral Therapy, Strain/Counterstrain(Positional Joint Release,) Myofascial Release

Metamorphosis Physical and Integrative Manual Therapy, LLC
34 Jerome Avenue
Suite 305
Bloomfield, CT 06002
860-281-1124
beckymimt@gmail.com

>> Show more information about this practice/clinic

I specialize in a comprehensive and holistic individualized, gentle hands-on treatment approach(Integrative Manual Therapy) of acute and chronic pain disorders including head, neck, back and joints. Ehlers-Danlos syndrome, migraine headaches, Lyme disease, fibromyalgia, chronic fatigue syndrome, joint replacements, sports-related injuries, and learning disabilities are examples of dysfunction that I have worked with successfully over 35 years. I strive to support the body to move into a place of self-healing and self-correction to repair tissues, normalize structure, and provide exercise to restore function. Integrative Manual Therapy works well alone or as a complement to many other medical and physical treatment modalities. I have completed an EDS – Echo 9 week webinar series Dec 2019. I own a private practice in Bloomfield, CT and I am a credentialed provider with Anthem BCBS of Connecticut.

<< Show less information about this practice


Eloise Stager, LMT, CST-D
CranioSacral Therapy

CT Center for CranioSacral Therapy
Manual Therapy Treatment Center for Ehlers-Danlos Syndromes
143 West Street, Suite 104
New Milford, CT 06776
http://www.ctcranio.com
860-488-0948
ctcranio@gmail.com

>> Show more information about this practice/clinic

The CT Center for CranioSacral Therapy specializes in pain management of physical and/ or emotional origin using gentle manual techniques. Of particular interest are Ehlers-Danlos Syndromes and related connective tissue disorders.

<< Show less information about this practice


Elizabeth Arnold, PT, DPT, CFMT, CSCS
Physical Therapy, Functional Manual Therapy, Proprioceptive Neuromuscular Facilitation, Craniosacral, TMJ and Myofunctional Therapy, Reflex Integration

Elite Health Services
1445 East Putnam Ave 2nd Floor
Old Greenwich, CT 06870
http://www.elitehealthservices.com
203-983-5748
larnold@elitehealthservices.com

>> Show more information about this practice/clinic

When a patient first comes to Elite our Certified FMT therapists carefully observe, assess and skillfully use their hands to identify inflammation, scar tissue and gauge strength and mobility.
Treatment is uniquely designed for each patient and involves manually treating soft tissues, muscles and joints, continually assessing progress and adapting treatment strategies to facilitate strength and healing.
Patients also learn how to prevent issues from recurring by showing them the right ways to move (and how to avoid stressors that may have caused the problem).
Based on specific patient needs, FMT also incorporates behavioral, nutrition and stress management components for maximal healing.
Functional Manual Therapy™ is a multi-dimensional approach to the body that evaluates mobility, motor control and how the brain affects our movements. We don’t practice “traditional” physical therapy because FMT gives a better outcome for most patients. Instead of isolating the injured or impaired area, FMT therapists focus on how it aligns with the rest of the body, which often reveals a different root cause than originally assumed.
All treatments are one-on-one for sixty minutes.

<< Show less information about this practice


Patricia Berg, IBCLC, RLC, CST-D
CranioSacral Therapy, International Board Certified Lactation Consultant

CT Center for CranioSacral Therapy
143 West Street
Building C/ Suite 104
New Milford, CT 06776
http://ctcranio.com
847-512-7187
patricia@800lactate.com

Professional Boards and Affiliations:

  • International Consortium of Ankylofrenula Professionals
  • Breastfeed Chicago

>> Show more information about this practice/clinic

The center offers CranioSacral therapy (CST) – a gentle hands-on approach used to facilitate the body’s process in healing from physical and emotional dysfunction and trauma.
CST supports the structure and function of the central nervous system thereby assisting in the functioning of all of the body’s other systems.
The center is unique being the only center in CT who has a therapist who specializes in Ehlers-Danlos and Hypermobility Syndromes.
The center is unique in also having a therapist who is both and CranioSacral therapist and an International Board-Certified Lactation Consultant who specializes in Ankyloglossia.

<< Show less information about this practice


District of Columbia (Washington, DC)

S. Shar Hashemi, MD, FACS
Nerve Bone & Joint Institute DC

3 Washington Circle NW
Suites 207/208
Washington, DC 20037
http://www.nerveboneandjoint.com/
202-955-6001
patients@nerveboneandjoint.com

Hospital affiliations:

  • DCHUX
  • George Washington University Hospital

>> Show more information about this practice/clinic

Multidisciplinary approach in evaluating patients with EDS and Hypermobility for peripheral nerve conditions.

<< Show less information about this practice


Noah Raizman, MD, MFA
Orthopaedic Surgery, Hand Surgery

The Centers for Advanced Orthopaedics
1850 M Street NW
Suite 750
Washington, DC 20036
http://www.dchand.com
202-835-2222
nraizman@cfaortho.com

Hospital affiliations:

  • Sibley Memorial Hospital
  • George Washington University Hospital
  • Georgetown University Hospital

>> Show more information about this practice/clinic

I am a Fellowship-trained Hand and Upper Extremity Surgeon. I have dozens of patients with EDS and other connective tissue disorders linked to hypermobility. We have on-site hand therapy and physical therapy and coordinate care with our therapists to include bracing, splinting, activity modification and medical/injection therapy as needed. My bias is towards conservative care and working around some of the difficult issues faced by EDS patients by being creative with approaches to functional activities, but perform surgery when necessary, with an understanding that EDS patients need to be rehabbed and treated differently from the general population. I am often in the situation of making the initial diagnosis of EDS in many patients and referring them for a appropriate genetic screening.

<< Show less information about this practice


Florida

Paldeep Atwal, MD
Clinical Genetics, Medical Biochemical Genetics, Internal Medicine

The Atwal Clinic
4110 Southpoint Blvd.
Suite 118
Jacksonville, FL 32216
http://www.AtwalClinic.Com
904-364-9985
DrA@AtwalClinic.com

>> Show more information about this practice/clinic

Managed by Dr. Paldeep S. Atwal, a board-certified geneticist, our standalone genetics institute caters to patients with rare genetic conditions and is committed to improving access to state-of-the-art genomic testing. With the widespread availability of affordable genetic testing laboratories we are able to find more specific and effective ways of managing patients. We are based in Jacksonville, FL and see patients from around the world.

When evaluating patients for a suspected genetic diagnoses we have 5 main objectives for patients and families:

  • Provide a precise diagnosis
  • Answer whether the symptoms are genetic in nature
  • Provide a more accurate natural history & prognosis (i.e. what to expect)
  • Optimize medication and treatment
  • Give an accurate recurrence risk estimate of the condition in other members of the family

<< Show less information about this practice


Irman Forghani, MD, FACMG
Medical Genetics, Internal Medicine

Practice / Clinic 1
University of Miami, Mailman Center, Connective tissue disorder clinic
1601 NW 12th Ave
Miami, Florida 33137

Practice / Clinic 2
University of Miami, The Lennar Foundation Medical Center, Adult Genetic Disorders
5555 Ponce de Leon Blvd

Coral Gables, FL 33146
305-243-6006
medgen@med.miami.edu

>> Show more information about this practice/clinic

In multidisciplinary hereditary connective tissue disorder we see all categories of connective tissue disorders, with special interest in Ehlers-Danlos Syndromes. We provide diagnosis, counseling and management for the patients and their families. We coordinate a multidisciplinary care for these complex disorders.

<< Show less information about this practice


Ross Hauser, MD
Prolotherapy, Platelet Rich Plasma, Stem Cell Therapy, Nerve Release and Regeneration Injection Therapy, Digital Motion X-ray, Cervical Realignment Therapy

Caring Medical Regenerative Medicine Clinics
9738 Commerce Center Ct
Fort Myers, FL 33908
https://www.caringmedical.com/

239-303-4069
drhauser@caringmedical.com

>> Show more information about this practice/clinic

Ross Hauser, MD is a Board Certified Physical Medicine and Rehabilitation physician who has diagnosed and helped patients with joint hypermobility and hypermobility EDS since 1993. He is most well-known for his work developing comprehensive treatment protocols using Prolotherapy (including PRP and Stem Cell therapy) to alleviate pain and improve joint function patients suffering from EDS and severe joint and spinal instability. These Regenerative Injection Treatments help treat chronic pain and joint instability due to ligament laxity. Dr. Hauser also specializes in cervical spine instability cases, pioneering the combined use of Digital Motion X-ray (DMX), Prolotherapy, and cervical weight and bracing protocols to help restore stability of the neck and eliminate cervical instability-related symptoms such as vertigo, migraines, and drop attacks. Caring Medical treats some of the world’s toughest pain cases, seeing patients from all 50 states and internationally. Our motto is “Hope Practiced Here” because we see lives restored when the underlying joint instability is corrected. We believe the goal of EDS treatment should not just be pain “management,” it should be pain “resolution.”

<< Show less information about this practice


Sharon Keefe, OTR/L, CHT
Occupational Therapy, Certified Hand Therapy

Keefe Hand Therapy, Inc
210 Jupiter Lakes Blvd., #4201
Jupiter, FL, 33458
http://www.keefehandtherapy.com
561-295-5726
keefehand@gmail.com

>> Show more information about this practice/clinic

Located across the street from the Jupiter Hospital you will find the 1 to 1 treatment at Keefe Hand Therapy, Inc. is just what you are looking for. Our outpatient private facility specializes in treatment of the hand and upper extremity. All treatment is administered by Certified Hand Therapists who provide all aspects of Occupational Therapy including fabrication of orthoses, fitting for silver ring orthoses, patient education, ADL and strengthening exercises just to name a few. Treatment programs are customized for each individual patient. You will have the same therapist for each treatment session who will be with you throughout the hour.

<< Show less information about this practice


Sebastian Klisiewicz, DO
Osteopathic Physical Medicine & Rehab (Physiatry), Integrative Approach to Pain and Functional Impairments, Prolotherapy and Regenerative Medicine, Nerve Studies/EMGs

Integrative Rehab Medicine
9250 Corkscrew Rd #15
Estero, FL, 33928
https://www.iRehabMed.com
239-687-3199
sebastian@irehabmed.com

>> Show more information about this practice/clinic

Integrative Rehab Medicine combines traditional western medicine with lifestyle and complementary therapies to promote relief of symptoms, restore meaningful function and create a state of health and wellness. The integrative approach merges the wisdom of osteopathic, functional and rehabilitation medicine with the use of natural products and high quality evidence based interventions to help patients achieve their functional goals. Interventions such as injections, physical and manual therapy, acupuncture and energy medicine modalities are utilized to decrease pain and stimulate healing while the pillars of lifestyle medicine (nutrition, exercise and mental wellbeing) are incorporated to help create a healing environment within the body, mind and spirit.

<< Show less information about this practice


Dacre Knight, MD
General Internal Medicine; Ehlers-Danlos
Mayo Clinic’s Division of General Internal Medicine Ehlers-Danlos Clinic
4500 San Pablo Road South
Jacksonvilled, FL 32224
http://www.mayoclinic.org
904-953-0869
flacaogim@mayo.edu

Hospital affiliations:

  • Mayo Clinic Hospital in Jacksonville, Florida

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Mayo Clinic’s Ehlers-Danlos Clinic provides diagnosis, genetic testing and specialized care for patients with Ehlers-Danlos Syndrome (EDS) or other Hypermobility Spectrum Disorders (HSD). Inspiring hope, relieving suffering and advancing the education and science of conditions unique to patients and their families with EDS or HSD is our primary mission. Mayo Clinic is a multidisciplinary clinic with specials in over 55 specialty and subspecialty clinics including necessary clinical services such as Neurology, Cardiology, Genetics, Physical Therapy, Occupational Therapy and Integrative Medicine to name a few.

<< Show less information about this practice


Marlon Pereira, DPT
PT, DPT

University of Miami, UHealth Tower
1400 NW 12th Avenue
Suite 1301
Miami, FL 33136
http://pt.med.miami.edu/clinical
305-689-5635
mpereira@med.miami.edu

>> Show more information about this practice/clinic

Orthopedic and Sports setting; Out-patient physical therapy

<< Show less information about this practice


Marcia Perretto, PT, DPT, COMT
Ehlers-Danlos Syndrome, Shouders Pelvis, hips and spine disorders, orthopedics

Actify PT, LLC
7000 West Palmetto Park Road
Suite 210
Boca Raton, FL 33433
http://actifypt.com
561-366-2435
info@actifypt.com

>> Show more information about this practice/clinic

The name ACTIFY developed out of our passion for wellness of both the body and the mind. The activation of our minds is essential to the success of our physical health. In rehabilitation of the body, neuroplasticity allows our brains to create new positive and powerful neural connections to override painful, ineffective and self-limiting habits and movement patterns. Neurons that fire together, wire together. So, if we focus on new efficient and effective functional movement patterns, we will build stronger, positive neural pathways. We can re-educate your nervous system through a hands on approach that creates uniquely chosen therapeutic activities for you. From restoring your posture to re-creating functional and pain-free movement patterns, when we activate the connection between body and mind, you get better quicker.

<< Show less information about this practice


Alissa Sheldon, PhD
Psychology

Alissa Sheldon, PhD, PLLC
601 North Flamingo Road
Suite 213
Pembroke Pines, FL, 33028
954-659-0115
alissa.sheldon@gmail.com

Hospital affiliations:

  • Memorial Hospital West

>> Show more information about this practice/clinic

I am a licensed psychologist in private practice in Pembroke Pines, Florida. I have completed two post-doctoral fellowships in pediatric and adult behavioral medicine at the University of Miami School of Medicine/Jackson Memorial Hospital.

<< Show less information about this practice


Frederick Stahlman, PT, CST-D (CranioSacral Therapy Diplomate Certification)
Physical Therapy, CranioSacral Therapy (CST-D)

The Upledger Institute International Clinic
11211 Prosperity Farms Rd
D 223
Palm Beach Gardens, FL 33410
http://www.theupledgerinstituteclinic.com
239-398-3154
fstahlman@yahoo.com

>> Show more information about this practice/clinic

The Upledger Institute International Clinic is a facility that is dedicated to providing the best treatment available to clients with a variety of disorders/disabilities utilizing CranioSacral Therapy, physical therapy, acupuncture, Osteopathy, Chiropractic treatment , counseling and therapeutic massage. We are dedicated to treating the entire person to reduce and or eliminate the presenting symptoms, and enhancing the client’s quality of life.

<< Show less information about this practice


Amanda Lazo, OT, MOT, OTR/L
Occupational therapy outpatient practice, familiar with treating patients with HSD, hEDS, POTS, etc.

Mayo Clinic
4500 San Pablo Rd South
Jacksonville, FL 32233
https://www.mayoclinic.org/
904-956-3170
lazo.amanda@mayo.edu

>> Show more information about this practice/clinic

Occupational therapy outpatient practice, familiar with treating patients with HSD, hEDS, POTS, etc.

<< Show less information about this practice


 

Stephanie Moir, LMHC
Mental Health Counseling

Serene Mind Counseling + Evaluations
730 S Sterling Ave Suite 301
Tampa, FL 33609
http://www.serenemindpsych.com
813-321-8280
hello@serenemindpsych.com

Professional Boards and Affiliations:

  • License Mental Health Counselor

>> Show more information about this practice/clinic

You are capable of living the life you want. We believe that people can change their thoughts, you are not broken and you do not need to be fixed. Therapists are simply navigators in transforming the way you think and show you how to view different events in your life. By realizing that you are not a victim of circumstance you can change what is in your actual control. You can empower yourself to make beautiful changes.

We specialize in therapy services for kids, teens, young adults and millennials with dysautonomia, autoimmune conditions and Lyme Disease. Through personal expereince with these conditions we know how isolating they can make us feel. By helping you regain control and a new perspective, we hope you can gain the life you want to live.

<< Show less information about this practice



Georgia

Melissa Dickinson, LPC
Behavioral Health, Mental Health, Counseling, Psychotherapy, Psychology

Wellspring Counseling, Coaching and Transitions Center
2972 Memorial Drive SE 
Atlanta, GA 30317
http://www.melissadickinson.com
404-969-5139
melissadickinsonlpc@gmail.com


Fran Kendall, M.D.
Clinical Biochemical Genetics

VMP Genetics
5779 Chamblee Dunwoody Rd
Ste 110
Atlanta, GA 30338
http://www.vmpgenetics.com
404-793-7800
info@vmpgenetics.com

>> Show more information about this practice/clinic

Extensive experience with connective tissue disorders because of the overlap with my primary expertise in mitochondrial and metabolic disorders. Very accustomed to cases with multisystem involvement and approaching each patient as an individual requiring personalized symptomatic management across a wide range of issues. In the Professional Background section below, thought that where and what Fellowship is important to a medical doctors history which in my case is: Fellow in Genetics and Metabolism, Children’s Hospital and Harvard Medical School.

<< Show less information about this practice


Savas Koutsantonis, DPT
Dry needling specialist/instructor, manual orthopedic/osteopathic skills, pilates certified, neuromuscular re-ed

One on One Physical Therapy
3300 Northeast Expressway
Building 8, Suite C
Atlanta, GA, 30341
http://www.onetherapy.com
770-500-3848
savas@onetherapy.com

>> Show more information about this practice/clinic

I have over 34 years of clinical practice and am currently working in a practice allowing for full hour of one-on-one care.

One on One Physical Therapy provides ample private space for individualized treatment with access to a gym and pilates area for active functional rehabilitation.

My patient population is composed primarily of chronic pain population, multi-regional pain syndrome, HAs, craniofacial and TMD pain, and pelvic health.

<< Show less information about this practice


Elizabeth Kemper, MPT, WCS, PRPC
Pelvic Health Physical Therapy

Kemper Pelvic Physiotherapy
1549 Clairmont Road
Suite 105,
Decatur, Georgia 30033
http://www.kemperpt.com
404-606-2730
kemperpt@gmail.com

>> Show more information about this practice/clinic

Private outpatient clinic devoted to pelvic health physical therapy in relation to the entire body. Manual therapy and Redcord-based treatment programs integrated into exercise and home progression. Primary areas of interest in care of pelvic pain, prolapse, menopause-related and hypermobility-related issues.

<< Show less information about this practice


Jenna Lightfoot, PA-C
Family Practice

Ageless Wellness Center
1000 Commerce Dr #300
Peachtree City, GA 30269
https://agelesswellnessptc.com/
678-364-7332
jenna.lightfoot.pac@gmail.com

>> Show more information about this practice/clinic

Family practice clinic that provides patient care for both adults and pediatrics of all ages. Our staff thoughtfully considers all your health and wellness concerns to care for you as a whole person. This includes treatment for acute illnesses and injuries as well as treatments that promote ongoing wellness. Jenna Lightfoot, PA-C has special interest in using diet and lifestyle to manage and prevent many chronic medical conditions.

<< Show less information about this practice


Eric Wagner, MD, MS
Upper Extremity Orthopedics, Upper Extremity Orthopedic Research, Recurrent Shoulder Instability

Emory Orthopedics and Spine
59 Executive Park S
Atlanta, GA 30309
404-778-7249
eric.r.wagner@emory.edu

Hospital affiliations:

  • Emory Orthopedics and Spine Center
  • Emory University Hospital

Professioal Board Affiliations:

  • Georgia State Medical License
  • Massachusetts State Medical License

>> Show more information about this practice/clinic

Eric R. Wagner, M.D., M.S., completed his orthopaedic surgery residency training at the Mayo Clinic in Rochester, Minnesota. After residency, Dr. Wagner completed a Hand and Microvascular Surgery at the Mayo Clinic in Rochester, Minnesota. Following this year, he completed another fellowship at Harvard’s International Shoulder and Elbow Fellowship at Massachusetts General (under Jon J.P. Warner M.D)., and Brigham and Women’s (under Laurence D. Higgins M.D.) Hospitals in Boston, Massachusetts. As part of the international component of the Harvard fellowship, Dr. Wagner trained with world leaders in shoulder arthroplasty and arthroscopy, including Pascal Boileau in Nice, France, and in Laurent LaFosse in Annecy, France.
Dr. Wagner joined the Emory Clinic’s Orthopaedic Surgery department in 2018, where he sees patients with complex shoulder and upper extremity pathologies. His main clinical interest in the realm of shoulder surgery include complex rotator cuff pathologies, primary and revision shoulder arthroplasty, recurrent shoulder instability (E.g. Ehlers Danlos Syndrome or Hyperlaxity), scapular pathologies, and the paralytic shoulder. He has published over 180 peer-reviewed journals.

<< Show less information about this practice


Edward Jackson II, MD
Orthopeadic Surgery, Orthopeadic Sports Medicine

Emory Orthopedics
3903 South Cobb Drive Southeast, Ste 275
Smyrna, GA 30080
https://providers.emoryhealthcare.org/provider/Edward+Robert+Jackson/777651
404-778-7249
edward.r.jackson.jr@emory.edu

Hospital affiliations:

  • Emory University Hospital System

Professioal Board Affiliations:

  • Orthopaedic Sports Medicine
  • Orthopaedic Surgery

>> Show more information about this practice/clinic

Emory orthopedic surgeons are at the top of their field as practitioners and as teachers at a major medical research center. Emory surgeons have trained at leading institutions around the world and are supported in their treatment and repair of knee injuries and conditions by state-of-the-art medical technology at the Emory Orthopaedics & Spine Center in Atlanta.

