At the Ehlers-Danlos Society, our ambassadors are advocates, storytellers, and changemakers who shine a light on the challenges and triumphs of living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). They amplify voices, drive meaningful awareness, and create impactful change across all borders.
What our ambassadors do
Ambassadors for The Ehlers-Danlos Society serve as dedicated representatives of the organization, working to raise awareness, foster inclusivity, and provide support for individuals and communities affected by EDS and HSD. Their responsibilities are, but not limited to:
Meet our ambassadors
Matteo Ferrer-Aza
We are proud to welcome professional racing driver Matteo Ferrer-Aza as an ambassador for The Ehlers-Danlos Society. Through the “Drive for EDS and HSD” campaign, Matteo is using his platform to raise awareness of delayed diagnoses, invisible pain, and barriers to care that too many in the EDS and HSD community face. He races for every person who’s been told their symptoms are in their head. He races for those who can’t.
Connect with our ambassadors
Want to connect with the incredible individuals making waves in the Ehlers-Danlos community? Follow their stories, share their mission, and join them in spreading awareness and hope worldwide.
The Ehlers-Danlos Society Ambassador Program is an initiative designed to inspire awareness, advocacy, and community support for individuals living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Our ambassadors are volunteers sharing their personal experiences and perspectives; their views do not necessarily reflect the official policies or positions of The Ehlers-Danlos Society. For medical advice or support, please consult a healthcare professional.
