Ear, nose, and throat (ENT) specialists at a laryngology clinic in the United Kingdom have found an increase in referrals for patients with Ehlers–Danlos syndromes (EDS) experiencing symptoms of:
They began a cross-sectional observational study looking at the severity of throat symptoms and how often they were happening, hoping to gather insights to improve the assessment of these issues and treatment for those struggling.
As the largest study of its kind in terms of exploring throat symptoms of EDS and hypermobility spectrum disorders (HSD) and self-management strategies, this work provides a unique and valuable contribution and has generated interest from leading healthcare practitioners.
Prior to this study, throat symptoms of EDS and HSD had not been well-reported.
Thanks to everyone who participated in the research survey shared through The Ehlers-Danlos Society’s social media channels and CONNECT newsletter in 2021. The paper has been published this week and can be read here. It is open access.