<< Show less information about this practice


Jill Driver, DC
Doctor of Chiropractic, Orthospinology, Upper Cervical

Pierce Chiropractic Center
1409 N Highland Ave NE
Suite A
Atlanta, GA 30306
http://pierceuc.com
404-860-1030
info@pierceuc.com

Professioal Board Affiliations:

  • Georgia Board of Chiropractic Examiners

>> Show more information about this practice/clinic

I practice a gentle form of non-manipulative chiropractic called Orthospinology/Upper Cervical. I work with many hypermobile and EDS patients. My work is safe for hypermobile spines and provides relief from neck pain, migraines, and other related issues. We utilize x-rays and non-manipulative approach similar to atlas-orthogonal. Our clinic specializes in neck pain, cervicogenic vertigo and migraines, and other related issues like facial/jaw pain. I have worked with many POTS patients as well. Many patient has experienced reduction in brain fog and drop attacks due to decreased tension and improved CSF flow at the CCJ (cranio-cervical junction). I provide EDS education and guidance for my patients, include EDS related questionnaires in the new patient intake forms, and encourage involvement in support group and the EDS online society. My goal it to help as many EDS patient as possible by providing safe, gentle spine care and compassionate patient centered healthcare. I am a member of the Georgia support group. I have established relationships with other EDS practitioners in the state, Carl Heldman DPT and Melissa Dickinson LPC. I had my own hEDS, dx in 2017.

<< Show less information about this practice


Hawaii

Katie Vitousek, DPT
Physical Therapy, Women’s Health, Lymphadema

Practice / Clinic 1
Club Rehab Inc
79-7422 Mamalahoa Hwy
Kealakekua, HI 96750
http://www.clubrehabhawaii.com

Practice / Clinic 2
Club Rehab Inc
75-5699 Kopiko Street

Kailua-Kona, HI 96740
http://www.clubrehabhawaii.com
808-322-8400
kvitousek@clubrehabhawaii.com

>> Show more information about this practice/clinic

Club Rehab has been serving the Island of Hawaii since 1994. Our mission is to bring motion back to life! Our Kailua office is housed in “The Club in Kona” which is a 20,000 square foot, fully equipped health club which includes a outdoor/indoor olympic sized pool. Our second facility, located in Kainaliu, is a 4000 square foot fitness facility and clinic that serves our Mauka community. Each of these facilities is equipped with state of the art Erchonia cold lasers, Pilates equipment, and a full compliment of exercise equipment and physical therapy modalities. For our fitness clients, personal trainers are available to help you achieve your fitness goals

<< Show less information about this practice


Idaho

Kristen Burris, LAc, MSTOM
Pain, Muscoloskeletal Pain and Injury, Depression, Anxiety, Women’s Health, Digestive

Eagle Acupuncture
507 S Fitness Plaza Suite 100
Eagle, ID 83616-5984
https://www.eagleacupuncture.com
208-938-1277
eaglebabymaker@gmail.com

>> Show more information about this practice/clinic

Kristen Burris, L.Ac., M.S.TO.M. is the owner of Eagle Acupuncture Center in Eagle, Idaho. She has a four year Master’s degree in Traditional Chinese Medicine practicing acupuncture and herbal medicine. She is an internationally recognized practitioner in the field of pain, rare diseases, medical mysteries, women’s health, menopause, and infertility. Ms. Burris is a sought out expert who has had patients referred to her by Dr. Oz. She’s been interviewed as a medical expert in: USA Today, MSNBC, Woman’s Day, Shape, Natural Health, Better Homes and Garden and Parenting Magazine. She was the covergirl for HERLIFE magazine for her renowned success in infertility helping over 500 couples conceive. Ms. Burris was the first alumnus to be featured as a success in traditional Chinese medical (TCM) field by her alma mater, Pacific College of Oriental Medicine where she graduated and then taught graduate school. Ms. Burris was voted Top Doc in Eagle twice, Winner of National Association of Women Business Owners, and won Business Person of the Year at The Eagle Chamber. She and her husband have donated over $155,000.00 worth of free medical care to the treasure valley in the last 11 years.

<< Show less information about this practice


Prashanth Manjunath, MD
Pain medicine, Anesthesiology
Practice / Clinic 1
Idaho Pain Group
285 Vista Dr

Pocatello, ID 83202

https://www.binghammemorial.org/prashanth-manjunath-md/

Practice / Clinic 2
Idaho Pain Group
98 Poplar St.

Blackfoot, ID 83221
https://www.binghammemorial.org/prashanth-manjunath-md/

208-239-8023
pmanjunath@yahoo.com

Hospital affiliations:

  • Bingham Memorial Hospital, Blackfoot, Idaho 83221

>> Show more information about this practice/clinic

Specializing in multidisciplinary, integrative model of chronic pain management including specialized interventional procedures, neuromodulation, Ketamine/Lidocaine infusion therapy and Botox injections for migraine prevention

<< Show less information about this practice


Illinois

Ann Alton, PT, DPT
Physical Therapy
Practice / Clinic 1
Kirk Center for Healthy Living
16618 W 159th St
Suite 401 & 402
Lockport, IL 60441
https://kc4hl.com/
815-383-0529
ann@kc4hl.com

Type of clinic: Private

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Outpatient hospital based clinic. Treats any/all diagnosis. Has Speech-language and occupational therapy as well.

<< Show less information about this practice


Nichole Harju, DPT
EDS, hypermobility, pediatrics

Creative Rehab
1 South Greenleaf
Suite I
Gurnee, IL 60031
http://www.creativerehab.net
847-599-9171
nharju@creativerehab.net

>> Show more information about this practice/clinic

Creative Rehab is a privately owned physical therapy clinic that focuses on providing elite care for our patients. We do this by having only licensed physical therapists, having 1 hour treatment sessions and by addressing the cause of the pain instead of chasing symptoms. Our therapists include patient and family education in order to train our patients on how to manage pain between sessions. Creative Rehab also has a warm water therapy pool that helps patients strengthen with less pain. We have been in business for 21 years due to our strong word of mouth reputation and motivation to help our community return to their lives. Check out our Creative difference!

<< Show less information about this practice


Lilian Holm, PT, DPT
Doctor of Physical Therapy, specializing in hypermobility syndromes, chronic pain and orthopedics

Lilian Holm Wellness
1570 Oak Avenue, Ste 101
Evanston, IL, 60201
https://www.lilianholm.com
847-208-8063
lilianholmpt@gmail.com
https://lilianholmwellnessschedule.as.me/

>> Show more information about this practice/clinic

I have 26 years of experience in physical therapy. I have a single-practitioner outpatient practice that is unique in that I see patients one on one for 60-75 minutes. This enables me to assess and treat each patient as the unique individual that they are, with their unique deficits and strengths. I address hypermobile patients’ needs broadly in order to achieve optimal outcomes, including sleep, stress management, dietary basics etc in addition to the needs for stabilization, coordination, strengthening etc, needed to prepare the hypermobile body to  function without injury or pain. My approach also includes a strong emphasis on patient education. I also share information about hypermobility on social media on dedicated social media sites.

<< Show less information about this practice


Catherine Lewan, PT, DPT, C-IAYT
hypermobility/EDS, dysautonomia/POTS, pelvic floor dysfunction

Chicago Physical Therapists
3717 N Ravenswood
Chicago, IL 60640
http://www.catherinelewan.com/
(773) 770-3682
dr.cat@catherinelewan.com

>> Show more information about this practice/clinic

I am self-employed at a private practice that prioritizes expert, patient-focused and individualized care. I love my work and I’m grateful for the opportunity to help others who have EDS. Since I have hEDS, so you may notice I use thumb splints for performing manual therapy and I tend to get up quite slowly as I also have POTS. I have a lot of personal and professional experience using therapeutic exercise and manual therapy to improve chronic pain, fatigue, dizziness, joint stability, and quality of life. It often takes a village, so I enjoy helping my patients connect to other team members that can assist them in their journey. I love learning with my patients about what works best for them in getting them closer to their goals– because everyone is unique. Especially when you are a zebra.

<< Show less information about this practice


Megan Mills, PhD
Health Psychologist: Cancer, Pain, Adjustment to Illness

Megan Mills PhD
2800 N Sheridan Rd
Suite 108
Chicago, IL 60657
773-331-7690
meganmills1983@gmail.com

Hospital affiliations:

  • Amita/Presence/St. Joseph Hospital, Chicago, IL

>> Show more information about this practice/clinic

I am a solo practitioner, working with medical patients exclusively. I currently have a patient load of 23, 8 of whom are diagnosed with hEDS. I’ve become more and more interested in the illness as I see people at different ages and with different symptoms (and severity of symptoms). Although I am not currently in a position to participate in research, I would like to keep up on research of EDS, both for the benefit of my clients and for my interest.

<< Show less information about this practice


Wendy Wagner, PT, MPT
Pediatric PT and EDS PT

Wendy4Therapy
3340 Empress Dr.
Naperville, IL 60564
http://www.wendy4therapy.com/
630-664-8513
wendy4therapy@gmail.com

>> Show more information about this practice/clinic

I am a PT and I have EDS myself. I have been a pediatric PT most of my career but am in the process of transitioning to only accepting patients with EDS. I am in the western suburbs of Chicago and will also be offering telehealth services soon for patients who do not feel well enough to travel. I am uniquely qualified to treat patients with EDS as I struggle with the same issues of pain, fatigue and loss of functional activity as my patients. I have the approval of Kevin Muldowney to execute his protocol and have worked with Susan Chalela (PT in Charleston) to learn tried and true techniques.

<< Show less information about this practice


Ally Walker, DPT
Women’s Health

Athletico Physical Therapy
557 S State St
Chicago, IL 60605
https://www.athletico.com/locations/printers-row/
312-361-0261

>> Show more information about this practice/clinic

Athletico Printers Row is located downtown Chicago, conveniently located within steps of the CTA Red Line station and 2 blocks from a CTA Brown/Purple/Orange/Pink Line Station. I treat a variety of orthopedic conditions, including specialty training in female pelvic floor/women’s health conditions, and have particular interest in hypermobility/EDS diagnoses.

<< Show less information about this practice


Dawn Olson, DN
Naprapathy

Alternative Pain Care
1749 S Naperville Rd. #207
Wheaton, IL 60189
http://www.alternativepaincare.info
773-501-5071
drdawndn@gmail.com

>> Show more information about this practice/clinic

At Alternative Pain Care we use the latest research and technology to identify the causes and solutions to many health challenges but especially musculoskeletal and structural dysfunctions in the body. As someone who is hypermobile myself, I have sought out the most gentle, least invasive, and most effective ways to treat spinal instabilities especially of the pelvis and sacroilliac joint and cervical spine. Naprapathy, Shiatsu, Cranial Sacral Therapy and Lymph Drainage Therapy are some of the manual therapies we specialize in.

<< Show less information about this practice


Jennifer Bambrough, DPT
hEDS, hypermobility, Dysautonomia, persistent pain, headaches, post concussive syndrome, dizziness, Parkinson’s disease

Chicago Physical Therapists
4721 N Clark St
1S
Chicago, IL 60640
https://www.chicagophysicaltherapists.com
773-770-3682
jen@chicagopt.org

Professional Boards and Affiliations:

  • APTA

>> Show more information about this practice/clinic

At Chicago Physical Therapists we’re passionate about providing you exceptional one on one care in a comfortable space. Our team of experienced physical therapists—practicing cutting-edge integrative treatment—is intent on providing you the best results. We believe in you! We work hard to help you reach your best self through our holistic, personalized approach to your treatment. 

<< Show less information about this practice


Melissa Geraghty, Psy.D.
Clinical Health Psychologist

Rago & Associates
500 E. Diehl Rd., Suite 120
Naperville, IL 60563
https://www.ragotherapy.com/melissa-geraghty/
630-328-9419
dr.m.geraghty@gmail.com

Professional Boards and Affiliations:

  • Coalition For Headache And Migraine Patients (CHAMP)

>> Show more information about this practice/clinic

Dr. Geraghty’s clinical expertise includes:
-Chronic Pain, Chronic Illness, Complex Medical, and Physical Disabilities
-Eating Disorders and Body Image
-Anxiety Disorders
-Depression
-Self-Injury
-Bereavement

Dr. Geraghty is an inaugural Board Member for The Coalition for Headache and Migraine Patients (CHAMP). She is also an Ambassador for the U.S. Pain Foundation. Dr. Geraghty has received recognition and awards for her clinical excellence and advocacy efforts in the chronic pain community. She also enjoys presenting workshops to healthcare professionals and the public at an international level.

As a person with chronic pain and multiple physical disabilities (including a rare neurological condition), Dr. Geraghty understands firsthand the difficulties that medical diagnoses bring to daily living. Dr. Geraghty was diagnosed with COVID-19 in early March 2020 and now has Long-Haul COVID. She is able to provide support to individuals impacted by COVID-19 due to her years of personal and clinical experience with complex medical conditions, including Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

<< Show less information about this practice


Indiana

Brian Horner, PT, Cert DN, CODN
Physical Therapy, Joint pain, spine, orthopedics

Practice / Clinic 1
Fast Track Physical Therapy
9082 E. US Highway 36
Avon, IN 46123
https://www.fast-tracktherapy.com

Practice / Clinic 2
Fast Track Physical Therapy
5641 Crawfordsville Rd.
Indianapolis, IN 46224
http://www.fast-tracktherapy.com
317-209-1900
amie@fast-tracktherapy.com

>> Show more information about this practice/clinic

We are a private practice with two locations, specializing in orthopedics, chronic pain, spine, EDS, Migraines and TMD. We are grateful to be able to help our patients become pain free. All of our therapists are certified in multiple levels of Dry Needling, including Orofacial Dry Needling. We treat several EDS patients and Fast Track has been known for getting the results when others have not.

<< Show less information about this practice


Ryan Summitt, DPT
PT, DPT, OCS, CSCS
St. Vincent/Ascension
8550 Naab Road
Suite 100
Indianapolis, IN 46260
317-338-3364
ryan.summitt@ascension.org

>> Show more information about this practice/clinic

Our clinic is located next to St. Vincent/Ascension Hospital and near the office of Dr. Tinkle. We have advanced medical equipment and highly trained Physical Therapists, Occupational Therapists, and Speech Therapists to treat orthopedic, neurological, balance, and pelvic health disorders.

<< Show less information about this practice


Ryan Wood, PT, DPT, MHA, OCS
Board Certified Orthopedic Clinical Specialist

Forefront Therapy
101 NW 1st St, Suite 114
Evansville, IN 47708
United States
https://forefronttherapy.org/
812-402-0444
ryan@forefronttherapy.org

>> Show more information about this practice/clinic

Our company has specialized experience with working with individuals living along the hypermobile spectrum.

We take pride in treating individuals with a holistic approach looking at the whole person, not just a diagnosis, including the neuromusculoskeletal system, psychosocial factors, diet, nutrition, sleep, and more. We developed a specialized physical therapy program within the organization dedicated to the hypermobile spectrum focused on improving quality of life and empowering individuals with the knowledge and skill to take back as much control of their situations as possible.

Forefront is based off of 3 Core Pillars: One on One Quality Care, Education/Research, and Accessibility for all.

<< Show less information about this practice


Tonya Barringer , PT, DPT
Pelvic Health, Orthopedic

Forefront Therapy
101 NW 1st St, Suite 114
Evansville, IN 47708
United States
https://forefronttherapy.org/
812-402-0444
tonya@forefronttherapy.org

>> Show more information about this practice/clinic

Our company has specialized experience with working with individuals living along the hypermobile spectrum.

We take pride in treating individuals with a holistic approach looking at the whole person, not just a diagnosis, including the neuromusculoskeletal system, psychosocial factors, diet, nutrition, sleep, and more. We developed a specialized physical therapy program within the organization dedicated to the hypermobile spectrum focused on improving quality of life and empowering individuals with the knowledge and skill to take back as much control of their situations as possible.

Forefront is based off of 3 Core Pillars: One on One Quality Care, Education/Research, and Accessibility for all.

<< Show less information about this practice


Brian Grant, PT, DPT
Physical Therapy

Forefront Therapy
101 NW 1st St, Suite 114
Evansville, IN 47708
United States
https://forefronttherapy.org/
812-402-0444
brian@forefronttherapy.org

>> Show more information about this practice/clinic

Our company has specialized experience with working with individuals living along the hypermobile spectrum.

We take pride in treating individuals with a holistic approach looking at the whole person, not just a diagnosis, including the neuromusculoskeletal system, psychosocial factors, diet, nutrition, sleep, and more. We developed a specialized physical therapy program within the organization dedicated to the hypermobile spectrum focused on improving quality of life and empowering individuals with the knowledge and skill to take back as much control of their situations as possible.

Forefront is based off of 3 Core Pillars: One on One Quality Care, Education/Research, and Accessibility for all.

<< Show less information about this practice


Iowa

Danielle Brachman, DPT, OCS, FAAOMPT
Orthopedics

Physical Therapy Solutions
107 S. 11th St.
Suite 1
Manchester, IA 52057
https://www.ptsiowa.com/
563-927-1499
danielleb@ptsiowa.com

>> Show more information about this practice/clinic

Danielle was raised in Dubuque and graduated from Wahlert High School. She received her Bachelor’s of Science Degree in Exercise Science with a minor in Biology from St. Ambrose in 2011. She went on to complete her Doctorate of Physical Therapy in 2012.

After graduation, she was employed in Denver, CO for 6 years, improving her skills in outpatient orthopedics. During this time, she earned the designation as a Board Certified Orthopedic Specialist (OCS). She then spent several years studying at Regis University in Denver, completing her Fellowship in Orthopedic Manual Physical Therapy (FAAOMPT) in 2018. She obtained her Level 2 Dry Needling Certificate through Kinetacore in 2015.

Danielle greatly enjoys being a Physical Therapist and the lasting relationships she creates with patients. She strongly believes in empowering patients through education. She treats all ages, from pediatrics through geriatrics, and enjoys returning patients to the activities they love.

When not in the clinic, Danielle enjoys spending time with her husband and son, as well as hiking, biking, and camping.

<< Show less information about this practice


Louisiana

Jacques Courseault, MD, CAQSM
Physical Medicine and Rehabilitation, Sports Medicine

Hypermobility and Ehlers-Danlos Clinic at Tulane Doctor
7030 Canal Blve
New Orleans, Louisiana 70124
https://www.orthotulane.net/hypermobility-and-ehlers-danlos-clinic
504-988-0100
dgriffin2@tulane.edu

Hospital Affiliations:

  • Tulane University

Prfessional Boards & Affiliations:

  • American Board of Physical Medicine and Rehabilitation
  • Certification of Additional Qualification in Sports Medicine

>> Show more information about this practice/clinic

The Hypermobility and Ehlers-Danlos Clinic at Tulane Doctors was developed to help you improve your quality of life. We have developed a multidisciplinary team including physicians, physical therapists and nutritionists to address many associated symptoms related to Hypermobility Spectrum Disorders. We also serve as your “hub” for keeping records and giving recommendations for new potential problems that may arise.

<< Show less information about this practice


Kansas

[/show_more]


Kentucky

Elaine DeSario, OD, Diplomate, ABO
Optometry

Louisa Eye Care
112 South Vinson Ave.
Louisa, KY 41230
https://www.louisaeye.com/
606-638-4731
Louisaeyes@gmail.com

>> Show more information about this practice/clinic

Drs. DeSario and Bowling provide comprehenive eye care for the entire family. They diagnose and treat eye disease, perform contact lens fittings, and co-manage surgical cases with other local physicians. An optical boutique with a large frame assortment is also on-site for glasses prescriptions.

<< Show less information about this practice


Maryland

Michael April, MD
PM&R

Pain and Injury Center of Greater Washington
6000 Executive Blvd.
#602
Rockville, MD 20852
http://www.end-suffering.com/
301-770-6301
frontdesk@gwpaincenter.com

>> Show more information about this practice/clinic

Outpatient clinic that specializes in acute and chronic pain and sports medicine. Currently 5-10% of the practice is patients with EDS. Work closely with Jan Dommerholt, who is well known in field. Utilize multimodal approach with medications, injections, acupuncture, PT, chiropractic, nutrition, and mind-body medicine. Clinic has M.D, nurse practitioner, chiropractor, nutritionist, and social worker.

<< Show less information about this practice


Claudiu Austin, MD, MPH

Doctors Community Hospital
1010 Wayne Ave
Suite 420
Silver Spring, MD 20910
240-499-4191, fax 999-511-6783
dr.austin@yahoo.com

Hospital affiliations:

  • Washington Adventist Hospital
  • Shady Grove Adventist Hospital
  • Sinai Hospital Baltimore

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Dr. Austin has been practicing internal medicine and hospitalist medicine, successfully combining the European and American approach to the most challenging EDS and Chiari patients.

Dr. Austin acquired a vast expertise in treating Ehlers-Danlos Syndrome patients, movement disorders, adult PANDAS, mast cell activation disease and severe autonomic dysfunction.

His previous interest in pharmacology, physiology, headache, autoimmunity, psychotropic and nootropic medication alowed him to design new algorithms of treatment in the intricated world of multi-system involvement of EDS, and apply them clinically with outstanding results.

