June is Scoliosis Awareness Month. Did you know that scoliosis is a common feature in several types of Ehlers-Danlos syndrome (EDS)?
Scoliosis is a condition where the spine curves sideways, forming an “S” or “C” shape. While it can occur in the general population, it’s more common in individuals with certain types of EDS, often presenting earlier and progressing more rapidly.
Kyphoscoliosis is a condition that involves both kyphosis (a forward curve of the upper spine) and scoliosis (sideways curvature of the spine).
Read on to learn how scoliosis manifests in different EDS types, how it’s diagnosed, and the treatment options available.
Arthrochalasia EDS (aEDS)
Scoliosis and kyphoscoliosis are seen in people with aEDS. These may be present at birth or develop in early childhood.
Classical EDS (cEDS)
Scoliosis and kyphoscoliosis both occur in people with cEDS. Regular monitoring helps manage progression.
Hypermobile EDS (hEDS) and Hypermobility Spectrum Disorders (HSD)
People with hEDS and HSD may develop scoliosis. Poor posture can lead to postural kyphosis, which can be treated by a physical therapist.
Kyphoscoliotic EDS (kEDS)
Kyphoscoliosis in kEDS is usually present at birth or early childhood and tends to be severe and progressive. Early diagnosis is essential to slow progression, prevent complications, and improve quality of life.
Musculocontractural EDS (mcEDS)
mcEDS often presents with scoliosis and kyphoscoliosis. Orthopedic care, physical therapy, and, in some cases, surgery are necessary to improve mobility.
Spondylodysplastic EDS (spEDS)
Kyphoscoliosis is common in spEDS with 𝘉3𝘎𝘈𝘓𝘛6 variants. It may be present at birth or develop early, and is often progressive.
Diagnosis typically involves physical exams and imaging studies to assess spinal curvature. Treatment varies based on severity and EDS type:
Access to care differs globally, and some regions face delays in diagnosis and treatment. Scoliosis in EDS and HSD needs early recognition and care. Share to raise awareness this #ScoliosisAwarenessMonth
Learn more about the different types of EDS and HSD.
