2022 Global Learning Conference

Registration Options

2022 Hybrid Global Learning Conference

August 3-6, 2022

We are delighted to welcome you to register for our 2022 Global Learning Conference! We will be hosting this exciting hybrid event, both in-person in Scottsdale, Arizona, USA, and with a virtual attendance option for people to join worldwide. 

  • The conference theme is “EDS and HSD Through a Lifetime” and will feature presentations, case studies, and panel discussions led by experts on the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). An exciting, all-new agenda includes topics and tracks covering pregnancy and childbirth, children and teenagers, sex and intimacy, and aging.⁠

    Presentations will include: ⁠
  • Gastrointestinal and Urogynecological Concerns
  • Autonomic Dysfunction
  • Bruising, Bleeding, and Skin
  • Head and Neck Concerns in EDS and HSD
  • Orthopedic Management
  • Pain Medication and Alternative Treatments
  • Sex and Intimacy
  • Pregnancy and Childbirth
  • Holistic Approaches to Care for Children & Adolescents with Hypermobility & EDS⁠
  • Keeping Children Active
  • The Challenges of Living with a Rare Disorder
  • Things to Assist in Daily Life with a Chronic Condition

The agenda can be viewed in detail below.

Continuing Education credits available for healthcare professionals

Healthcare professionals including physicians, nurses, and allied health professionals, are welcome to join sessions both in-person and virtually, to learn more about EDS and HSD and how to improve the management and care for their patients. 21 CME/CEU/CE credits will be available for healthcare professionals to claim for sessions that are viewed LIVE.

Junior Zebras program for kids and teens 6-17

Our Junior Zebras program, held concurrently with the main program schedule in-person in Arizona, will allow our younger attendees aged 6-17 the chance to make friends as they learn more about their condition in a fun and age-appropriate environment.

 

Venue Details

JW Marriott Scottsdale Camelback Inn Resort & Spa is an award-winning hotel located at the base of Camelback Mountain in Paradise Valley.

JW Marriott Scottsdale Camelback Inn Resort & Spa,
5402 E Lincoln Drive,
Scottsdale, AZ 85243,
USA

Hotel rooms at The Ehlers-Danlos Society group rate are now sold out. For any accommodation inquiries please email .

Color Coded Comfort System

To ensure you are as comfortable as possible being back at in-person events we will offer a color-coded comfort system. Green, amber, and red wristbands will be available should you wish to communicate if and how you would like to socially distance with fellow attendees. Your wristbands will be offered to you at the registration desk upon arrival.

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EDS ECHO

In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO.  Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

AMA Designation Statement

Project ECHO® designates this live activity for a maximum of 21 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Disclosure Statement

Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an ineligible company.

None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

Dr. Alan Hakim, Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Adrijana Kekic, Dr. Alan Pocinki, Dr. Chad Shepherd, Dr. Chip Norris, Dr. Christina Laukaitis, Constance O’Connor, Dr. Dacre Knight, Dr.Ellen Elias, Emily Block, Emily Rich, Dr. Heidi Collins, Dr. Irman Forghani, Dr. Isabelle Brock, Jacqui Main, Dr. Jane Simmonds, Jeannie Di Bon, Jennifer Glayzer, Dr. Jessica Salyers, Dr. John Heusinkveld, Dr. Jordan Tishler, Dr. Keren Machol, Laurie Bilyeu, Dr. Leslie Russek, Dr. Mark Lavallee, Prof. Martin Birchall, Maureen Kelly Galindo, Dr. Melissa Russo, Dr. Natalie Blagowidow, Natasha Silverman, Dr. Nimish Mittal, Dr. Paldeep Atwal, Patricia Stott, Dr. Patrick Agnew, Dr. Rebecca Schaffer, Dr. Sally Pezaro, Dr. Sarah Schwartz, Scarlett Eagle, Dr. Serwet Demirdas, Dr. Shar Hashemi, Sophie Roberts, Dr. Sumana Koduri, Dr. William Ericson, Emma-Louise Williams, Susan Hawkins.

The following planners/presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.

  Nature of Relationship Name of Ineligible Company
Dr. Anne Maitland Speaker Blueprint Medicines
Dr. Clair Francomano Consultant Acer Therapeutics
Dr. Hal Dietz Advisor, Individual Stocks and Stock Options, Nonexecutive Director, Consultant, Royalties or patent beneficiary GlaxoSmithKline, Aytu BioPharma
Kevin Muldowney Ownership Interest Muldowney Publishing
Kathleen Muldowney Ownership Interest, Royalties, or Patent Beneficiary Muldowney Publishing
Dr. Laura Pace Advisor Mauna Kea
Dr. Gisela Chelimsky Ownership Interest PainStakers, LLC
Dr. David Saperstein Advisor, Speaker CSL-Behring, Argenyx, Grifols 
Dr. James Kustow Consultant, Speaker Flynn Pharma
Dr. Fraser Henderson Consultant LIFE SPINE Inc.

All of the relevant financial relationships listed for these individuals have been mitigated.