His unusual knowledge of side effects and medication interactions, combined with a solid base of history of medicine and medical research made him a great addition to the EDS group in the Washington area.

Dr. Austin published on sepsis, pharmacology, EDS, and lectured in EDS, dystonia and PANDAS

He is Diplomate of the American Board of Internal Medicine, member of American Medical Association and American Society for Plasmapheresis

Dr. Austin was named America’s Top Physician in Internal Medicine in 2012 and 2013.

<< Show less information about this practice


Jennifer Balducci, PT, MSPT, Cert MDT
Orthopedics

914 Bay Ridge Road
Suite 212
Annapolis, MD 21403
http://www.oneptfw.com

410-280-0914
one.ptwf@gmail.com

>> Show more information about this practice/clinic

One. is a physical therapist owned and operated wellness clinic in Annapolis, MD.
Jennifer Balducci, PT, MSPT, co-owner of One., herself with joint hypermobility syndrome, has dedicated her practice to the treatment of joint hypermobility, with a focus on Wellness, using a combination of educational, nutritional, self treatment, Class IV Cold Laser, manual therapy, and Pilates based approaches to give her clients the opporunity to manage their hypermobility and related pain disorders.

<< Show less information about this practice


Stephanie Bathurst, LCMFT
Sex Therapy, Relationship Therapy, Psychotherapy for pain management, anxiety, depression, trauma, adjustment disorders.

Bathurst Family Therapy, LLC.
21 Deep Powder Ct.
Woodstock, MD 21163-1110
https://www.bathurstfamilytherapy.com/
215-692-2461
BathurstFamilyTherapy@gmail.com

>> Show more information about this practice/clinic

Bathurst Family Therapy, LLC. is a private psychotherapy practice to combines Relationship Therapy, Sex Therapy and eclectic approaches for Individual Therapy services. Stephanie Bathurst is a Board Certified Clinical Sexologist and Licensed Marriage and Family Therapist whose true passion is engaging couples who have lost one another in the journey of life; helping them to identify maladaptive communication patterns, boundaries or general needs that may be impeding them from enjoying their time together. I work with heterosexual couples, lesbian and gay couples and multi-partner relationships. Sexual dissatisfaction, fulfillment and dysfunctions are also a professional interest, seeing as these worries often intersect with relational difficulties. I work well with clients of military and law enforcement backgrounds and their families, understanding the hardships and transitions that are associated with this lifestyle. I have experience working with chronic pain and adapting to chronic conditions of disability for functioning of daily living and relational fulfillment. My private practice is partly mobile to accommodate client’s coping with physical disabilities.

<< Show less information about this practice


JR Bucklin, PT, CF-L1
Physical Therapy

Cornerstone Physical Therapy
5300 Westview Drive Suite 108
Frederick, Maryland 21703
United States
http://www.cornerstonept.net/
301-732-4754
info@cornerstonept.net

>> Show more information about this practice/clinic

Outpatient Physical Therapy designed to treat the whole person via the use of osteopathic based manual therapies and functional exercise/re-training.

<< Show less information about this practice


Lillian Byington, PT, DPT, OCS, CMPT
PT

Life Bridge Physical Therapy
1364 Martin Blvd Suite 5
Middle River, MD, 21220

https://www.novacare.com/community/baltimore-metro-northwest-maryland/center/?id=50023&ty=xt
410-686-3600
lbyington@novacare.com

>> Show more information about this practice/clinic

Small clinic with private treatment rooms and an open gym space. We offer manual therapy, dry needling, and exercises based on a slow progression to accommodate our patients individual needs. PT has 2+ years experience treating patients with EDS, POTS, MCAS, and other complex disorders

<< Show less information about this practice


Jan Dommerholt, PT, DPT, DAIPM
Physical Therapy

Practice / Clinic 1
Bethesda Physiocare
4405 East West Highway
Suite 403
Bethesda, MD
20814-4535
http://www.bethesdaphysiocare.com

Practice / Clinic 2
PhysioFitness
11140 Rockville Pike
Suite 303
Rockville, MD 20852
http://www.physiofitnesspt.com

301-656-5613
info@bpcemail.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

We see many patients with EDS related disorders in both clinic locations. The PhysioFitness location is truly unique as we have a revolutionary new approach to exercise for individuals with EDS emphasizing an external-focus exergaming focus. We collaborate with several prominent EDS medical specialists in the greater Baltimore-Washington DC metropolitan area. Our clinicians are highly specialized in EDS and related disorders and can address most common pain issues, including headaches, neck/back pain, movement disorders, etc.

<< Show less information about this practice


Michelle Finnegan, PT
Physical therapy

Bethesda Physiocare
4405 East West Hwy
Suite 403
Bethesda, MD 20850
http://www.bethesdaphysiocare.com
301-656-5613
finnegan@bpcemail.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

The clinic specializes in treating patients with chronic pain, including those with EDS, orofacial pain, and myofascial pain.

<< Show less information about this practice


Lauren Haines, PT, DPT, ATC
Physical Therapy
The Jackson Clinics Physical Therapy – Hagerstown
17301 Valley Mall Rd
Inside the OneLife Fitness Center at the Valley Mall
Hagerstown, MD 21740
https://thejacksonclinics.com/
240-850-2002
LHaines@thejacksonclinics.com

>> Show more information about this practice/clinic

The Jackson Clinics can best be described as a “Post Graduate Education Institute in the practice of physical therapy.” We are a learning organization and value life-long development of knowledge, skills and professional attitudes as our core principles. We have created world-class opportunities for professional development backed by culturally embedded measurement and accountability mechanisms to ensure that we actually deliver the quality and consistency we strive for.

We specialize in outpatient orthopedics and sports rehabilitation. Our therapists possess advanced clinical skills in spinal disorders, sacroiliac joint dysfunction and peripheral joint problems, including rotator cuff injuries, knee injuries and foot and ankle pain. Our clinicians are experienced in treating patients with hypermobility disorders, POTS, and MCAS. We offer an indoor heated salt water pool for aquatic therapy, custom orthotics fabrication, and more. We currently accept all insurances except Medicaid (anticipated late Spring 2020).

<< Show less information about this practice


S. Shar Hashemi, MD, FACS
Nerve Bone & Joint Institute Maryland

7500 Greenway Center Drive
Suite 520
Greenbelt, MD 20770
http://www.nerveboneandjoint.com/
301-220-2127
patients@nerveboneandjoint.com

Hospital affiliations:

  • DCHUX
  • George Washington University Hospital

>> Show more information about this practice/clinic

Multidisciplinary approach in evaluating patients with EDS and Hypermobility for peripheral nerve conditions.

<< Show less information about this practice


Fraser Henderson, MD
Specializing in craniocervical (CCI) , atlantoaxial (AAI) and spinal instability, occult tethered cord and Chiari malformation

The Metropolitan Neurosurgery Group
1010 Wayne Avenue
Suite 420
Silver Spring, MD 20910
http://www.metroneurogroup.org
301-557-9049
tteriniti@metroneurogroup.com

Hospital affiliations:

  • DOCTORS COMMUNITY HOSPITAL
  • HOLY CROSS HOSPITAL
  • GREATER BALTIMORE MEDICAL CENTER

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Our practice is dedicated to providing patients with the highest quality spine and neurosurgical care, offering patients non-surgical and surgical options for treatment. When surgery is indicated, we provide the most advanced, highest quality care available.

We take great pride in the individual care and genuine concern that we show each patient. Although brain and spinal abnormalities are very complex, we strive to build relationships with our patients as we determine the correct diagnosis and treatment options.

Whether you are a current patient, prospective patient, or concerned family member, please explore the information on this web site and feel free to either contact our office for more information or schedule an appointment.

<< Show less information about this practice


Kimberly Kandra
Pilates, Physical exercise

Kimmotion Pilates
1119 MD Route 3 N
Suite 201
Crofton, MD 21114
http://www.kimmotionpilates.com
410-459-7312
kimmotionpilates@gmail.com

>> Show more information about this practice/clinic

I am a private classical Pilates studio. I offer private and small group classes on the classical Pilates apparatus. My specialties lie in neuromuscular and autoimmune diseases. Pilates is a non impact method which improves joint stability, balance and strength without over-stretching and straining muscles. I teach a safe and effective way to learn movement patterns that will help to avoid injury.

<< Show less information about this practice


Nathan Mayberry, PT, DPT, OCS, CMTPT, CSCS
Orthopedic Specialists, Dry Needling, Pain Management, Myofascial Pain, Externally Focused Exercise,

Practice / Clinic 1
Mayberry Physiotherapy LLC
1119 MD 3 North
Suite 201
Gambrills, MD, 21054

Practice / Clinic 2
Bethesda Physiocare
4405 East-West Highway
Bethesda, MD 20814

410-693-0280
mayberryphysio@gmail.com

http://physiofitnesspt.com/

>> Show more information about this practice/clinic

Community clinic within a Pilates studio focusing on comprehensive rehab

<< Show less information about this practice


William (Rob) Satriano, PT, DPT, CMTPT, MLDT
Chronic Pain Management, Trigger Point Dry Needling, Myofascial Release, Rehabilitative Yoga and Pilates Training

Practice / Clinic 1
Bethesda Physiocare
4405 East West Highway #403
Bethesda, MD 20814
http://www.bethesdaphysiocare.com

Practice / Clinic 2
Rob Satriano Physiotherapy
1421 Clarkview Rd. #206
Baltimore, MD 21209
http://www.robsatriano.com

443-465-9364
rob@robsatriano.com

Type of clinic:

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

ob brings a unique perspective to discussions about physical therapy, exercise, health and wellness. During medical school at the University of Maryland, he began researching the myofascial system and its profound influence on movement and function. That led him outside the boundaries of traditional medicine. Today, his holistic approach incorporates a broad range of both conventional and alternative therapies.

He has treated people of all ages with orthopedic, neurologic and chronic pain/anxiety disorders. And worked with professional athletes, members of the United States Special Forces and Black Ops, and performing artists at the Kennedy Center and Hippodrome. Along the way, Rob has developed a reputation for thinking outside the box — which makes him a sought-after teacher, thinker and practitioner.

Above all, Rob believes in treating the whole patient — and that the heart of healing lies in an ability to listen, see and perceive more than the application of one particular technique or philosophy.

<< Show less information about this practice


Eric Singman, MD PhD
Neuro-ophthalmology

Wilmer General Eye Services @ Johns Hopkins Hospital
General Eye Services Division, Wilmer B-29
600 N. Wolfe St.
Baltimore, MD 21287
https://www.hopkinsmedicine.org/profiles/results/directory/profile/3740277/eric-singman
410-955-5080
esingma1@jhmi.edu

Hospital affiliations:

  • Johns Hopkins Hospital

>> Show more information about this practice/clinic

I host the Vision after Brain Injury Clinic at the Wilmer Eye Institute. In that capacity, I see many patients with Ehlers Danlos Syndrome because it appears that these patients are more susceptible lasting effects of brain injury by virtue of the fact that they are more fragile.

Starting July 2018, we will also develop a vision clinic specifically devoted to patients with EDS and similar diseases. This clinic will be hosted by myself and Dr. Jefferson Doyle, a pediatric ophthalmologist who also has a PhD in the study of Marfan’s Disease.

<< Show less information about this practice


Anne Wellington-Goldsmith, PT, MPT
Physical therapy

Arthritis and Rehabilitation Therapy Services / Arthritis and Rheumatism Associates, P.C.
2730 University Boulevard West
Suite 714
Wheaton, MD 20906
http://www.arapc.com/
301-942-2520
awellington@arapc.com

>> Show more information about this practice/clinic

I am the Executive Director of Rehabilitation for Arthritis and Rehabilitation Therapy Services (A.R.T.S.) which is a subdivision of Arthritis and Rheumatism Associates, P.C. We have six offices in Montgomery County, Washington D.C. and Frederick. We have 22 physicians, 14 physical therapists and one physical therapist assistant. Because A.R.T.S. is associated with a rheumatology practice, we get a lot of patients that have joint hypermobility and EDS. As a result, I have developed a comprehensive program for managing this, and have had great success with patients, and teaching them how to best manage their condition!

<< Show less information about this practice


Russell Rothenberg, MD
Rheumatology

Russell Rothenberg, MD, Chtd.
10215 Fernwood Road, Suite 401
Bethesda, MD 20817
United States
http://www.russellrothenbergmd.com/
301-571-CARE (2273)
Dr.R@RussellRothenbergMD.com

>> Show more information about this practice/clinic

My medical practice focuses on Primary Care Rheumatology and Internal Medicine and Rheumatology Consultations. I have a special interest in patients with Fibromyalgia Syndrome and musculoskeletal pain, Ehlers Danlos Syndrome and difficult to diagnose and treat Rheumatology and Internal Medicine patients. My practice approach offers comprehensive, patient friendly medical practice services. I really enjoy treating my patients with an emphasis on optimizing their health; which to me means minimizing disease and helping them reach their personal goals in life. I focus on preventive care to keep patients as healthy as possible. I strive to give each patient the time and attention needed to assess and understand their medical issues, answer questions and determine a treatment plan that is individualized for them. I’m not afraid of difficult cases. I enjoy the challenges of complicated and difficult to diagnose medical cases. I like taking the pieces of your medical puzzle and making sense of it. I love what I do and I really enjoy my patients. Most of my patients have been with me for many years. I try to be available to my patients and to empower them to be part of the medical team.

<< Show less information about this practice


Chelsea Whitaker, MS occupational therapy
Occupational Therapy on horseback, service dog training
Practice / Clinic 1
Taking The Lead, Inc.
21000 Slab Bridge Rd
Freeland, MD, 21053

http://www.takingthelead.org
443-690-1176
Info@takingthelead.org

>> Show more information about this practice/clinic

Ride horses and improve symptoms with occupational therapy!

I am an occupational therapist and a dog trainer who helped begin a non-profit animal-assisted therapy program using an 80 farm. I specialize in working with individuals affected by EDS, Autism, and balance and learning disabilities.

Siblings, Tim and Kelly (5 and 9) with Ehlers-Danlos Syndrome (hypermobility type) ride in Taking The Lead, Inc.’s Occupational Therapy on Horseback program. Her son and daughter go through various balance and joint strengthening exercises on the horse while maintaining proper joint alignment under the support of an occupational therapist and a team of balance assisants. All of our patients acquire a home exercise program from the therapist so that gains continue and translate at home.

The main benefits of participating in Occupational Therapy on Horseback for adults and children include improved balance, coordination, endurance, and an awareness of maintaining joint alignment.

<< Show less information about this practice


Alissa Zingman, MD MPH
Musculoskeletal Preventive Medicine

PRISM Spine and Joint
1010 Wayne Ave
Silver Spring, MD 20910
http://www.prismspineandjoint.com
240-600-0177
drzingman@prismsj.com

>> Show more information about this practice/clinic

Welcome to P.R.I.S.M. Spine and Joint, a new kind of musculoskeletal medicine practice. We know that an active lifestyle is the key to good health, and we help you achieve your goals by finding and treating the root cause of your pain or weakness. We focus on bringing the level of care received by professional athletes to patients with hypermobility. We rehabilitate with you and teach you to care for your body and prevent future injuries. The P.R.I.S.M. team takes a head-to-toe, non-operative approach to maximizing your recovery and performance.

We offer cutting edge Western and Eastern Medicine including:

  • Non-operative Orthopaedic Care
  • Corrective Integrated Neuro-Kinetics (CINK)
  • Muscle Activation Techniques
  • Dynamic Neuromuscular Stabilization
  • Osteopathic/Chiropractic techniques
  • Craniosacral techniques
  • Acupuncture and Dry Needling
  • Visceral Mobilization
  • Pilates
  • Pelvic Floor Physical Therapy
  • Injections including steroids, PRP and Prolotherapy
  • Pediatric Services

Your plan is customized based on your needs, endurance, and availability and can include IV fluids if needed. Visit our website for more information.

<< Show less information about this practice


Kenneth Fish, DO, D.C.
DO (China Medical College, Taichung Taiwan) , D.C. (N.Y. 2000)

Wellsprings Chiropractic
937 Russell Avenue
Suite B
Gaithersburg, MD 20879
website
301-519-1881
wellspringsclinic@yahoo.com

>> Show more information about this practice/clinic

My practice is focused on manual and rehabilitative therapies, primarily OMT. Treatments usually include gentle deep muscle work, manual manipulative therapy, Pilates based rehabilitative exercise, and other physical therapies. In treating EDS and hypermobility patients the approach is first to relieve pain, then to work towards stability and neuromuscular rehabilitation. It is my belief that patients should be shown how to care for their symptoms and joint issues to the greatest extent possible so that they can live independently.

<< Show less information about this practice


Elizabeth Tousley, Personal trainer, movement specialist, RN
Hypermoblity syndrome, EDS, chronic pain, arthritis, movement issues

Revitalize Motion
12408 Bobbink Ct
POTOMAC, MD 20854
http://www.revitalizemotion.net
240-210-6242
estousley@gmail.com

Professional Boards and Affiliations:

  • Registered Nurse

>> Show more information about this practice/clinic

I have been working with people with hypermobility and Ehlers-Danlos Syndrome for over 15 years. I have found that the combination of Neurokinetic therapy to unravel the dysfunctional movement patterns followed by Ki-Hara resisted stretching to strengthen both concentrically and eccentrically is very effective for this particular population. These techniques are easily adapted to meet each individual’s needs. Every body is unique and needs to be treated as such! I particularly enjoy the challenge of working with people with complex issues such as hypermobility syndrome. I want to help more people get out of pain and be able to enjoy an active lifestyle.

<< Show less information about this practice


Michael Epstein, MD
Gastroenterology, Internal Medicine

Digestive Disorders Associates
621 ridgely ave suite 201
Annapolis, Maryland 21401
http://www.dda.net
410-224-4887
michael.epstein@dda.net

Professional Boards and Affiliations:

  • Internal Medicine
  • Gastroenterology

Hospital Affiliations:

  • Anne Arundel Medical Center
  • Doctors Community Hospital

>> Show more information about this practice/clinic

We have been in practice since 1990. Recently I have diagnosed several individuals with EDS and HCS, After researching the topic I have begun to put together a group of physicians who are interested in treating this spectrum of disorders and giving proper care. We are still learning but very interested in helping these patients through diagnosis and education. This began after I found that there was not a great deal of help or physicians available to care for the patients with this illness including the GI symptoms and POTS and MCAS and nutritional problems.

<< Show less information about this practice


Massachusetts

Laura Kragie, MD
Translational Medicine

EndoHealth MD
464 Common St #125
Belmont, MA 02478
http://www.laurakragiemd.com/
(978) 806-4053
endohealth@gmail.com

>> Show more information about this practice/clinic

Dr. Kragie is trained in multiple specialities. In addition to Internal Medicine, she knows Endocrinology, Neuroscience, Cardiology, Nephrology, Immunology, Molecular Medicine/Genetics, Clinical Pharmacology and Addiction Medicine. She is adept and current with the cutting edge of medicine, usually 10-20 years ahead of the standard of practice.

At this time (it may change in the future), she is only providing telemedicine remote patient consultations via Skype or Google Hangout. She will not give out prescriptions but will recommend medications and therapies that can be shared with the patient’s healthcare team. Most important, all information is strictly confidential – nothing is shared with corporations or government agencies. The patient has full control over who sees their data and reports and to whom Dr. Kragie may discuss the patient’s care.

“I dedicated my life to learning, teaching and researching medicine. My path has been unique, winding through laboratories as well as clinics and wards. Nowadays, I am called a “Translational Medicine” doctor because I ‘translate’ new discoveries in order to bring them to the patient’s bedside.”

<< Show less information about this practice


Jeff Milunsky, MD
Clinical Genetics, Molecular Genetics

Center for Human Genetics
840 Memorial Drive
Suite 101
Cambridge, MA 02139
http://www.chginc.org
617-492-5106
jmilunsky@chginc.org

>> Show more information about this practice/clinic

Dr. Jeff Milunsky specializes in the evaluation, diagnosis, and management of genetic connective tissue disorders including EDS. He evaluates patients of all ages. He is also an expert in genetic testing variant interpretation. A summary of the evaluation along with management recommendations are provided to the referring provider with a copy to each patient.

When contacting the clinic, always ask to be placed on the cancellation list.
All major insurance is accepted.

<< Show less information about this practice


Laurie Bilyeu, RD
Nutrition

Connection Nutrition
171 Barnard Rd
Shelburne, MA 01370
http://www.connectionnutrition.org
617-645-3147
lkbilyeu@gmail.com

>> Show more information about this practice/clinic

Nutrition counseling via telehealth to help address complications of EDS, POTS, MCAS, Gastroparesis and others.

<< Show less information about this practice


Michigan

Lawrence Prokop, DO
Physical Medicine & Rehabilitation

MSU Musculoskeletal Rehabilitation
2815 S. Pennsylvania Ave.
Suite 2
Lansing, MI 48910
517-975-1450
prokop@msu.edu

Hospital affiliations:

  • McLaren Greater Lansing, Lansing MI 48911

>> Show more information about this practice/clinic

My clinic specializes in musculoskeletal and neurologic pain and mobility deficits.

We have treated patients with EDS to decrease the hypermobility of the joints with prolotherapy.

We utilize therapeutic exercise and Osteopathic Manipulative Medicine to improve muscle balance and movement.

We have seen significant improvement in the chronic hypermobility, pain and mobility deficits these patients have by treating them with these techniques.

<< Show less information about this practice


Minnesota

Shanda Dorff, MD
Family Medicine

Complex Cares, LLC
4700 Lexington Ave N
Shoreview, MN 55126
http://www.ComplexCaresMN.com
651-756-9596
Info@ComplexCaresMN.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

I offer many cares and evaluations remotely via telemedicine and may do house calls if needed for patients not able to travel/visit the clinic. I perform initial evaluations, provide long term cares and management of EDS as well as other associated conditions (including but not limited to mast cell diseases, dysautonomia, POTS, SIBO, etc). I opened my own practice after discovering the limited availability/access to cares for these conditions which I have adored learning and working with for many years. I especially love the complexity and challenge followed by seeing the great transformation in patients when able to get things under control.

<< Show less information about this practice


Elizabeth Gilles, MD
Pediatric Neurology

Child Neurology Solutions, PLLC
360 Sherman Street
Suite #399
Saint Paul, MN 55102

http://ChildNeurologySolutions.com
651-356-6080
office@neurosolns.com

>> Show more information about this practice/clinic

I am a child neurologist who specializes in working with children and young adults (into 20’s) with complex neurologic and medical issues. I diagnose and treat patients with EDS.

<< Show less information about this practice


Kathleen Hopkins, DO
Board certified in Family Practice, Certified Functional Medicine Practitioner

Olos Integrative and Functional Medicine
8545 Ann Marie Trail
Inver Grove Heights, MN 55077
drkathopkins.com
612-412-5130
olos@drkathopkins.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Please see website for details. I have a significant portion of my patient population that suffers from the triad of POTS, EDS and MCAS.

<< Show less information about this practice


Anna McConville, PT,DPT, PNE, CSTHTTP
Physical Therapy

Replenish Wellbeing
4014 Russell Ave N
Minneapolis, MN 55412
http://www.Replenishrestore.com
612-394-6658
anna@replenishrestore.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Anna McConville PT, DPT, CS, PNE owns a small Wellness Clinic specializing in Chronic Pain, Ehlers Danlos and stress related conditions. Anna, who has Ehlers Danlos herself, has out necessity, discovered options that have enhanced her life and minimized pain. She is certified in Craniosacral and Viseral therapy, Pilates, Heartmath, Pain Neuroscience and Movement Therapies. She’s combines one to one visits with tele-health care for those that aren’t able to come to clinic and offers shared group visits in person or online to decrease costs and provide the benefits of group learning. She utilizes The Muldowney method for care as well as specific programs that uniquely benefit each client.

<< Show less information about this practice


Susan Sencer, MD
Hematology, Oncology, POTS, Hypermobility

Cancer and Blood Disorders Program, Children’s Minnesota
2530 Chicago Ave S
Minneapolis, MN 55404
http://www.childrensmn.org
612-813-5940
susan.sencer@childrensmn.org

Hospital affiliations:

  • Children’s Minnesota

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

I am primarily an oncologist and hematologist so care for individuals with EDS because of the increased bleeding issues. I became more invested and engaged in the field when my child developed POTS, which I learned was related to his hyper mobility.

<< Show less information about this practice


Anna McConville, PT, DPT, PNE, CSTHTTP
Physical Therapy

Replenish Wellbeing
4014 Russell Ave N
Minneapolis, MN 55412
United States
http://www.replenishrestore.com/
6128450707
anna@replenishrestore.com

>> Show more information about this practice/clinic

Anna McConville PT, DPT, CS, PNE owns a small Wellness Clinic specializing in Chronic Pain, Ehlers Danlos and stress related conditions. Anna, who has Ehlers Danlos herself, has out necessity, discovered options that have enhanced her life and minimized pain. She is certified in Craniosacral and Viseral therapy, Pilates, Heartmath, Pain Neuroscience and Movement Therapies. She’s combines one to one visits with tele-health care for those that aren’t able to come to clinic and offers shared group visits in person or online to decrease costs and provide the benefits of group learning. She utilizes The Muldowney method for care as well as specific programs that uniquely benefit each client.

<< Show less information about this practice


Rita White, DPT
Physical Therapy

Intrinsic Physical Therapy
2019 Oakview Lane N
Plymouth, MN 55441
United States
http://www.intrinsic-pt.com/
651-334-2917
ritawhite@intrinsics-pt.com

>> Show more information about this practice/clinic

I opened Intrinsic Physical Therapy in order to better serve those with EDS and associated syndromes such as POTS and MCAS. I provide customized, integrative physical therapy to address all facets of chronic illness with specialities in chronic pain management and pelvic floor physical therapy. I utilize pain neuroscience education, manual therapy including visceral manipulation, and stabilization protocols as well as health coaching to provide a holistic approach to healing. I have the triad of hEDS, MCAS, and POTS myself and my goal is to provide a more compassionate and understanding rehabilitation experience for those also experiencing these diagnoses.

<< Show less information about this practice


Adam Rush, MD
Physical Medicine & Rehabilitation, Pediatrics, Pediatric Rehabilitation, Pain Medicine

Grand River Rehabilitation LLC
412 Plymouth Ave NE
Grand Rapids, Michigan 49505
http://www.GrandRiverRehab.com
616-780-2324
ajrush@grandriverrehab.com

Professional Boards and Affiliations:

  • American Board of Physical Medicine & Rehabilitation
  • American Board of Pediatrics
  • American Board of Pain Medicine

>> Show more information about this practice/clinic

People’s lives are often complicated. Adding a serious health problem commonly has a major impact on multiple aspects of their day-to-day function, from basic self-care to ambulation to work to caring for their children. Our focus isn’t just upon your disease, it’s on you and your life.

<< Show less information about this practice


Aubrey Milunsky, MD, D.Sc., FRCP, FACMG, DCH
Medical Genetics, Internal Medicine, and Pediatrics {Triple Boards}

Center for Human Genetics
840 Memorial Drive, Ste 101
Cambridge, MA 021395
http://www.chginc.org
617-492-7083
amilunsky@chginc.org

Professional Boards and Affiliations:

  • American Board of Medical Genetics
  • American Board of Pediatrics
  • Royal College of Physicians, England (Internal Medicine)

>> Show more information about this practice/clinic

Founder and now Co-Director of the Center for Human Genetics which has provided genetic services for 38 years. Clinical genetic diagnostic evaluations, genetic counselling, prenatal diagnosis and laboratory testing of many different single gene and chromosomal disorders, as well as research , are the primary goals of the Center. We especially see patients seeking diagnosis for a suspected connected connective tissue disorder such as the Ehlers-Danlos syndrome. Our laboratories, accredited by the College of American Pathology, offer a special diagnostic panel of genes focused on the Ehlers-Danlos syndrome, Marfan syndrome, Aneurysms, osteogenesis imperfecta, and other disorders. We see hundreds of patients each year, especially for diagnosis and management of the connective tissue disorders. Patients come for consultations from all New England states, and many more distant states. In addition to hundreds of peer-reviewed scientific papers we have published in prestigious journals, we write & edit the world’s major reference book entitled Genetic Disorders and the Fetus: Diagnosis, Prevention and Treatment, the 8th edition , approximating 1400 pages, to be published in March 2021.

<< Show less information about this practice


Jessica Ovans, PT
Pediatrics, hemophilia, hypermobility

Childrens Minnesota
2530 Chicago Ave S
Minneapolis, Minnesota 55404
https://www.childrensmn.org/
612-813-5940
Jessica.ovans@childrensmn.org

Professional Boards and Affiliations:

  • Minnesota physical therapy board

>> Show more information about this practice/clinic

I collaborate with providers to develop a plan for you. You will receive a thorough assessment, education and plan. I can work with local your PT with a functional emphasis, provide care at childrens minneapolis, or provide telehealth. 

<< Show less information about this practice


Montana

Kate Skinner, DPT
chronic pain, hypermobility, Ehlers Danlos, abdominal adhesions, visceral manipulation, back pain, neck pain
Great Divide Physical Therapy
2819 Great Northern Loop Ste 300
Missoula
Missoula, MT 59808
http://www.greatdividept.com
406-317-1121
kate@greatdividept.com

>> Show more information about this practice/clinic

Great Divide Physical Therapy was started to focus on clients with chronic pain and complex conditions who have not succeeded elsewhere. We have extensive training in working with chronic pain, autoimmune disorders, hypermobility, spinal dysfunction, and abdominal adhesions and pain dysfunction that all impact someone’s ability to move and quality of life. We work from a wholistic perpective treating the whole person and their specific circumstances as well as looking at how their systems function together. We work in collaboration with other providers and specialities to ensure our clients receive high quality care. My personal journey with hypermobility has given me a unique perspective on both how to treat this condition and how the medical community works with this condition. I am passionate about changing this dynamic to improve an individual’s experience in healthcare and provide options for clients to not only improve but thrive.

<< Show less information about this practice


Sarah Stewart, MD
Family Medicine

St. Vincent Healthcare North Shiloh Family Medicine
2223 Mission Way
Billings, MT 59102
406-237-8989
sarah.m.stewart@sclhealth.org

Hospital affiliations:

  • St. Vincent Healthcare

>> Show more information about this practice/clinic

Our practice is a Family Medicine clinic comprised of 3 physicians and 2 physician assistants. I have a personal interest in EDS and generalized hyper-mobility. I am working towards providing guidance and help for patients with hyper-mobility spectrum diseases.

<< Show less information about this practice


Nevada

Scott Glickman, DO FACOS
Neurosurgery

Center for Neurosurgery – Las Vegas
3012 S Durango Dr
Las Vegas, NV 89117
http://www.cnslv.com
702-929-8242
cnslv.contact@gmail.com

Hospital affiliations:

  • Mountainview Hospital
  • Centennial Hills Hospital
  • Valley Hospital Medical Center

>> Show more information about this practice/clinic

CNSLV is a full service neurosurgery practice located in Las Vegas, Nevada dedicated to the care of complex neurosurgical problems of the brain and spine. Patients are evaluated by physicians and a plan for treatment formulated involving medical and surgical avenues to optimally treat their problem. A significant portion of the patients treated have had prior operations requiring revision. Our practice addresses patients with spinal biomechanical disorders including craniocervical junction and lumbopelvic instability, intracranial pathologies, pain eliciting conditions, acute and post-traumatic injuries, tumors of the brain and spinal column and cord, problems with cerebrospinal fluid flow and homeostasis, and movement disorders.

<< Show less information about this practice


New Jersey

Richard Anderson, MD
Neurological Surgery

Practice / Clinic 1
Department of Neurosurgery, Columbia University
710 West 168th Street
New York, NY 10032
http://www.columbianeurosurgery.org

Practice / Clinic 2
Neurosurgeons of New Jersey
1200 East Ridgewood Ave
2nd floor
Ridgewood, NJ 07450
http://www.neurosurgeonsofnewjersey.org

212-305-0219
rca24@columbia.edu

Hospital affiliations:

  • New York Presbyterian Hospital, Columbia University
  • Morgan Stanley Children’s Hospital of New York
  • St. Joseph’s Children’s Hospital

>> Show more information about this practice/clinic

Dr. Richard C.E. Anderson is one of the leading pediatric neurosurgeons in the tri-state region. He specializes in the surgical treatment of pediatric brain and spinal tumors, complex spinal disorders (including tethered spinal cords, scoliosis, and instability), spasticity, craniosynostosis, Chiari I malformation, vascular disorders (including arteriovenous malformations, cavernous malformations, and Moyamoya disease), hydrocephalus, and general pediatric neurosurgery. Dr. Anderson extensively tests and utilizes the latest proven techniques in pediatric neurosurgery, including computer-guided surgical navigation, minimally invasive endoscopy, and microsurgery. Dr. Anderson’s clinical research efforts focus on surgical techniques and biomechanics of the pediatric cervical spine. He has published over 150 neurosurgical papers and book chapters for the Journal of Neurosurgery: Pediatrics, Neurosurgery, Clinical Immunology, the Journal of Immunology, PLOS ONE, BMC Cancer, and others. He participates actively in organized pediatric neurosurgery efforts and is currently on the executive committee of the AANS/CNS Joint Section on Pediatric Neurosurgery.

<< Show less information about this practice


Sara Ferruzza, DPT, CSCS
Physical therapy, rehab medicine, strength and conditioning, performance PT, pediatrics

Perfect Ten Physical Therapy
27 Law Drive
Upstairs Unit
Fairfield, NJ 07004
http://www.perfecttenpt.com
973-556-8465
info@perfecttenpt.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Perfect Ten PT is a private practice clinic. We work with patients one on one to maximize function through movement training and manual therapy. We utilize principles of dynamic neuromuscular stabilization to improve motor control in patients with hyper mobility and help move them along the spectrum from rehab to performance. We help patients create individualized treatment plans for both in the clinic at home and tailor their treatment to their goals and needs.

<< Show less information about this practice


Bonnie Nasar, RD
Nutrition, Dietetics, EDS, POTS, Mast Cell Diseases

Nasar Nutrition
301 Professional View Drive
Freehold, NJ 07728
https://nasarnutrition.com
732-481-2632
NasarNutrition@gmail.com

>> Show more information about this practice/clinic

I am a registered dietitian nutritionist with a private practice specializing in EDS, POTS, and Mast Cell Diseases. I have a local office in NJ and also accommodate out of state patients via a HIPAA compliant online platform.

<< Show less information about this practice


Jennifer Penston, MS, PT
Physical Therapy, Pediatric Clinical Specialist, EDS, Hypermobility Spectrum Disorders

Children’s Hospital of Philadelphia
Specialty Care Center
101 Plainsboro Rd
Plainsboro, NJ, 08536
https://www.chop.edu/centers-programs/physical-therapy
(215)590-5819
penstonj@email.chop.edu

Hospital affiliations:

  • Children’s Hospital of Philadelphia
  • Hospital of the University of Pennsylvania

>> Show more information about this practice/clinic

We are a specialist clinic for connective tissue disorders including but not limited to EDS and Hypermobility Spectrum Disorders. All therapists in this clinic are trained specifically in CT disorders, examination, and treatment strategies. We consult with pediatric patients aged 3-19 with diagnosed or suspected connective tissue disorders and offer evidence based recommendations and joint protection strategies. We also instruct patients and families in age appropriate, individualized home exercise programs with an emphasis on self awareness and self management of this life long condition. Where appropriate we will offer individual treatment sessions or consult with local therapists to ensure our patients who live further away receive appropriate management.

<< Show less information about this practice


Alexander Pekurovsky, MD
Pain Management

Practice / Clinic 1
Spine Institute of North America
300A Princeton Hightstown Road
Suite 202
West Windsor, NJ 08520
http://www.spineina.com

Practice / Clinic 2
Spine Institute of North America
385 Cranbury Road
East Brunswick, New Jersey 08816

(609) 371 – 9100
alexander.pekurovsky@spinena.com

Hospital affiliations:

  • Robert Wood Johnson Medical Center – Hamilton
  • Saint Barnabas Medical Center

>> Show more information about this practice/clinic

Alexander (Avi) Pekurovsky, MD, is board-certified in anesthesiology and pain medicine by the American Board of Anesthesiology, who specializes in treating back pain, neck pain, joint pain, cancer pain, headaches, nerve pain, and musculoskeletal conditions. Using the latest innovations in pain medicine, he helps his patients find relief by integrating medical and interventional approaches and creating an individualized plan. He has extensive experience treating patients with Ehlers Danlos and understands the many challenges that patients with this condition can face.

At the Spine Institute of North America, we use a variety of minimally invasive and regenerative techniques to create an individualized treatment plan to help patients find relief.

Dr. Pekurovsky is fluent in English, Russian and Hebrew, enabling him to help patients from a variety of background

<< Show less information about this practice


Bao Chau Tran, MD
Anesthesia, Pain, Functional Medicine, Regenerative Medicine, Anti-Aging, BHRT

Clinic 1
BCT Medical Associates
285 Durham Ave
SUITE 1A Bld 6
South Plainfield, New Jersey 07080
United States

Clinic 2
BCT Medical Associates
195 US Hwy 46 W
Ste 14 2nd Fl
Totowa, New Jersey 07511
United States

http://www.bctmedical.com/
7323380228
btran@bctmedical.com

>> Show more information about this practice/clinic

At BCT Medical, our patients get access to the latest in evolution of comprehensive and integrative concierge pain and functional medicine solutions. We can infuse your pain care with personalized wellness, anti-aging, and performance programs where we teach you to take control of your health and fine tune your physiology.
We have been successful also in treating EDS patients because of the muli-modal pain approach and the individual wellness programs we build for each patient. We will guide you through our concierge pain and perioperative services where we address your questions and concerns about your pain procedure, anesthesia, and post operative needs. On complex pain cases, we co-consult with other specialties so patients get a multispecialty, multi physician, combined and enhanced technique solutions to address pain in many areas of the body.

<< Show less information about this practice


New Mexico

W. Gregory Rose, Owner
Cosmetic Dentistry, Invisalign, Teeth Whitening, Composite Bonding, Crowns, Bridges, Veneers, Implants, Dentures, TMJ / TMD, Sleep Medicine

W. Gregory Rose DDS, PA
4550 Eubank Blvd NE Suite 201
Albuquerque, NM 87111
https://www.wgregoryrosedds.com/
505-296-5544
wgrosedds@aol.com

>> Show more information about this practice/clinic

Established in 1973, W. Gregory Rose DDS, PA provides advanced cosmetic dentistry in Albuquerque. We are committed to improving the health and aesthetics of your smile. Our state-of-the-art cosmetic dental practice specializes in smile makeovers to give you a smile you’ve always wanted. Cosmetic dentistry in Albuquerque not only improves aesthetics, but it can also achieve facial balance and improve bite function. We offer the latest techniques and technology available in many areas of advance cosmetic dentistry and sleep medicine.

We recognize that each case is unique, and we customize your treatment to ensure we are meeting all of your needs. For more details, call (505) 296-5544 or visit https://www.wgregoryrosedds.com/

Invisalign in Albuquerque NM

Invisalign treatment in Albuquerque NM is the clear way to straighten teeth without braces, using aligners. Aligners are removable and virtually invisible, which means you can straighten your teeth without anyone knowing; and you can still eat and drink what you want. Also, you can brush and floss normally to maintain healthy gums and teeth; and there are no wires, metal or brackets to cause mouth abrasions.

Teeth Whitenin

<< Show less information about this practice


Catherine Seat, DC, MS
Chiropractic, Functional Medicine, Nutrition.
Nutrition & Health Center/ Functional You
10801 Lomas Blvd NE
Ste. 100
Albuquerque, NM 87112
http://www.functionalyou.org
(505)888-6138
dr.cseat@gmail.com

>> Show more information about this practice/clinic

From a Chiropractic stand point, I use gentle techniques that do not incorporate high velocity low amplitude adjusting, as this can cause damage to someone with EDS. This includes using a Leander flexion-distraction table that incorporates an up and down motion starting from the waist down. This allows me to go up and down the spine using the vertebrae as levers that allow a gentle stretch in the area of focus. In addition to the Leander table, I use an Activator, which is an instrument assisted adjusting technique. This device that allows me to deliver a small impulse to an area of focus, such as with the vertebrae in the spine or a tight muscle, with the goal of restoring motion to that area.
From a Functional Medicine perspective, I treat by looking for the root cause of conditions. This includes reviewing the amount of stress, followed by organs and organ systems they are having problems with. Upon working with the patient, I research what nutritional support they may need by reviewing lab work, reading peer reviewed articles, and delving into basic anatomy and physiology. The treatment includes a personalized diet plan with supplements that are specific to each patient.

<< Show less information about this practice


New York

Lawrence Afrin, MD
Hematology, Oncology, Mast Cell Disease

Armonk Integrative Medicine
99 Business Park Drive
Armonk, NY 10504
914-730-7390
info@armonkmed.com

>> Show more information about this practice/clinic

My practice focuses principally in diagnosis and treatment of mast cell activation disease.

<< Show less information about this practice


Scott Bienenfeld, MD
Psychiatry, Addiction Medicine

The Recovery Spot
67 Irving Place
FL2
New York, NY 10003
http://www.recoveryspotny.com
917-446-6829
drscottb@recoveryspotny.com

>> Show more information about this practice/clinic

Our practice at The Recovery Spot is dedicated to treating patient dealing with psychiatric issues, addiction and chronic pain/medical problems. We provide a comprehensive approach to each patient and offer compassionate, state-of-the-art care.

<< Show less information about this practice


Ryan Blanch, JD, ESQ
Patient Advocacy, Doctor Referral

Blanch PC
261 Madison Avenue
12th Floor
New York 10016
United States
https://www.theblanchlawfirm.com/
2127363990
rblanch@blanchpc.com

>> Show more information about this practice/clinic

When our founder’s family member was finally diagnosed with Ehlers Danlos, our firm made a commitment to advocate for patient rights and to help locate the right medical professionals for patients all over the U.S.

All of our services are Pro Bono. We do not charge.

<< Show less information about this practice


Svetlana Blitshteyn, MD
Neurology, Autonomic Disorders, Headache, Neuropathy

Dysautonomia Clinic and Amherst Neurology
PO Box 441
Getzville, NY 14068
http://dysautonomiaclinic.com
716-531-4598
admin@amherstneurology.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Dysautonomia Clinic, founded by Dr. Svetlana Blitshteyn, offers comprehensive patient care to patients with POTS, NCS, OH, neuropathy, chronic headache, chronic fatigue syndrome, fibromyalgia and other related conditions to patients world-wide. We have a large patient population with Ehlers-Danlos Syndrome. We offer phone and video consultations to patients, as well as opportunities to participate in research studies, psychotherapy, nutrition consulting, health and wellness coaching and medical legal consulting services.

<< Show less information about this practice


Paolo Bolognese, MD

Chiari and EDS Neurosurgical Center
1991 Marcus Avenue
Suite 108
Lake Success, NY 11042
http://www.chiarinsc.com/index.php
(516) 321-2586
pbolognese@nspc.com

Hospital affiliations:

  • South Nassau Communities Hospital

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Our Physicians are Dr. Kula and Dr. Bolognese.
Along with Dr. Milhorat (now retired), we were the first Neuro specialists in the world identifying and treating Craniocervical Instability in EDS patients, more than 15 years ago.
We have performed almost 800 Craniocervical Fusions since then, more than 250 of which with the new Condylar Fixation technique..

<< Show less information about this practice


Jenna Cangiano, DPT
Orthopedic and neuromuscular conditions

I Heart Physical Therapy
131 West 33rd Street
14th Floor
New York, New York 10001
http://www.iheartpt.co/
212-695-0044
drjcangiano@gmail.com

>> Show more information about this practice/clinic

We work to help patients reduce pain and improve or restore mobility – in many cases without expensive surgery and often reducing the need for long-term use of prescription medications. We teach patients how to prevent or manage their condition so that they will achieve long-term health benefits. We examine each individual and develop a plan, using treatment techniques to promote the ability to move, reduce pain, restore function, and prevent disability. Our focus is to work with individuals to prevent the loss of mobility before it occurs by developing fitness- and wellness-oriented programs for healthier and more active lifestyles.

<< Show less information about this practice


Dr. Shenita Etwaroo, PhD. MS. MD
Anesthesiology

Dr. Shenita Etwaroo, MD
1468 Madison Ave
New York, NY 10029
http://www.mountsinai.org
929-200-0062
shenita2508@aol.com

Hospital affiliations:

  • Duke Medical Center
  • Mount Sinai Hospital

>> Show more information about this practice/clinic

Anesthesiology Practice

<< Show less information about this practice


Suhadee (Su) Henriquez, LCSW
Cognitive Behavioral Therapy (CBT), Dialectical Behavioral Therapy (DBT), Prolonged Exposure (PE), Acceptance and Commitment Therapy (ACT)

Multicultural CBT-DBT LLC/ The Flying Psychotherapist
67 Irving Place 2nd Floor
New York, NY 10003
http://www.multiculturalcbt.com
774-722-8328
theflyingpsychotherapist@gmail.com

Type of clinic: Private

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Bilingual multi-state Licensed Clinical Social Worker/ Psychotherapist and Airline Flight Attendant with over 23 years of global flying experience encountering and interacting with a large diversity of cultures and populations. I also have EDS and I am specialized in helping individuals with fear of flying, Chronic pain and EDS, anxiety disorders, mood disorders, and personality disorders, including Borderline Personality Disorder (BPD).In addition, she has extensive expertise in helping those struggling with relationship difficulties, perfectionism, procrastination, chronic pain, disordered eating, substance abuse, hospice end of life of humans and pets, and suicidal and non-suicidal self-injurious behaviors. She has vast experience in working with individuals from a multicultural background as well as the lesbian, gay, bisexual, and transgender (LGBT) community.

<< Show less information about this practice


Staci Hoover, MSW, LCSW
Adjustment, Grief, Caregiver Stress, Depression, Anxiety, PTSD, EDS, Mast Cell Activation, Dysautonomia (POTS), Multiple Chemical Sensitivity, Chronic Inflammatory Demyelinating Polyneuropathy, Primary Immune Deficiency, Autoimmune Phenomena,
Staci Hoover LCSW
Teletherapy Practice
(No physical location)
HIPPA Compliant Video Sessions, NY 10591
https://www.selfcareisnotselfish.net/
845-418-5412
Selfcareisnotselfish@gmail.com

>> Show more information about this practice/clinic

As as person living with EDS (and some of its co-morbidities), I have experienced the uncertainty, stress, grief and constant struggle for balance inherent in living with chronic health challenges. As I shared my symptoms and concerns with my care team, they’d share bits of other patients’ stories with me and it quickly became apparent that we, the folks impacted by these chronic illnesses, share more than our diagnoses; We need to share the stories we have lived. We need to know those stories don’t end with our diagnosis. We need to feel empowered to write our next chapter.
In order to make this a reality, I began my private practice in 2015 in order to meet the unique needs of clients and families who seek to live well with EDS and co-morbid syndromes. Using teletherapy, I employ an eclectic approach which borrows from narrative therapy, a strength-based approach, elements of Cognitive Behavioral Therapy (CBT), some Polyvagal Theory, psycho-education, solution-focused interventions and a good bit of playfulness, in order to support folks in meeting the needs their bodies require, so they may live the lives they desire.

<< Show less information about this practice


Michael Lattanzio, DPT
Physical Therapy

JAG-ONE Eltingville
4079 Richmond Avenue
Staten Island, NY, 10312
http://www.JAGONEPT.com
718-984-8400
Mlattanzio@jagonept.com

>> Show more information about this practice/clinic

Outpatient orthopedic practice in Staten Island, moving to a brand new facility in January 2020. I currently have 3 ED patients on program and am extremely intrigued and happy to work with people who suffer from it, easing their pain and improving their function.

<< Show less information about this practice


Anne Maitland, MD, PhD
Allergy, Immunology

Comprehensive Allergy & Asthma Care
200 South Broadway Ste 200
Tarrytown, NY 10709
http://www.drannemaitland.net/
914-631-3283
anne.maitland@mssm.edu

Hospital affiliations:

  • Icahn School of Medicine at Mt. Sinai

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

I have a private practice, Comprehensive Allergy & Asthma Care, which focuses on a more holistic diagnostic and therapeutic approach to inflammation, due to hypersensitivity, such as Mast Cell Activation disorders, as well as Primary Immune Deficiency. Dysregulation of the immune system can cause problems in any organ system. Yet it is signs and symptoms of the skin, gut and respiratory tract that typically cause patients to seek an allergy/immunology consultation: sinus problems, recurrent respiratory infections, skin disorders (urticaria/hives; swelling/angioedema; flushing/redness of the skin; and eczema), breathing difficulties (asthma, ie), food sensitivities/chronic gastro-intestinal distress. The team includes myself, a nurse practitioner with expertise in the neurology arena, and a physician assistant with over a decade of dermatology experience. We also recognize the need to partner with other specialties, to help gather clues and design a therapeutic plan. The latter may include the use of nutrition, traditional Chinese medicine, biologics (including the original biologic-supplemental gammaglobulin.

<< Show less information about this practice


Norman Marcus, MD
Pain Medicine

Norman Marcus Pain Institute
30 E. 40th Street
Ste 1100
New York, NY 10016
http://www.normanmarcuspaininstitute.com
212-532-7999
support@nmpi.com

Hospital affiliations:

  • Weill-Cornell Medicine

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Dr. Marcus is a member of the Pain Management Section of the EDS Consortium. He started the first pain center in New York City at Montefiore Hospital in 1977 and went on to direct multidisciplinary pain centers at Lenox Hill Hospital in NYC and Princess Margaret Hospital in Windsor, UK. He was trained in the evaluation and treatment of soft tissue pain by Hans Kraus, MD, President JFK’s physician for his back pain, who replaced Janet Travell when her treatments failed. Currently, the Director of Clinical Muscle Pain Research at Weill-Cornell Medicine, his practice deals with all aspects of chronic pain. He has invented an electric instrument that can identify specific muscles causing pain and stiffness so common in EDS patients. During the initial evaluation, each patient is tested for all possible sensitized muscles to facilitate a detailed treatment plan. Comprehensive treatment may include use of photobiomodulation, muscle tendon injections, physical therapy, treatment of symptoms of Mast Cell Activation Disorder, and use of a variety of analgesic medications.

<< Show less information about this practice


Angela Oddone, LCSW
psychotherapy, counseling, clinical social work, case management

Angela M. Oddone LCSW
215 Alexander Street
Suite 200
Rochester, NY 14607
http://www.angelaoddone.com
585-360-2900
angelamoddonemswlcsw@gmail.com

>> Show more information about this practice/clinic

EDS-knowledgeable, resiliency-oriented, strengths-based psychotherapist, counselor, coach, consultant, and case manager providing guidance and support for people who live with complex chronic conditions, pain and/or disability, particularly due to rare conditions, especially EDS/HSD. Includes support navigating the healthcare system, particularly one that is data/metrics driven and, as such, often fails to adequately or safely serve people with rare conditions such as EDS. Also includes support for families, friends and caregivers and other relationships that affect the quality of life for people living with EDS/HSD such as employers, co-workers, healthcare providers, etc.

<< Show less information about this practice


Bernadette Riley, DO, FACOFP
Family Medicine and Osteopathic Manipulative Treatment

Director of Ehlers-Danlos Syndrome /Hypermobility Treatment Center at NYIT
NYIT College of Osteopathic Medicine Ehlers-Danlos Syndrome Treatment Center
Riland Health Care Center
Old Westbury, NY 11568
https://www.nyit.edu/medicine/ehlers_danlos_syndrome_treatment_center
516-686-3894

>> Show more information about this practice/clinic

Our integrated team works together across specialties to offer a variety of services to help evaluate and design individualized treatment programs, including:

  • Primary care
  • Neurological examination
  • Osteopathic manipulation
  • Occupational therapy
  • Physical therapy
  • Speech therapy
  • Clinical psychology

<< Show less information about this practice


Leslie Russek, PT, DPT, PhD, Orthopaedic Specialist
Physical Therapy

Canton-Potsdam Hospital
49 Lawrence Avenue
Potsdam, NY 13676
https://www.cphospital.org/health-services/physical-rehabilitation
315-261-5460
Lrussek@clarkson.edu

Hospital affiliations:

  • Canton-Potsdam Hospital

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Dr. Russek treats patients part-time, specializing in Hypermobility Spectrum Disorders, Fibromyalgia, and chronic pain.

<< Show less information about this practice


Joy Samanich, MD
Clinical Medical Genetics

Genetic Medicine of Westchester and Fairfield
1 Hunter Avenue
Suite A
Armonk, NY, 10504
http://genmedofnyct.com
914-236-0336
info@genmedofnyct.com

>> Show more information about this practice/clinic

I am a clinical medical geneticist, initially trained in pediatrics and then with fellowship training in genetics. I have a private practice located in Armonk, NY, approximately 1 hour north of midtown Manhattan. In my practice, I see children and adults with a range of concerns from developmental delays and autism to multiple medical conditions. I see patients with known genetic disorders, or those whose diagnosis remains unclear. I have seen several patients recently for the concerns of hypermobility and chronic pain related to this, and am interested in working further with this population both for diagnosis and in effecting better treatment for them.

<< Show less information about this practice


Gene Shenker, DPT
Physical Therapy

Gramercy Physical Therapy PC
247 3rd Avenue
Suite:LL2
New York, NY 10010
http://www.gptny.com
212-598-5913
Gramercypt247@gmail.com

>> Show more information about this practice/clinic

Our unique mission is to provide an individually extensive treatment that concentrates on goal oriented efficiency and comfort. We also highly emphasize thorough manual hands-on therapies and utilize a broad array of therapeutic, cutting edge techniques, as well as teaching clients easy-to-implement, effective therapeutic exercises. We provide one-on-one treatments, put emphasis on manual therapy, and provide majority of the treatments in private rooms

<< Show less information about this practice


Tiffany Lin, MD
Anesthesiology, Pain Management

Weill Cornell Medicine Pain Management
2315 Broadway
2nd Floor
New York, New York 10024
https://weillcornell.org/services/pain-management
648-962-7246
til9042@med.cornell.edu

>> Show more information about this practice/clinic

Dr. Tiffany Lin has a special interest and expertise in Ehlers-Danlos Syndrome. Her training includes residency in Anesthesiology at the University of Chicago Medical Center and fellowship in the Tri-Institutional Pain Medicine Fellowship at NewYork-Presbyterian/Weill Cornell Medical Center, Memorial Sloan Kettering Cancer Center, and Hospital of Special Surgery. She believes in multidisciplinary and individualized approach to the treatment of chronic pain. With that in mind, she incorporates the latest research, the most advanced equipment, and innovative therapies to diagnose pain and develop customized pain management plans for each patient.

<< Show less information about this practice


Chaim Mandelbaum, MD
Pain Specialist

Comprehensive Pain Management
75 Maiden Lane
New York, New York 10038
https://cpmnyc.com
212-995-6495
comprehensivepainny@gmail.com

Hospital affiliations:

  • Mt SINAI
  • Beth Isreal

>> Show more information about this practice/clinic

We treat EDS and all spinal diseases. Please see our website.

<< Show less information about this practice


Ellen Chelnitsky, DO
Internal Medicine, Primary Care

Chelnitsky Medical PC
133A West End Avenue
Suite 1
Brooklyn, NY 11235
http://www.ChelnitskyMedicalPC.com
718-891-1300
DrEllen@chelnitskymedicalpc.com

Hospital affiliations:

  • NYU Langone- Brooklyn (Lutheran’s Hospital)
  • Coney Island Hospital

Professional Boards and Affiliations:

  • Internal Medicine

>> Show more information about this practice/clinic

Our office has a warm and welcoming environment. We use interdisciplinary approach and make sure that every patient gets the best possible care. The office is handicap accessible.

<< Show less information about this practice


Roni Sharon, M.D.
Chief Physician

ARTEMIS NY
248 3rd Ave
New York, NY 10010
https://www.artemisnymedical.com/
914-200-4160
doctor@artemisnymedical.com

>> Show more information about this practice/clinic

Dr. Sharon, is a board certified Neurologist and headache and facial pain specialist. His main interest is chronic pain conditions and improving the quality of patients’ lives.

He is licensed in NY and has a private practice. He studied medicine at Sackler School of Medicine in Tel Aviv, Israel. He did a residency training at Mount Sinai Beth Israel in New York in Neurology. He then did a fellowship at Harvard Medical School’s Brigham and Women’s Hospital.

<< Show less information about this practice


Richard Adamski, MD.
Rheumatology

Northwell Physician Partners – Multi-specialty at Patchogue, Northwell Health – Rheumatology at Bay Shore
205 S Ocean Avenue
Patchogue, New York 11772
631-815-3300
radamski12@northwell.edu

Hospital Affiliation:

  • Northwell South Shore University Hospital

Professional Boards and Affiliation:

  • American College of Rheumatology
  • ABIM

>> Show more information about this practice/clinic

Multi-specialty Practice including Rheumatology, orthopedics, cardiology, pulmonology, nephrology.

<< Show less information about this practice


North Carolina

Joel Cabrera, PT, MTC, CSCS
Manual Therapy, Dry Needling, TMJ, Orthopedics, Strengthening, Stability
Myo Durham Fitness and Physical Therapy
105 Hood Street, Ste 4
Durham, NC, 27701
http://www.myodurham.com
919-886-0976
info@myodurham.com

>> Show more information about this practice/clinic

Myo Durham is a private Physical Therapy practice in the heart of downtown Durham. Myo Durham focuses on one-on-one treatment for patients with complex spinal disorders, TMJ disorders, and general musculoskeletal pain. Joel Cabrera, PT, has 15 years of experience in outpatient physical therapy with advanced certifications in manual therapy and chronic pain treatment. Myo Durham Fitness and Physical Therapy also provides strength and conditioning classes for the surrounding community.

<< Show less information about this practice


Libby Hinsley, PT, C-IAYT
Physical Therapy, Yoga Therapy

Libby Hinsley Physical Therapy and Yoga Therapy
183 Bartlett Street, Suite 110
Asheville, NC 28801
http://www..Libbyhinsley.com
828-273-6816
Libbyhinsley@gmail.com

>> Show more information about this practice/clinic

I am a Physical Therapist and Yoga Therapist in private practice. I specialize in variety of musculoskeletal complaints including persistent pain, hypermobility spectrum disorders, and hEDS.

<< Show less information about this practice


Meghan Mizrachi, DPT
Physical Therapy

Novant Health Rehabilitation South Park
6324 Fairview Road
Charlotte, NC 28210
http://www.novanthealth.org
203-494-2747
mlmizrachi@novanthealth.org

>> Show more information about this practice/clinic

We offer one on one PT session for 45 minutes. We follow the Muldowney protocol. Presently, about 50% of my clients have hypermobile EDS.

<< Show less information about this practice


Matthew Snyder, PsyD, LPCS
Mental Health

Matthew T Snyder, LPCS
1915 George St
Hendersonville, North Carolina 28792
http://www.fullcirclewnc.org/
828-222-0401
matt@fullcirclewnc.org

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

We are a holistic mental and emotional health center that emphasizes high quality, experienced clinical care and community based connection and activity.

<< Show less information about this practice


Grace Tang, PT, DPT, OCS, CCTT
orthopedic, chronic pain, temporomandibular disorders

Strive Physical Therapy & Fitness
5103 Grace Park Drive
Morrisville, NC 27560
https://www.striveptfit.com/
919-467-4558
info@striveptfit.com

>> Show more information about this practice/clinic

Strive Physical Therapy & Fitness is a manual therapy focused practice, with one on one care. Patients will see the same therapist throughout the course of treatment. We treat many chronic pain conditions, including hypermobility syndromes, headaches, and temporomandibular syndromes.

<< Show less information about this practice


Ohio

Melodie Blacklidge, MD
General Pediatrician Specializing in Hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum Disorders

Hypermobility Clinic/Division of Human Genetics
Cincinnati Children’s Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229
https://www.cincinnatichildrens.org
513-636-4760
Skeletaldysplasiacenter@cchmc.org

Hospital affiliations:

  • Cincinnati Children’s Hospital Medical Center

>> Show more information about this practice/clinic

Dr. Blacklidge is a General Pediatrician who works with Genetic Counselors, nurse practitioner Allison Mack, and the specialists of Cincinnati Children’s Hospital Medical Center to provide diagnostic services and management for Hypermobile EDS for patients age 6 to 22 years of age.

<< Show less information about this practice


Cam Health, JD, Esq.
Specialist location and referral, patient advocates, Mast cell, EDS

Health Law Group PLLC
20 S Third Street, Suite 210
Columbus, OH 43215
https://healthlawpllc.com/
844-239-1234
cam@healthlawpllc.com

>> Show more information about this practice/clinic

Health Law PLLC focuses on medical / health care representation and patient advocacy for rare diseases. We focus on EDS and EDS related conditions.

<< Show less information about this practice


Jennifer Conner, MD
Family medicine

Findlay Family Practice
1725 Western Ave, Suite A
Findlay, OH 45840
419-423-4994
Ffp1725@yahoo.com

Hospital affiliations:

  • Blanchard Valley Hospital

>> Show more information about this practice/clinic

I have both personal and professional experience with EDS, and consider my job to “quarterback” for the EDS patient!

<< Show less information about this practice


Subinoy Das, MD
Sinus disease, otolaryngology-head and neck surgery

US Institute for Advanced Sinus Care and Research
974 Bethel Road
Suite E
Columbus, Ohio 43214
http://www.usasinus.org/
614-538-2424 x1151
Info@usasinus.org

Hospital affiliations:

  • Riverside Memorial Hospital
  • Dublin Methodist Hospital
  • Nationwide Children’s Hospital

>> Show more information about this practice/clinic

I am a sinus disease expert that also suffers from Ehlers Danlos Syndrome. Sinus sufferers with EDS are often mismanaged because steroids are typically harmful for EDS patients. I enjoy caring for EDS patients because of my personal experience with the disease.

<< Show less information about this practice


Lindsay Hastings, LMT, Certified BowenWork Practitioner
LMT, Certified BowenWork Practitioner

Practice / Clinic 1:
Phoenix BodyWork & Apothecary
4434 Carver Woods Dr
Suite 300
Blue Ash, Ohio 45242

Practice / Clinic 2:
Phoenix BodyWork & Apothecary
31 E Mulberry St
Lebanon, Ohio 45036

513-507-7342
Phoenixmedicalmassage@yahoo.com

>> Show more information about this practice/clinic

Body work that is clinical, gentle and non invasive. BowenWork specifically works with connective tissue imbalances; it relaxes spasmodic areas yet tones the muscles that are too weak or unstable. BowenWork tones and “matures” the nervous system.

<< Show less information about this practice


Michael Joseph, MD
Paediatric Pain and Symptom Managment

Center for Pediatric and Adolescent Pain Care
5080 Bradenton Ave Ste C
Dublin, OH 43017
http://www.pediatricpaincare.com
614-889-6422
michael.joseph@pediatricpaincare.com

>> Show more information about this practice/clinic

Integrated multidisciplinary clinic focused on the care of functional pain and symptoms that have been difficult to treat in the standard medical model.

<< Show less information about this practice


Andrea Julian, CPT-FT
Medical massage, Visceral massage, Functional Movement, Chiropractics, Yoga

Joga Somatic Arts
1725 Woodman Dr. Suite E
Kettering, OH 45420
http://www.jogasomaticarts.com
(937) 416-7814
ajuliantraining@gmail.com

>> Show more information about this practice/clinic

Joga Somatic Arts offers, massage, chiropractic adjustments, Yoga and fitness classes and private sessions for those with EDS or HSD. Jo and Andrea have devoted their time and research to hypermobility and linking movement patterns and nutrition to specific pains, strains and complications so that they may better help themselves and their clients. Joga Somatic Arts also offers gentle Chiropractics, safe for those with Hypermobility. Joga is owned and operated by several hEDS patients.

<< Show less information about this practice


Jennifer Lobert, MD
Rheumatology; Internal Medicine

Jennifer Lobert MD LLC / Comprehensive Musculoskeletal Care
9403 Kenwood Road
Suite D105
Blue Ash, OH 45242
http://www.lobertcmc.com
513-318-1695
drlobert@lobert.com

Hospital affiliations:

  • The Christ Hospital

>> Show more information about this practice/clinic

We are a membership practice specializing in treating patients with complex pain conditions.

<< Show less information about this practice


Joshua Stephens, DO
Internal Medicine
Practice / Clinic 1
Queen City Physicians University Station
1775 Lexington Avenue
Suite 150
Cincinnati, OH 45212
https://www.trihealth.com/hospitals-and-practices/queen-city-physicians/locations/university-station/

-ractice / Clinic 2
Queen City Physicians Hyde Park
2753 Erie Avenue
Cincinnati, Ohio 45208
https://www.trihealth.com/Hospitals-and-Practices/Queen-City-Physicians/Locations/Hyde-Park-Internal-Medicine/
513-246-8000
joshua_stephens@gmail.com

Hospital affiliations:

  • Good Samaritan Hospital
  • Bethesda North Hospital

>> Show more information about this practice/clinic

Dr. Stephens treats adult patients, 16 years and older, for a wide range of acute and chronic medical conditions. He is a preferred primary care provider in managing the care of Ehlers Danlos Syndrome patients and their associated diagnosis as a part of the TriHealth multidisciplinary connective tissue disorder clinic. Dr. Stephens also has a special interest in the evaluation and treatment of environmental allergies. Additionally, he is a trained osteopathic physician, providing osteopathic treatment as an adjunct to medical therapies.

Intrigued by the continually evolving field of medicine, he likes finding simple and effective ways to prevent, detect, and treat diseases. Through open communication, Dr. Stephens wants to help patients make healthy choices and tailor care to meet each patient’s lifestyle and health goals.

<< Show less information about this practice


Oregon

Paul Ebensteiner, DC
DC, ND, LAc, LMT
Chiropractic

Schaefer Chiropractic
4511 SE Hawthorne Blvd
Portland, OR 97215
www.polyhedronchiropractic.com
503-241-0042
cpaulrun@gmail.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Integrative natural health and injury rehabilitation.

<< Show less information about this practice


Michael Gentile, DPM
Foot and Ankle Medicine and Surgery

Portland Foot and Ankle Institute
12672 NW Barnes RD
Suite 100
Portland, OR 97229
http://www.pdxfai.com
503-336-0169
pdxfai@gmail.com

Hospital affiliations:

  • Providence St. Vincent Medical Center
  • Cornell Surgery Center
  • Legacy Good Samaritan

>> Show more information about this practice/clinic

Portland Foot and Ankle Institute is a center of excellence for leg, foot, and ankle medicine and surgery in Portland, OR. Dr. Gentile is dual board certified by the American Board of Foot and Ankle Surgery in foot and rearfoot/ankle reconstructive surgery. Along with his surgical fellow and board certified orthotist, the Institute provides a unique team approach to patients with leg, foot, and ankle problems complicated by hyper-mobility and hyper-laxity. The team has years of experience in treating this unique subset of patients both surgically and non-surgically.

<< Show less information about this practice


Alena Guggenheim, ND
Assistant Professor of Anesthesiology and Perioperative Medicine, Naturopathic Medicine

Comprehensive Pain Center Oregon Health and Science University
3303 SW Bond Ave
Portland, OR 97239
https://www.ohsu.edu/pain-center
503-494-7246
none@oshu.edu

Hospital affiliations:

  • Oregon Health and Science University

>> Show more information about this practice/clinic

Dr. Guggenheim specializes in the care of children and adults with chronic pain and joint hypermobility disorders. She enjoys working with patients with Ehlers-Danlos Syndrome and associated complex symptoms. She likes to help patients navigate health care options and empowering them to make informed decisions.

<< Show less information about this practice


Cory Tichauer, ND
Lyme Disease, Mold & Environmental Illness, Immune Dysfunction & MCAS

Bear Creek Naturapathic Clinic
2612 E. Barnett Rd
Medford, OR 97504
https://www.bearcreekclinic.com
541-770-5563
info@bearcreekclinic.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Bear Creek Naturopathic Clinic functions both as a primary care clinic and a center to address chronic health concerns. With multiple physicians and specialties, each doctor provides unique and specialized care to address the individual needs of each patient. Dr. Tichauer focuses on understanding the interplay of infectious illness, immune dysfunction and environmental medicine as a means to accurately diagnose and treat the underlying conditions needed to restore health. He employs traditional and natural antimicrobial and immune therapies, peptides, LDI/LDA, IV therapy, HBOT, ozone, prolotherapy, neural therapy and cellular detoxification to achieve this goal. He has both personal and professional experience working with hypermobility and EDS. In these patients he strives to identify and stabilize underlying metabolic dysfunction and sources of inflammation while addressing chronic structural concerns.

<< Show less information about this practice


Anne Hill, ND
Primary Care Practice, Naturopathic Medical Care

Anne Hill, ND
443 NE Knott Street
Portland, OR 97212
http://www.annhillnd.com
503-282-1070
info@knottstreethealth.com

>> Show more information about this practice/clinic

Dr. Hill has been in practice since 2004 and treats Chronic Infectious Disease, Autoimmune Disorders, Gastrointestinal Disorders, Mast Cell Activation Syndrome and Environmental Illness. She treats both adults and children. She has been through the EDS ECHO program and is connected with the other providers in her area and nation-wide to help understand her patient population better. She also teaches regularly in-person to other providers and online to both providers and patients on topics ranging from Hypermobility Spectrum Disorder, Gastrointestinal Health, Infectious Disease and Women’s Health as well as doing instructive seminars on utilizing Craniosacral Therapy and Osteopathic Manipulation as well as Neural Therapy in practice to help our patients.

<< Show less information about this practice


Heather Purdin, M.S., P.T., CMPT 
Physical Therapy, Chronic Pain, Ehlers-Danlos Syndrome, Orthopedic and Manual Therapy, Myofascial Release, Athletic Taping, Brace Fitting/Adjustment, Joint Mobilization, Strain Counter Strain, Trigger Point, Functional Indirect Technique, Muscle Energy Technique, Mulligan concepts, Craniosacral Treatment

Practice / Clinic 1
4475 SW Scholls Ferry Rd.
Suite 258
Portland, Oregon 97225
503-292-5882
https://goodhealthphysicaltherapy.com/

Practice / Clinic 2
4943 NE Martin Luther King Jr. Blvd.
Suite 258
Portland, OR 97211
https://goodhealthphysicaltherapy.com/
503-292-5882
admin@goodhealthphysicaltherapy.com

Professional Boards and Affiliations:

  • American Physical Therapy Association
  • Oregon Area Ehlers Danlos Society

>> Show more information about this practice/clinic

Unlike most fast-paced, high volume clinics our Portland based physical therapy clinic offers hour long personalized treatments. You will experience warm, holistic care that adapts to your level of injury and pace of recovery. Our experienced therapists work as a collaborative team, drawing upon their individual well developed clinical experience to provide you with care that best meets your needs.

<< Show less information about this practice


Michael Makher, PT, DPT 
Chronic Pain, Therapeutic Movement, Strength Training, Manual Therapy, Ehlers-Danlos syndrome, Joint Mobilization, Release Techniques, Desensitization Techniques

Practice / Clinic 1
4475 SW Scholls Ferry Rd.
Suite 258
Portland, Oregon 97225
503-292-5882
https://goodhealthphysicaltherapy.com/

Practice / Clinic 2
4943 NE Martin Luther King Jr. Blvd.
Suite 258
Portland, OR 97211
https://goodhealthphysicaltherapy.com/
503-292-5882
admin@goodhealthphysicaltherapy.com

Professional Boards and Affiliations:

  • American Physical Therapy Association
  • American Society of Manual Therapists
  • International Association for the Study of Pain

>> Show more information about this practice/clinic

Unlike most fast-paced, high volume clinics our Portland based physical therapy clinic offers hour long personalized treatments. You will experience warm, holistic care that adapts to your level of injury and pace of recovery. Our experienced therapists work as a collaborative team, drawing upon their individual well developed clinical experience to provide you with care that best meets your needs.

<< Show less information about this practice


Chie Tadaki, PT, DPT 
Chronic Pain, Neurological Conditions, Sports Medicine, EDS, Orthopedic PT

Practice / Clinic 1
4475 SW Scholls Ferry Rd.
Suite 258
Portland, Oregon 97225
503-292-5882
https://goodhealthphysicaltherapy.com/

Practice / Clinic 2
4943 NE Martin Luther King Jr. Blvd.
Suite 258
Portland, OR 97211
https://goodhealthphysicaltherapy.com/
503-292-5882
admin@goodhealthphysicaltherapy.com

>> Show more information about this practice/clinic

Unlike most fast-paced, high volume clinics our Portland based physical therapy clinic offers hour long personalized treatments. You will experience warm, holistic care that adapts to your level of injury and pace of recovery. Our experienced therapists work as a collaborative team, drawing upon their individual well developed clinical experience to provide you with care that best meets your needs.

<< Show less information about this practice


Kimberley Hindman, ND, LAc
Naturopathic medicine, acupuncture, aroma acu-therapy

Practice / Clinic 1
Dr. Kimberly Hindman ND, LAc
1820 SW Vermont St
Suite E
Portland, OR 97219
http://www.healingdragon.net
503-784-1027
khindman@healingdragon.net

Professional Boards and Affiliations: 

  • AANP
  • OANP
  • OAAOM

>> Show more information about this practice/clinic

Dr. Hindman works with patients with EDS to support in three different areas. The first area is to help the EDS with correct diagnosis and referrals and naturopathic supports for connective tissue. Second is to investigate, treat, and work with other practitioners for other conditions that are often seen more commonly with EDS, including POTS, MCAS, occult tethered cord, Chiari, and cranio-cervical instability. Third is to work deeply with patients to identify underlying factors that may be contributing or exacerbating their EDS symptoms as well as their overall health as an individual, including hormone imbalances, dietary and nutrient deficiencies, toxic exposures and detoxification needs, possible chronic infections, stress, and energetic patterns. Treatment focuses on both the medicine of chemistry as well physics and can include lifestyle changes, nutrients, herbs, and medications as well as energetic treatments of acupuncture or aroma acu-therapy, biotherapeutic draingage, and homeopathy. Dr. Hindman also draws from her personal experience with hEDS to support the symptoms and issues associated with EDS as well as the whole person who is experiencing those symptoms.

<< Show less information about this practice


Osvaldo Schirripa, M.D., M.S.
Clinical and Molecular Genetics

Practice / Clinic 1
Central Oregon Clinical Genetics Clinic
143 SW Shevlin-Hixon Drive, suite 203
Bend, Oregon 97702
541-678-5417
cocgenetics@gmail.com

>> Show more information about this practice/clinic

Dr. Schirripa’s training:
Clinical Genetics at The Children’s Hospital, Denver, Colorado.
Molecular Genetics at The University of Colorado Health Science Center, Denver, Colorado.
Clinical Cancer Genetics at The City of Hope Medical Center, National Cancer Center, Duarte, California.
Dr. Schirripa is also an Anatomic and Clinical Pathologist with training in Molecular Pathology.

<< Show less information about this practice


Joanna May, ND
Primary care, mental health/psychiatric conditions; GI disorders, hormone balancing

Practice / Clinic 1
Woodstock Natural Health Clinic
4938 SE Woodstock Blvd
Portland, Oregon 97206
http://www.woodstockclinic.com
503-771-0615
drjoanna@woodstockclinic.com

Professional Boards and Affiliations: 

  • Oregon Association of Naturopathic Physicians
  • American Association of Naturopathic Physicians

>> Show more information about this practice/clinic

Own and operate a naturopathic primary care practice in Portland Oregon. patient population is significant for multiple chronic comorbidities. Personally see a large amount of patients with functional GI disorders, mental health and psychological disorders, as well as chronic vaginal dysbiosis. Utilizing interdisciplinary treatment modalities inclucing pharmaceutical therapies, IV therapies, herbal & nutraceutical therapies; hydrotherapy. Versed in MCAS, lyme, SIBO/SIFO.

<< Show less information about this practice


Valerie Ferdinand, ND
Immune Dysfunction, Mast Cell Disorders, FQAD, Tick-Borne Disorders

Woodstock Natural Health Clinic
4938 SE Woodstock Blvd
Portland, OR 97206
http://www.woodstockclinic.com
503-771-0615
drvalerie@woodstockclinic.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Naturopathic provider that integrates medication with supplements to address complex chronic illness including EDS, MCAS, FQAD, etc

<< Show less information about this practice


Pennsylvania

Dawn Cox, PT, MSPT, CFMT
Physical therapy for those with hyper-mobility syndrome, EDS, runner and dancer specialty

Prana Functional Manual Therapy
617-a North Prince Street
Lancaster, PA, 17603
http://www.pranapt.com
717-390-4822
info@pranapt.com

>> Show more information about this practice/clinic

Prana Functional Manual Therapy is an outpatient orthopedic clinic in downtown Lancaster, PA. We have six physical therapists on staff. We do not employ physical therapy assistants. We are all highly skilled physical therapists who have a passion for individuals maximizing their function to be better for themselves, their families, their passion and their communities. We specialize in patients with end-range dysfunctions like dancers, yoga enthusiasts and those with hyper-mobility syndrome and EDS. We do it all in a space that is open, airy and calm.

<< Show less information about this practice


Nicholas DePace, MD, FACC
Cardiology, Autonomic Dysfunction, POTS, Ehlers-Danlos Syndrome, Chronic Fatigue Syndrome

Practice / Clinic 1
Franklin Cardiovascular Associates, PA
2300 S. Broad Street
Suite 201
Philadelphia, PA 19145

Practice / Clinic 2
Vineland Office
2848 S. Delsea Drive
Vineland, NJ 08460

Practice / Clinic 3
Sewell Office
438 Ganttown Rd
Suite 8 & 9
Sewell, NJ 08080

https://franklincardiovascular.com/
(856) 589-6034
rsantiagofca@outlook.com

>> Show more information about this practice/clinic

Here are some of the services that are offered in the Franklin Cardiovascular:
Hospital Care
Congestive Heart Failure and Cardiac Transplantation Assessment
Transesophageal Echocardiography
Sleep Apnea Testing
Emergency Care
Bi-V Defibrillator Insertion and Monitoring
Pacemaker Insertion and Monitoring
Defibrillator Insertion and Monitoring
Electrophysiologic Testing
Arrhythmia Ablation
Cardiac Catheterization
Peripheral Renovascular Angiography
Peripheral Vascular Angiography
Coronary Angioplasty and Stenting
Cardiac Rehabilitation

<< Show less information about this practice


Aviva Gaskill, PhD
Psychologist

Aviva Gaskill, PhD
308 E. Lancaster Ave
Ste 200
Wynnewood, PA 19096
https://www.avivagaskill.com/
484-679-6299
aviva@avivagaskill.com

>> Show more information about this practice/clinic

I am a clinical psychologist specializing in the treatment of young adults and adults living with chronic and terminal illness and co-occurring psychological concerns. I utilize integrative therapeutic techniques in my practice to aid patients and their families to cope with the process of living with and/or caregiving for individuals with chronic and terminal illness and comorbid mental health issues.

I am also able to offer teleheath services in the following states: AZ, CO, DE, GA, IL, MO, NE, NV, NH, OK, PA, TX, UT, VA, NC.

<< Show less information about this practice


Laura Jacobs, DPT
EDS, POTS, Hyper Mobility Syndrome

Fyzical Therapy & Balance Centers
6402 Carlisle Pike
Mechanicsburg, Pennsylvania 17050
https://www.fyzical.com/mechanicsburg
(717) 591-3000
Kris.Swingle@fyzical.com

>> Show more information about this practice/clinic

FYZICAL Mechanicsburg located in Mechanicsburg, PA is a medical and scientific-based physical therapy and fitness organization with a broad range of expertise. Spelled different because we are different! Founded in collaboration with a medical doctor, physiologists, licensed therapists and service business experts, we provide prescribed physical therapy and medically-based physical fitness. Yet we are much more than your typical physical therapy clinic. Our goal at FYZICAL is to help you discover how to achieve the pinnacle of healthy living, expand your boundaries, feel younger and revitalize your health.

<< Show less information about this practice


Mark Lavallee, M.D., C.S.C.S., F.A.C.S.M.
Family Medicine, Sports Medicine, Orthopedics

UPMC West Shore Hospital,
2005 Technology Drive,
Suite 100,
Mechanicsburg, PA 17050
717-791-2620
lavalleem@upmc.edu

Hospital affiliations:

  • Ass’t Clinical Professor, Pennsylvania State University, College of Medicine, Hershey, PA
  • Adjunct Clinical Professor, Drexel University, School of Medicine, Philadelphia, PA

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

I see all my new Ehlers-Danlos Patient at our West Shore Hospital at our Bone and Joint office which is located in Mechanicsburg, PA (suburb of Harrisburg, PA) I ask patients to supply the following information at least 1 week PRIOR to their scheduled appointment so I may review ahead of their appointment.
1) 1-2 page outline of their symptoms, surgeries, treatment successes and failures
2) relevant operative reports
3) medical genetic consultation or genetic testing
4) clinical recent and relevant imaging”

For those coming from far away, we have a Holiday Inn Express on our medical campus. For local/regional airports, we have our Harrisburg International Airport is less than 10 miles away and BWI is about 1.5 hour drive due south of us.

<< Show less information about this practice


Kenneth Liu, MD, FAANS, FACS
Neurological Surgery, Neurovascular Surgery

Penn State Milton S. Hershey Medical Center
30 Hope Drive
Hershey, PA 17033
http://hmc.pennstatehealth.org/neurosurgery
717-531-3828
kenneth.c.liu.md@gmail.com

Hospital affiliations:

  • Penn State Milton S. Hershey Medical Center

>> Show more information about this practice/clinic

Dr. Liu is a board-certified, fellowship-trained neurosurgeon specializing in open vascular and endovascular neurosurgery and utilizes advanced techniques and technology to tailor treatment to each individual patient. He has extensive experience in the treatment of intracranial hypertension with stents and shunts, particularly in the EDS population, as well as extensive experience in the treatment of strokes and intracranial hemorrhages.

<< Show less information about this practice


Kimberly Poehlmann, PT, DPT
Physical Therapy, Chronic Pain, Hypermobility Disorders

PHOENIX Rehabilitation & Health Services
800 Bethlehem Pike
Suite 2
Sellersville, PA 18960
United States
https://www.phoenixrehab.com/sellersville/
215-257-3900
kpoehlmann@phoenixrehab.com

>> Show more information about this practice/clinic

At PHOENIX, we believe that patient care should be efficient, purposeful and cost effective. These drivers are guided by the principles of employee satisfaction and quality clinical outcomes delivered in a customer friendly and professional health care environment. When you choose PHOENIX, you join a family. Our highly trained staff is dedicated to helping you feel like you again. From your first appointment to your last, you can expect the highest quality of care.

We offer physical therapy services to address pain, weakness, and factors contributing to overall movement dysfunction. Whether you have experienced an acute illness/injury or an overall decline in your ability to participate in daily life, we will perform a comprehensive evaluation in order to design a specific, goal-oriented treatment plan for helping you get back to doing the things you love.

<< Show less information about this practice


Kathleen Zonarich, PT
Physical Therapy

Zonarich Physical Therapy
320 Market Street
Suite 600W
Harrisburg, PA 17101
https://www.zonarichphysicaltherapy.com

717-319-0787
kathleenzonarich@gmail.com

Professional Boards and Affiliations: PA State Board of Physical Therapy
Undergraduate School: Marquette University | BS

>> Show more information about this practice/clinic

Zonarich Physical Therapy is a private practice that provides one-on-one physical therapy services to children and adults including: evaluations, design of therapy programs, therapeutic treatments, patient education, and establishment of HEPs. Kathleen Zonarich, PT has special interests in: Ehlers-Danlos Syndromes, neuro-developmental delays, neurological diseases, and deficiencies in core strength, proprioception, and balance. Treatment plans focus on functional therapy in a timetable that meets the patient’s needs and abilities, rather than insurance timelines. Her functional approach comes from working as a PT for over 25 years with one common goal… getting patients to live the life they desire. To do so, her individualized therapy sessions have a balanced approach that is focused on building functional movement patterns that replicate life.

<< Show less information about this practice


J. Christopher Potts , PT, DPT
Outpatient Orthopedic PT, Myofascial Release, Pilates, Gyrotonic

Healing Motion Physical Therapy & Wellness Center
5840 Ellsworth Avenue
Suite 302
Pittsburgh, PA 15232
https://www.healing-motion.com
412-363-4050
info@healing-motion.com

Professional Boards and Affiliations: PA State Board of Physical Therapy
Undergraduate School: Marquette University | BS

>> Show more information about this practice/clinic

Healing Motion was founded by J. Christopher Potts, PT, DPT in response to a need for comprehensive physical therapy and wellness services all under one roof. He feels strongly that the traditional way physical therapy is provided does not place the patient and their healing process as the first and most important priority. Healing Motion was founded to create a treatment environment that fosters a collaborative relationship between patient and therapist, and allows the therapist the freedom to craft the best possible plan of care for each patient. This requires hour-long, one-on-one therapy sessions with each patient.

When a patient finishes physical therapy at Healing Motion, they leave with a wealth of management techniques and a complete education in their own care. In addition to continuing with a home program, some individuals find it beneficial to have periodic Myofascial Release and massage sessions to maintain the progress they have achieved in therapy. Other patients who have become hooked on Pilates and Gyrotonic continue their study, maintenance, and care at Healing Motion with one of our certified instructors privately or in a group lesson.

<< Show less information about this practice


Rhode Island

Michael Healy, PT, DPT, DOMTP, IOMT, CPT, CSN, MBA
Physical Therapy, Advanced Manual Therapy, Craniosacral Therapy, Sports Medicine

Healy Physical Therapy & Sports Medicine, Inc.
927 B Warren Avenue
East Providence, RI 02914
http://www.healyphysicaltherapy.com
401-438-0905
info@healypt.necoxmail.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Our dedicated staff offers the highest quality of physical therapy services to promote your optimal health and function. We pride ourselves on successful outcomes and outstanding service. Our therapists give their patients their full one-on-one attention during each treatment session.

We accept all major insurances, and offer convenient hours with initial visits seen within 24 -48 hours of referral. We are fluent in English, Portuguese and Spanish.

We offer four convenient locations serving Rhode Island ( RI ) and Southeastern Massachusetts ( MA ) patients as well as out of state and international patients. It would be our pleasure to meet you and have the opportunity to help you achieve your physical therapy goals.

We offer comprehensive and individualized evaluations and treatment sessions, with a focus on patient education, manual (hands-on care), and evidenced-based treatment techniques.

Basically, we improve lives through pain relief. Our team of experts is experienced at helping those who suffer from:

  • Connective Tissue Disorders
  • Ehlers Danlos Syndrome
  • Marfan Syndrome
  • Loeys-Dietz Syndrome
  • Craniocervical Instability
  • Cervical Instability

<< Show less information about this practice


Pradeep Chopra, MD, MHCM
Complex Pain Medical Conditions

Brown M
102 Smithfield Ave.
Pawtucket, RI 02860
http://www.painri.com
401-729-4985 ext 211
snapa102@gmail.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

I have a special interest in managing chronic complex pain conditions. In patients with EDS this means not just understanding the cause of the pain but also figuring out what else is preventing them from functioning or contributing to their difficulty with functioning. It may mean managing fatigue, anxiety and brain fog. Finding solutions with associated conditions such as POTS / Dysauotonomia, Mast Cell Activation Syndrome (MCAS), mitochondrial dysfunction, chiari malformation, cranio cervical instability, tethered cord syndrome, gastrointestinal issues. My job is to put all these together and connect the dots, start treatments and make recommendations.

<< Show less information about this practice


Petra Klinge, MD, PhD, IFAANS
Neurosurgery

Neurosurgery Department, Life span physician group, Rhode Island Hospital
593 Eddy Street
APC 6th floor
Providence, RI 2903
https://brownneurosurgery.com/our-team/
401-464 2411
pklinge@lifespan.org

Hospital affiliations:

  • Rhode Island Hospital
  • Hasbro Childrens Hospital

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

My clinical practice comprises neurosurgical management of Chiari, Syringomyelia and tethered cord and associate Cerebrospinal fluid disorders.

<< Show less information about this practice


Kevin Muldowney, PT
Physical Therapy

Practice / Clinic 1
Muldowney Physical Therapy
667 Atwood Ave
Cranston, RI 02920
http://www.Muldowneypt.com

Practice / Clinic 2
Muldowney Physical Therapy North
261 Main Street
North Smithfield, RI 02896
http://www.muldowneypt.com

401-766-0022
Muldowneypt@gmail.com

>> Show more information about this practice/clinic

Our practice treated over 100 EDS Patients per week. We use both manual therapy techniques to align the joints as well as our own exercise protocol specifically designed for the EDS population to strengthen every joint I. The body.

<< Show less information about this practice


Janelle Shannon, MS, LICSW
Counseling people with Ehlers Danlos Syndrome and other disorders, anxiety, depression, trauma, parenting, and more.
Brightside Behavioral Health LLC
469 Centerville Road
Suite 101
Warwick, RI 02889
https://brightsidebehavioralhealth.com/
(401) 773-3700
Info@brightsidebehavioralhealth.com

>> Show more information about this practice/clinic

Janelle Shannon, MS, LICSW

Janelle has been working with individuals, and families of all ages for 6 years. She provides individual and family therapy using a person centered/strengths-based approach, incorporating a variety of interventions, customizing each session to meet the needs of each individual client, or family, in an effort to help every client achieve their personal goals.

Janelle specializes in working with LGBTQ issues, children and adults with Ehlers-Danlos Syndrome and other chronic illnesses, Autism, special needs, Attention Deficit Hyperactivity Disorder (ADHD), Anxiety, Depression, Post Traumatic Stress Disorder (PTSD), those who have experienced trauma, and parent/child relational issues.

No matter where you are in your life, Janelle is dedicated to providing unconditional support and a reliable ear to help you become the best version of yourself, in a safe, and non-judgmental environment, assisting you as you navigate through your path, guiding you to a healthier place both inside and out.

<< Show less information about this practice


South Carolina

Susan Chalela, MPT
Physical Therapy for EDS and hyper mobility, ergonomics, neuro, ortho, pilates, posture, osteoporosis

Fyzical Therapy and Balance Center Charleston
125 River Landing Dr.
Suite 103
Daniel Island, SC 29492
http://www.fyzical.com/charleston
843-377-8210
schalela@fyzical.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

My practice is an outpatient private practice physical therapy practice specializing in EDS and hyper mobility syndrome. Also see ortho, neuro, posture, ergonomics, pilates and osteoporosis.

<< Show less information about this practice


South Dakota

Brittany Jackson Grueb, DC
Chiropractic, myofascial release, instrument assisted adjustments, trigger point therapy, nutrition and muscle testing
The Wellness Connection
816 6th St
Rapid City, SD 57701
https://www.thewellnessconnectionrc.com/
605-341-9100
drbrittanygrueb@outlook.com

>> Show more information about this practice/clinic

At The Wellness Connection, our chiropractic treatments focus on holistic healing for your body, mind, and being. With a gentle touch, multiple systems of your body can come into balance and provide you with the healing you need. Our clinic was established 15 years ago and Dr. Brittany has 4 years of experience in chiropractic care and 9 years of experience in nutrition. Our clinic is locally and family-owned and operated, so you never get lost in the shuffle of a big organization. We put our clients first, and you always receive personalized care.

<< Show less information about this practice


Tennessee

Seth Banks, MD
Internal Medicine

Heritage Medical Associates – Mount Juliet
660 S. Mount Juliet Road
Suite 100
Mount Juliet, TN 37122
https://www.heritagemedical.com/locations/mt-juliet/
629-255-2071
sbanks@heritagemedical.com

>> Show more information about this practice/clinic

Outpatient primary care practice

<< Show less information about this practice


Jessica Huddleston, LPC-MHSP
Neuropsychological evaluations, Psychological evaluations, Counseling

Practice / Clinic 1
Sabin Behavioral Health
695 President Place
Ste 202
Smyrna, TN 37167
http://www.wardtoday.com

Practice / Clinic 2
Sabin Behavioral Health
404 N Castle Heights Ave
Ste F
Lebanon, TN 37167
615-269-4990
office@sabintn.com

>> Show more information about this practice/clinic

We have been providing psychological services in Middle Tennessee since 1977. Our mission is to offer comprehensive and empirically based psychological evaluations and treatment in a confidential and professional manner. Our practice offers assessments and counseling including individual and group therapy.

We currently have a group especially for people with EDS run by Ms. Jessica Huddleston in both Lebanon, TN and Smyrna, TN.

Ms. Huddleston works with clients of all age ranges beginning at the age of 4. She has a special interest in EDS, OCD and other co-occurring disorders. She is a member of the OCD International Foundation and she recently attended the DYSAUTONOMIA INTERNATIONAL CONFERENCE in Nashville.

<< Show less information about this practice


Tennessee

Tina Simpson, OTR/L
Hand Therapy, UE rehabilitation, occupational therapy.

Tennessee Orthopedic Clinics
9430 Park West Boulevard Suite 202
Knoxville, TN 37923
865-650-8550
Simpsontm@tocdocs.com

>> Show more information about this practice/clinic

Outpatient Physical Therapy clinic specializing in orthopedic conditions and injuries.

<< Show less information about this practice


Texas

Sarah Kelly, MD
Internal Medicine

The Kelly Clinic
5503 FM 359, Suite C
Richmond, TX 77406
http://kellyclinic.net
281-828-0675
doctors@kellyclinic.net

>> Show more information about this practice/clinic

The Kelly Clinic, run by husband-wife team of Drs. Sarah and John Kelly, is an internal medicine practice that specializes in the primary care of adults and adolescents. Dr. Sarah Kelly, residency trained in both internal medicine (Mayo Clinic Arizona) and pathology (University of New Mexico), is affected by hypermobile Ehlers Danlos Syndrome (hEDS) and has a special area of interest and focus on the diagnosis and longterm management of Ehlers Danlos Syndrome, connective tissue disorders and “invisible disability” which is the focus of her practice within the clinic. As patients ourselves, we believe strongly in the healing power of the patient-doctor relationship and getting to the root of medical problems. This is the cornerstone of our practice. Our patients are entitled to thorough, affordable, easily accessible, personalized medical care. We recognize that all patients are unique and special and one-size fits-all approaches do not generally work for all patients. Therefore, rather than employing a more traditional, disease-centered approach to healing, we focus on the individual as a whole, not as a set of symptoms or diseases.

<< Show less information about this practice


Brendan Lee, MD
Skeletal Dysplasias, metabolic and genetic disorders of bone, EDS

The Pamela and David Ott Center of Excellence in Heritable Disorders of Connective Tissue and Ehlers-Danlos Syndrome
One Baylor Plaza
MS BCM225
Houston, TX 77030
https://www.bcm.edu/departments/molecular-and-human-genetics/research/heritable-connective-tissue-disorders
713-798-7820
teble@bcm.edu

>> Show more information about this practice/clinic

The Pamela and David Ott Center of Excellence in Heritable Disorders of Connective Tissue and Ehlers-Danlos Syndrome was established at Baylor College of Medicine to pursue cutting-edge research in the field of heritable connective tissue disorders with focus on Ehlers-Danlos Syndrome.

<< Show less information about this practice


Jennifer Lemons, CGC
HSD/EDS, Cardiomyopathies, Heritable Channelopathies

UTHealth McGovern Medical School
6431 Fannin St.
MSB 3.142
Houston, Texas 77030
United States
713-500–5875
jennifer.m.lemons@uth.tmc.edu

>> Show more information about this practice/clinic

Affiliated with the University of Texas McGovern Medical School, our Medical Genetics clinic sees patients referred for clinical suspicion of EDS/HSD 1 day each week. During that time, we go through an extensive medical history intake, family history, and physical evaluation specific for EDS/HSD. Thorough discussions of the benefits and limitations of available genetic testing options are also discussed. Patients are then referred to appropriate specialists depending on each person’s unique needs and manifestations of the condition, which may include, but is not limited to: Rheumatology, Immunology, Gastroenterology, Cardiology, Hematology, Neurology, and physical therapists familiar with and knowledgeable about hypermobility.

<< Show less information about this practice


Jonathan Parr, PT
EDS, POTS, Mast Cell Activation Disorder, Chiari Malformation, MALS, Bowel Disorders, Dysautonomia, Chronic fatigue syndrome,
Practice / Clinic 1
Parr PT Physical Therapy
7401 Old Bee Caves Rd
Austin, Texas 78735
512-387-4096
http://www.ParrPT.com

Practice / Clinic 2
Parr PT Physical Therapy
5503 FM-359
Richmond, Texas 77406
281-241-7022
http://www.ParrPT.com

Practice / Clinic 3
Parr PT Physical Therapy
24514 Kingsland Blvd
Katy, Texas 77494
281-241-7022
http://www.ParrPT.com

Jonathan@ParrPT.com

>> Show more information about this practice/clinic

Our facility specializes in treating not only EDS, but other associated diagnosis’ commonly found in EDS. Our specialized therapy includes a series of autonomic physical therapy methods that begin to normalize the body’s response to activity and day to day tasks. Specific gut physical therapy that includes hands on techniques, nerve balancing, and spinal alignment to improve and normalize pain and function. Advanced body awareness training that reduces the risk of recurrent injuries, stress on joints, and strain on muscles using a 6-8 week progressive exercise program. We provide patients video based exercise programs to allow patients to practice and familiarize themselves with each exercise. In addition to the program, we provide at home GI dysfunction and postural alignment remedies to speed up the healing process.

<< Show less information about this practice


Kimberly Meredith, PT, DPT, WCS
Physical Therapy, Hypermobility, Pelvic Floor Dysfunction, Pregnancy, Postpartum

S2S Functional Performance
4040 Bryce Lane
Flower Mound, Texas 75077
http://www.s2sperform.com/
940-241-1215
kmeredith@s2sperform.com

>> Show more information about this practice/clinic

I work in an outpatient physical therapy clinic. Our clinic also provides fitness classes including pilates and high intensity interval training. The environment allows our PT patients supervised access to all fitness equipment. I often use pilates based exercises with my patients.
I am a Women’s Health Clinical Specialist with a special interest in treating hypermobility disorders, hip dysplasia, scoliosis, and the female athlete.

<< Show less information about this practice


Sophia Maines, PT, DPT, OCS, CSCS, CMTPT
Chronic Pain Management, Trigger Point Dry Needling, Myofascial Release

Sun Physical Therapy
10601 Pecan Park Blvd #302
Ste A3
Austin, TX 78750
https://www.sunphystherapy.com/
512-522-6447
info@sunphystherapy.com

>> Show more information about this practice/clinic

Personalized, high quality care in Northwest Austin metro area.

<< Show less information about this practice


Utah

Jereme Sommers, DC
Chiropractic, EPIC upper cervical technique

Necks to Heaven LLC
31 N 470 W
American Fork, UT 84003
http://www.neckstoheaven.com
801-980-3388
info@neckstoheaven.com

>> Show more information about this practice/clinic

We specialize in the analysis and specific correction of the upper cervical spine using a sound wave. This helps balance the communication between the brain and body which in turn allows the body to heal and hold the correction for longer and longer periods of time. Muscle balance is incredibly important in the stabilization of joints and can result in alleviation of symptoms related to instability. The adjustment isn’t forceful and does not stress the ligaments. Instead of needing an adjustment every few days you can go several weeks and sometimes months between adjustments. The doctor suffers from EDS as well as has treated and does currently treat many patients with varying degrees of EDS related symptoms. They are the ones who encouraged us to register with the EDS society so that more EDS patients can find us and benefit from our care.

<< Show less information about this practice


Ashley Greenwell, PhD
Psychological adjustment to chronic health conditions

Salt Lake Resilience Co
72 North Pioneer Fork Rd
Salt Lake City, UT 84108
https://theslrc.com
385-339-0022
info@theslrc.com

>> Show more information about this practice/clinic

The SLRC is a psychology practice co-located with other healthcare providers to offer science-based, compassionate care to improve the lives of individuals with chronic health conditions, including DGBIs, Ehlers-Dahlos. It is located in SLC, but Dr. Ashley Greenwell is licensed to offer psychology services in Arizona, Colorado, Delaware, Georgia, Illinois, Missouri, Nebraska, Nevada, New Hampshire, Oklahoma, Pennsylvania, Texas, Utah, and Virginia.

<< Show less information about this practice


Vermont

 

Dianne Villani, APRN
Family Medicine, Functional Medicine

Trillium Integrative Medicine
366 Dorset St
Suite 10
South Burlington, VT 05403
http://www.trilliumvt.com/
802-654-3562
dianne@trilliumvt.com

>> Show more information about this practice/clinic

Trillium Integrative Medicine is Vermont’s only certified Functional Medicine clinic. We treat complex chronic illness by looking for root causes, considering the complex web of interactions in a patient’s history, genetic makeup, physiology, and lifestyle that can lead to illness.

We integrate traditional Western medical practices with what are sometimes considered “alternative” or “integrative” medicine. When appropriate, we prescribe pharmaceutical medications to alleviate symptoms. Then we work with our patients to create wellness through nutrition, diet, and exercise; use of the latest laboratory testing and other diagnostic techniques; and prescribed botanical medicines, supplements, therapeutic diets, detoxification programs, or stress-management techniques.

<< Show less information about this practice


Virginia

Matthew M. Buchanan, MD
Orthopaedic Foot and Ankle Surgery

Nirschl Orthopaedic Center
1715 N George Mason Drive
Suite #504
Arlington, VA 22205
https://www.nirschl.com/
703-525-2200
DrBuchanan@NirschlOrthopaedic.com

Hospital affiliations:

  • Virginia Hospital Center
  • Inova Fairfax Hospital
  • Harbor Heights Surgical Center

>> Show more information about this practice/clinic

Dr. Matthew Buchanan is an Orthopaedic Surgeon who has dedicated his practice to the care of the Foot and Ankle. Dr. Buchanan has received numerous accolades, including selection by his peers as a Washingtonian Magazine Top Doctor as well as an Arlington Magazine Top Vote Getter: Best Orthopaedic Surgeon. Dr. Buchanan was an orthopaedic foot and ankle consultant to The Washington Ballet and served as an Assistant Clinical Professor at Georgetown University.

He completed his Bachelor of Science degree at Duke University, earning the Dean’s List Award. He received his medical degree from The Ohio State University College of Medicine where he was awarded the Department of Surgery Jonasson Prize for “Exceptional Performance and Dedication to Surgery”. Dr. Buchanan completed his orthopaedic surgery residency at West Virginia University where he served as Chief Resident. He then went on to pursue further fellowship training in foot and ankle at the prestigious Orthopaedic Foot and Ankle Center in Columbus, Ohio.

He has extensive experience in non-surgical and surgical treatment of EDS and HSD patients.

<< Show less information about this practice


Kristen Hicks, PT
Physcial Therpay

Orthopedic Physical Therapy
2000 Bremo Rd. Suite 202
Richmond, VA 23226
http://www.orthopedicptinc.com
804-285-0148
kristen@orthopedicptinc.com

>> Show more information about this practice/clinic

Orthopedic Physical Therapy is a private practice out-patient setting committed to one on one patient care through a combination of manual and exercise based techniques. We understand that every patient is different and that the whole body is interconnected, therefore provide individualized treatment. We have been working with hEDS and HSD patients for many years and are committed to further understanding, treating and creating awareness of hypermobility problems and their related issues.

<< Show less information about this practice


Jordan Cannon, LMT
Massage Therapy

Nimbus Massage
1719 W. Main St.
Richmond, VA 23220
https://nimbusmassage.com
804-714-7932
jordan@nimbusmassage.com

>> Show more information about this practice/clinic

Nimbus Massage specializes in massage and complementary therapies for pain relief with a special focus on chronic pain. All of our therapists have or are working toward Board Certification and have pursued continuing education in therapeutic massage. We do in-house training on various chronic pain conditions including EDS/hypermobility.

<< Show less information about this practice


Kristen Hicks, PT
Physcial Therpay

Orthopedic Physical Therapy
2000 Bremo Rd. Suite 202
Richmond, VA 23226

http://www.orthopedicptinc.com
804-285-0148
kristen@orthopedicptinc.com

Education

  • The George Washington University | BS
  • Shenandoah University | MPT

>> Show more information about this practice/clinic

Orthopedic Physical Therapy is a private practice out-patient setting committed to one on one patient care through a combination of manual and exercise based techniques. We understand that every patient is different and that the whole body is interconnected, therefore provide individualized treatment. We have been working with hEDS and HSD patients for many years and are committed to further understanding, treating and creating awareness of hypermobility problems and their related issues.

<< Show less information about this practice


Christopher Johnson, MSW, LCSW, BCD
Psychology, Psychotherapy, Substance Use Disorders, Sexual Trauma, Chronic Pain, Co-Occuring Disorders

Therapy by Chris
11350 Random Hills Road, 8th Floor
Fairfax, VA 22030
https://www.therapybychris.com/

>> Show more information about this practice/clinic

I am an interactive, person-centered psychotherapist. My therapeutic approach is to provide support and pragmatic feedback to help my clients effectively address personal life challenges. I integrate complementary methodologies and techniques to offer a highly personalized approach tailored to each client. With compassion and understanding, I work with each individual to help build on their strengths and attain the personal growth they desire. My wife has Classical EDS, so I have first-hand experience in the challenges faced by those suffering with EDS, and the frustration involved with this poorly understood diagnosis by so many medical providers. I do not currently take insurance, however I can assist with filing out of network medical claims if your plan offers this, and I also offer reasonable rates of $175 for an initial consultation and assessment, and $125 for follow-up psychotherapy sessions. I offer 10% off for active duty military, as well as Ehlers-Danlos Society members. Please check out my website for more information: www.therapybychris.com. I look forward to hearing from you!

<< Show less information about this practice


Bryce Lee, DPT
Physical Therapy, Supervised Strength Training

StrengthSpace, LLC
1512 Technology Drive
Suite 102
Chesapeake, VA 23320
http://www.strength-space.com
757-828-5627
Info@strength-space.com

>> Show more information about this practice/clinic

StrengthSpace is a supervised strength training cofounded by A physical therapist facility focused on joint friendly muscle strengthening. Strengthspace also serves as a shared treatment space for physical therapists who see private clients and enjoy access to the specific equipment available. Dr. Bryce Lee, DPT, Cofounder of StrengthSpace, also practices physical therapy independently out of the shared space alongside other private physical therapists.

<< Show less information about this practice


Amanda Miller Avila, PT, DPT, WCS
Physical Therapy, Pelvic and Abdominal Health

Progress Physical Therapy – Midlothian
2436 Colony Crossing Place
Suite 2
Midlothian, VA 23112
http://www.progressphysicaltherapy.com/
804-918-8515
amiller@progressphysicaltherapy.com

>> Show more information about this practice/clinic

Progress Physical Therapy – Midlothian is an Abdominal and Pelvic Health speciality center. We treat pediatrics through geriatrics, with an emphasis on one-on-one individualized manual and exercise therapies including neuromuscular re-eduation and biofeedback. We have a interest in hypermobility disorders in pediatrics as well as managing EDS symptoms during pregnancy and the postpartum period.

<< Show less information about this practice


Kristina Page, LMT
Massage Therapy

Nimbus Massage
1719 W. Main St.
Richmond, VA 23220
http://nimbusmassage.com
804-714-7932
kristina@nimbusmassage.com

>> Show more information about this practice/clinic

Nimbus Massage specializes in massage and complementary therapies for pain relief with a special focus on chronic pain. All of our therapists have or are working toward Board Certification and have pursued continuing education in therapeutic massage. We do in-house training on various chronic pain conditions including EDS/hypermobility.

<< Show less information about this practice


Robin Zachary, LMT
Massage Therapy

Nimbus Massage
1719 W. Main St.
Richmond, VA 23220
http://nimbusmassage.com
804-714-7932
robin@nimbusmassage.com

>> Show more information about this practice/clinic

Nimbus Massage specializes in massage and complementary therapies for pain relief with a special focus on chronic pain. All of our therapists have or are working toward Board Certification and have pursued continuing education in therapeutic massage. We do in-house training on various chronic pain conditions including EDS/hypermobility.

<< Show less information about this practice


Sarah Houhoulis, DC
Chiropractic, Pelvic Floor Rehab, Strength Training

Anatomie Chiropractic
1320 Vincent Place
Mclean, VA 22101
http://www.anatomiechiropractic.com
571-317-1894
sarahhouhoulisdc@gmail.com

Professional Boards & Affiliations:

  • American Chiropractic Association

>> Show more information about this practice/clinic

Dr. Sarah founded Anatomie Chiropractic in 2019 with the goal of creating a safe space for patients to heal, become independent in their health, and get strong. All appointments at Anatomie are one-on-one, and come with a specialized rehab exercise program for patients to continue their progress at home.
Dr. Sarah is a powerlifter, and utilizes a combination of manual therapies like Active Release Technique or dry needling with customized rehab exercises, designed to retrain the brain and body to move optimally. Dr. Sarah has taken many courses to be able to specialize in pelvic floor therapy, helping patients overcome pelvic floor dysfunction like prolapse, urinary and fecal incontinence, painful sex, and other conditions.
While Anatomie Chiropractic is not in-network with any insurance companies, Dr. Sarah provides a superbill after each visit for the patient to submit to their insurance company. Her prices are very reasonable and she offers different payment options for accessibility.

<< Show less information about this practice


Lisa Barr, MD
Physical Medicine & Rehabilitation, Pain Management

Barr Center for Innovative Pain & Regenerative Therapies
933 First Colonial Rd
Suite 200
Virginia Beach, Va 23454
https://www.barrcenter.com/
757-578-2260
Info@barrcenter.com

Professional Boards & Affiliations:

  • Board Certified Physical Medicine and Rehabilitation
  • Board Eligible Functional Medicine through IFM
  • Member of the Spinal Injection Society

>> Show more information about this practice/clinic

We have over a 30 year history of treating EDS patients and those with hyper-mobility issues . We offer hands on therapies such as Osteopathic manipulation as well as prolotherapy and other regenerative options. Our medical staff is trained in Functional Medicine and our approach is holistic and empowering. We work with a network of other providers of the healing arts to provide a comprehensive approach to managing people with complex conditions such as EDS.

<< Show less information about this practice


Patrick Agnew, DPM, FACFAS, FACFAP
Foot and ankle medicine and surgery, all ages

Coastal Podiatry Group, Eastern Virginia Medical School
6477 College Park Square suite 108
Virginia Beach, VA 23464-3611
http://www.coastalpodiatrygroup.com – We are aware that this website is currently showing a fault and are awaiting updated details. We apologise for any inconvenience.
757-523-0414
pagnw@aol.com

Hospital Affiliations:

  • SENTARA Norfolk
  • Children’s Hospital of the Kings Daughters
  • Chesapeake Regional Medical Center

Professional Boards &  Affiliations:

  • American Board of Foot and Ankle Surgery

>> Show more information about this practice/clinic

After completing pre-medical studies at Montgomery College and Old Dominion University, Dr. Agnew attended the Temple University School of Podiatric Medicine (formerly the Pennsylvania College of Podiatric Medicine). The school is recognized for consistently demonstrating the highest board scores and residency appointments of the nine United States schools of Podiatry. The four-year curriculum parallels general medical schools for the first two years, then becomes specialized with the latest information on diagnosis and treatment of all disorders of the foot and leg. 

<< Show less information about this practice


Cheryl Harris, MPH, RD
Digestive Health

Harris Whole Health
9675 A Main Street
Fairfax, VA 22031
https://www.harriswholehealth.com/
5712718742
rd@harriswholehealth.com

Profesional Boards & Affiliations:

  • Academy of Nutrition and Dietetics

>> Show more information about this practice/clinic

Specialist in digestive disorders; worked with EDS/HSD patients for 15 years.

<< Show less information about this practice


Washington

William Ericson, MD
Orthopedic Surgery, Hand Surgery, Upper Extremity Surgery

Ericson Hand and Nerve Center
6100 219th St SW
Suite 540
Mountlake Terrace, WA 98043-2222
http://www.ericsonhand.com
4257764444
ericsonhandcenter@icloud.com

Hospital affiliations:

  • Evergreen Hospital Medical Center, Kirkland, WA

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Exceptional education, training and experience in the evaluation and treatment of hand/wrist/arm pain, particularly chronic problems that do not show on standard diagnostic tests: ‘RSI,’ painful joint instability, peripheral nerve problems, tendonitis, arthritis, trauma; large operative experience in patients with connective tissues disorders including the Ehlers Danlos Syndromes; previous failed hand surgery; minimally invasive surgery; innovations in hand surgery.

<< Show less information about this practice


Kathleen Johnson, DNP, FNP, PMHS
ADHD, Autism, Developmental Disorders, Behavioral Health, Mold/Mycotoxin Illness

Yellow Brick Clinic: Integrative ADHD, Autism, Developmental and Behavioral Health
1800 Dayton Ave NE
Renton, WA 98056
http://www.yellowbrickclinic.com
Phone: 425-736-9609
Fax: 833-631-6941
kat@yellowbrickclinic.com

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

Yellow Brick Clinic opened last year to meet the need of children, youth, young adults with Autism and ADHD to evaluate and treat along with co-occurring mental health challenges. We have an Integrative Medicine approach, where we use nutrition and holistic support along with medications. A large population that I see has joint hypermobility, and so we also order appropriate genetic testing. We are trying to build a supportive network in the community by collaborating with genetics, cardiology, and specialists to care for patients who have autism, ADHD AND connective tissue disorders, such as EDS. We are not a PCP but we do collaborate with Family Providers to help patients access the best care.

<< Show less information about this practice


JoAnn Keller, OTR/L, CHT
Hand Therapy, Custom Splints (Orthoses), Occupational Therapy

Hands for Living
19221 36th Ave W Ste 213
Lynnwood, WA 98036
https://www.handsforliving.com
425-368-7943
office@handsforliving.com

>> Show more information about this practice/clinic

Hands for Living is a specialized hand therapy clinic that specializes in care for Ehlers-Danlos patients by making custom hand supports, measuring for Silver Ring Splints, and providing hand therapy services for shoulder, arm, and hand problems. We are Certified Hand Therapists (CHTs) and work closely with local and national physicians, surgeons, physical therapists, as well as other Certified Hand Therapists.

We are also preferred providers for custom hand supports after surgery for patients of Dr. William Ericson, a hand surgeon who specializes in the treatment of hyper mobility syndromes and the conditions that affect the hand, wrist, and elbow.

<< Show less information about this practice


Sherene Shalhub, MD MPH FACS
Vascular Surgeon

Vascular and Endovascular Surgery Clinic at UWMC
1959 NE Pacific St., 1st Floor
Seattle, WA 98195
206-598-4477
shalhub@uw.edu

>> Show more information about this practice/clinic

Director, Multidisciplinary Vascular Genetics Clinic
Associate Professor of Surgery, Division of Vascular Surgery
University of Washington School of Medicine
Seattle, Washington

<< Show less information about this practice


Ian Wallace, MS, CGC
Genetic Counseling, EDS diagnosis

Pullman Regional Hospital
1620 SE Summit
Pullman, WA 99163
https://pullmanregional.org/patient-care/services/genetic-counseling
509-332-5106
ian.wallace@pullmanregional.org

>> Show more information about this practice/clinic

I offer both telehealth and in-person appointments, so you don’t have to travel to Pullman, WA, if it’s not convenient. Wait-times for an appointment are generally 2-3 weeks.

Genetic counselors provide diagnostic testing, information, and support to families who may be at risk for a variety of inherited conditions and those who have a personal or family history of birth defects or genetic disorders. They identify families at risk, investigate the medical problems present in the family, interpret information about the disorder, analyze inheritance patterns and risks of recurrence, and review available genetic testing options with the family.

Genetic counseling is relevant to every medical specialty, however it plays an especially critical role in: connective tissue disorders, obstetrics, pediatrics, oncology, research, and testing.

<< Show less information about this practice


Kelly Brown, PT, DPT, OCS
Physical Therapy – Orthopedic, Pelvic Floor

Bellevue Physical Therapy with RET PT Group
11711 NE 12th St, Suite 3A
Bellevue, Washington 98005

https://www.retptgroup.com/
425-454-1405
kbrown@retpt.com

>> Show more information about this practice/clinic

Outpatient Physical Therapy clinic located in Bellevue, Wa.

<< Show less information about this practice


Ilene Ruhoy, MD, PhD
Neurology

Center for Healing Neurology
2900 NE Blakeley Street
Suite C
Seattle, WA 98105
206-379-1213
ilene@centerforhealingneurology.com

Professional Board Affiliations:

  • ABPN

>> Show more information about this practice/clinic

My practice has focused on complex and chronic neurological manifestations of disease.

<< Show less information about this practice


Wisconsin

Linda Bluestein, MD
Anesthesiologist, Pain Management, Integrative Medicine

Hypermobility MD
225 S. Executive Drive
Brookfield, WI. 53005
https://www.hypermobilitymd.com
715-600-1722
BendyBodiesPodcast@gmail.com

Hospital affiliations:

  • Aspirus Wausau Hospital

>> Show more information about this practice/clinic

Board-certified anesthesiologist, integrative medicine physician and former ballet dancer, Linda Bluestein, M.D., specializes in treating dancers and other athletes at increased risk of hypermobility disorders. She is the founder and host of the podcast, “Bendy Bodies with the Hypermobility MD” and also founded and is a former cohost of the podcast “Hypermobility Happy Hour”. Dr. Bluestein is a contributing author for the book, Disjointed – Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Through her private practice, Hypermobility MD, Dr. Bluestein is helping people from all over the country live better lives.
Dr. Bluestein completed her anesthesiology residency at the Mayo Graduate School of Medicine after receiving her Medical Degree from the University of California, Los Angeles School of Medicine and is a member of the International Association for Dance Medicine and Science, the Performing Arts Medicine Association, and the Resources Committee for the Dance Healthy Alliance of Canada. She has published a number of original research papers and regularly presents her work at national and international meetings. Dr. Bluestein serves as an assistant professor at the Medical College of Wisconsin, Central Wisconsin where she is the course director for the RISHI Healer’s Art Program.

<< Show less information about this practice


Sumana Koduri, MD
Urogynecology, Female Pelvic Medicine and Reconstructive Surgery

Medical College of Wisconsin
Froedtert Memorial Lutheran Hospital clinics
9200 W. Wisconsin Ave.
Milwaukee, WI 53226
https://obgyn.mcw.edu/
414-805-8603
info@obgyn.mcw.edu

Hospital affiliations:

  • Froedtert Memorial Lutheran Hospital, Milwaukee, WI, USA
  • St. Joseph’s Hospital – West Bend, Wisconsin, WI, USA

This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.

>> Show more information about this practice/clinic

https://obgyn.mcw.edu/services/urogynecology/

<< Show less information about this practice


Nathan Rudin, MD, MA
Physical Medicine and Rehabilitation, Pain Medicine

UW Health Pain Management Clinic
1102 S Park Street, 3rd Floor
Madison, WI 53715
http://www.uwhealth.org/painclinic
608-263-9550

>> Show more information about this practice/clinic

I specialize in Pain Medicine, in the context of Physical Medicine and Rehabilitation. At our clinic we focus on treating the whole person in order to improve function and quality of life. I have special interest in EDS and other hypermobility disorders, and have worked with EDS patients for over 20 years. Our in-house team includes other rehab physicians, anesthesiologists, nurses, physician assistants, physical therapists, psychologists, and psychiatrists. We also perform EMG testing, trigger point injection, and a full range of interventional procedures.

Through UW Health we work with specialists in cardiology/vasovagal disorders/POTS, allergy/immunology, orthotics, gastroenterology, neurology, neurosurgery, genetics, and other areas of importance to the EDS patient.

I teach locally, regionally and nationally on pain management topics, and am working to increase awareness and treatment access for individuals with EDS and their families.

<< Show less information about this practice


Anthony Penton, Pre-Licensed Professional Counselor 
Mental healthcare

On Purpose Psyche
1102 S Park Street, 3rd Floor
Madison, WI 53715
https://www.onpurposepsyche.com/
920-933-9256
pentoncounseling@gmail.com

>> Show more information about this practice/clinic

I am a Clinical Mental Health Counseling program student at Northwestern University. My graduation date is April 2021. The profession’s emphasis on growth, wellness, empowerment, and normal development is important to me. I work with clients of all ages ranging from children to older adults. My preparation for this career comes from a school that is certified by the Council for Accreditation of Counseling and Related Educational Program (CACREP). Since I am a pre-professional, my sessions are at no cost. My approach to psychotherapy is primarily through psychodynamics, DBT, and Motivational Interviewing. I am very familiar with EDS since my significant other has vascular type EDS. She is a spoonie and a tubie.

The practice is in Oconomowoc, WI. For those who prefer it or those who are less able to make it to one-on-one sessions, I am able to work through telehealth. Among other things, I am working to build EDS/chronic illness groups where people can gather for support. Caregivers or loved ones of those who suffer from chronic illnesses should not hesitate to reach out. My personal experience with vEDS aids me in providing care for the loved ones of those who have EDS.

<< Show less information about this practice

 


Carmine Van Deven, DO
Family Medicine, Neuromusculoskeletal Medicine/Osteopathic Manipulative Medicine (NMM/OMM)

Carmine Van Deven DO, PC
316 O Ave, 
Anacortes
WA 98221
http://www.drvandeven.com/
610-345-7045, Fax 610-590-7745
drvandeven@drvandeven.com

>> Show more information about this practice/clinic

Structure determines function, and vice versa. Thereby, both need to be addressed to create the greatest potential for health and healing.

My practice is a synergistic blend of Osteopathy & Functional Medicine – both aim to identify the cause of disease. Osteopathy applies our understanding of anatomy and physiology into a gentle hands-on treatment. For EDS patients, it is especially helpful in resolving physical strain and pain throughout the body, but is also known to relax the nervous system, improve digestion, lung function, immune function, and much more.

Functional Medicine addresses our unique biology, hormones, digestion, immune function, nutrition, genetics, and lifestyle. All of which help to maximize the benefit from the osteopathic manipulation and provide a full, enjoyable life.

<< Show less information about this practice


Telehealth

Alexann Masiko-Meyer, LCMHC
Psychotherapy

Alexann Masiko-Meyer / Summer Session Counseling
Teleheath services – Available in all cities in the USA, Canada, China, Japan, New Zealand, UK, UAE.
http://www.SummerSessionsCounseling.com
609-504-3468
alexann@summersessionscounseling.com

>> Show more information about this practice/clinic

With a specialty in anxiety, depression, life transitions for all, I also have hEDS and can deeply empathize with how to manage, and am very open to supporting others in their therapeutic process. I provide extensive telehealth / telepsychotherapy for clients in North Carolina, Texas and New Jersey! I also do evaluations for ESA’s.

<< Show less information about this practice


Kathleen Zonarich, PT
Physical Therapy

Zonarich Physical Therapy
320 Market Street
Suite 600W
Harrisburg, PA 17101
https://www.zonarichphysicaltherapy.com

717-319-0787
kathleenzonarich@gmail.com

Professional Boards and Affiliations: PA State Board of Physical Therapy
Undergradues School: Marquette University | BS

>> Show more information about this practice/clinic

Zonarich Physical Therapy is a private practice that provides one-on-one physical therapy services to children and adults including: evaluations, design of therapy programs, therapeutic treatments, patient education, and establishment of HEPs. Kathleen Zonarich, PT has special interests in: Ehlers-Danlos Syndromes, neuro-developmental delays, neurological diseases, and deficiencies in core strength, proprioception, and balance. Treatment plans focus on functional therapy in a timetable that meets the patient’s needs and abilities, rather than insurance timelines. Her functional approach comes from working as a PT for over 25 years with one common goal… getting patients to live the life they desire. To do so, her individualized therapy sessions have a balanced approach that is focused on building functional movement patterns that replicate life. Telehealth P.T. services are available, as permitted by state regulations.

<< Show less information about this practice


Advanced Tele-Genetic Counseling, CGC
Genetics

Advanced Tele-Genetic Counseling (AT-GC)
4330 Glenview Ave, Ste 111
Glenview, KY 40025
http://at-gc.com
888-252-2842
general@at-gc.com

Professional Boards and Affiliations:

  • American Board of Genetic Counseling (ABGC)
  • National Society of Genetic Counselors (NSGC)

>> Show more information about this practice/clinic

AT-GC is a telemedicine-based genetic counseling practice providing access to comprehensive genetic counseling from certified professionals across North America.

<< Show less information about this practice


Aviva Gaskill, PhD
Psychologist

Aviva Gaskill, PhD
I am able to offer teleheath services in the following states: AZ, CO, DE, GA, IL, MO, NE, NV, NY, NH, OK, PA, TX, UT, VA, NC.
https://www.avivagaskill.com/
484-679-6299
aviva@avivagaskill.com

>> Show more information about this practice/clinic

I am a clinical psychologist specializing in the treatment of young adults and adults living with chronic and terminal illness and co-occurring psychological concerns. I utilize integrative therapeutic techniques in my practice to aid patients and their families to cope with the process of living with and/or caregiving for individuals with chronic and terminal illness and comorbid mental health issues.

I recently became a member of the PSYPACT for psychologists licensed in some states within the US. Now, I am licensed in NY, PA and can legally see patients in the following other states:

Arizona – AZ HB 2503 (Enacted on 5/17/2016)
Colorado – CO HB 1017 (Enacted 4/12/2018)
Delaware – DE HB 172 (Enacted 6/27/2019)
Georgia – GA HB 26 (Enacted 4/23/2019)
Illinois – IL HB 1853 (Enacted 8/22/2018)
Missouri – MO HB 1719/MO SB 660 (Enacted 6/1/2018)
Nebraska – NE L 1034 (Enacted 4/23/2018)
Nevada – NV AB 429 (Enacted on 5/26/2017)
New Hampshire- NH SB 232 (Enacted 7/10/2019)
Oklahoma – OK HB 1057 (Enacted 4/29/2019)
Pennsylvania – PA SB 67 (Enacted 5/8/2020)
Texas – TX HB 1501 (Enacted 6/10/2019)
Utah – UT SB 106 (Enacted on 3/17/2017)
Virginia – VA SB 760 (Enacted 4/11/2020) *Effective 1/1/2021
North Carolina – NC 361 (Enacted 7/1/2020) *Effective 3/1/2021

<< Show less information about this practice