Thank You to Our Event Sponsors!

Partner Sponsor

Silver Ring Splint Company

In 1974, occupational therapist Cynthia Garris was forced to take a new look at splint therapy – in that year, she was diagnosed with Rheumatoid Arthritis. She had long believed in the value of splinting, but soon realized that none of the existing technologies addressed the long-term use of splints. While plastic splints were adequate for treating short-term trauma, they were not an ideal solution for lifetime wear. In 1985, she set out to design and manufacture a new series of splints that were both more effective and more attractive than the splints then in use. In the process, she revolutionized splint therapy.

Wearing SilverRing™ Splints removes the stigma of splinting and increases patient compliance. Patients experience positive reactions from others which improves their perspective on treatment.

Whether they need finger stability for hand-intensive work or for everyday tasks like cooking and holding a pencil, thousands of people have made SilverRing™ Splints a valued part of their everyday lives. SilverRing™ Splints encourage complete patient well-being, medically effective hand therapy and a positive self-image.

1140 E. Market St.
Charlottesville, VA 22902

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Partner Sponsor

Aytu BioPharma

Aytu is committed to improving the health of all children. Our portfolio of products with a focus on ADHD help children live their best lives. Aytu is also developing potentially life-saving products by investing in a near-term pipeline of breakthrough treatments focused on pediatric-onset, rare diseases.

We aspire to be the leading pediatric-focused pharmaceutical company in the world. We will achieve this by commercializing novel therapeutics, providing best-in-class patient access, unleashing the talents of our people, and developing important and needed therapeutics for children of all ages.

  • We will make a lasting difference in children’s lives by delivering the best products to children in need.
  • Our individual actions, collective attitude, and company results will inspire others to do great things.
  • Our people, products, pipeline, and platform will effect positive change in healthcare delivery and patient outcomes.

373 Inverness Parkway, Suite 206
Englewood, CO 80112 USA
1-855 AYTU-BIO

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Partner Sponsor

DM Orthotics

We provide soft fabric orthoses to help adults and children with challenging conditions like EDS. Our orthoses help with pain management, postural realignment and reduce subluxation and dislocation through the strategic way our fabrics are manufactured, providing you with a product that helps improve daily life.
Clinically proven, comfortable orthosis with patient testimonials.
Our orthoses are clinically proven with some linked to evidence-based research. You can find out more about our research in our research & development section.
We are dedicated to research & development
We aspire to maintain our consistently high standards and are always looking ahead to see what advances can be made for the future, in order to continually find innovative developments for all our orthoses.

Unit 2,
Cardrew Way,
Redruth TR15 1SS
UK
+44 (0) 1209 219205 | admin@dmorthotics.com | https://www.dmorthotics.com/

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Collaborator Sponsor

Body Braid

The Body Braid’s Core Body Braid is a posture support which acts as external connective tissue which helps to reinforce the body’s internal connective tissue. The Core Braid’s soft, elastic fabric bands spiral around the body, engaging the core and gently aligning different body parts into an integrated whole.

767 Stone Church Road,
Killaloe,
Ontario K0J 2AO
Canada
(416) 804-2110 | info@bodybraid.com | https://bodybraid.com/

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Collaborator Sponsor

Thrive Tape

Thrive “Far Infrared” Kinesiology Tape provides muscle and joint support for active individuals of all ages who want to improve their quality of life. It also offers the unique added benefit of Far Infrared, which is derived from our proprietary blend of natural minerals, to offer targeted pain relief * and assist in recovery from most common injuries*. The latex-free, hypoallergenic fabric is made of 97% cotton and 3% spandex allowing for natural movement and free range of motion.

Thrive Tape is a proud supporter of the EDS community and everyone who uses our product to get needed relief. Our tape is gentle on sensitive skin and is easy to apply using the instructions provided. If for some reason you cannot follow the taping instructions exactly, simply place the tape over the affected area to receive the benefits and support you need. The tape stays secure for multiple days of continuous use.

This product is certified by Informed Choice, a Global Quality Assurance Program with one of the leading test laboratories in the world. All certified products are analyzed for more than 250 substances that are prohibited in sport and competition by the World Anti-Doping Agency (WADA) and are safe for everyone to use.

Thrive Tape Benefits

  • Provides targeted pain relief*
  • Supports Muscles and Joints
  • Allows for Natural Movement and Free Range of Motion
  • Hypoallergenic and Latex Free
  • Easy application
  • Informed Choice Certified
  • Sweat and Water-Resistant

*Not clinically proven for all injuries

 info@thrivetape.com | https://thrivetape.com/

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Supporter Sponsor

Zebra Splints

Each splint is carefully and precisely handcrafted to each individual’s exact measurements. With 20 years experience you can be assured that your splints will be beautifully created with both design and function in mind and must meet high quality standards.

 https://www.zebrasplints.org/

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Sponsorship Opportunities

Sponsorships are available for this conference, with virtual and in-person package options. Please see our sponsorship prospectus and commitment form, or contact our team directly on giving@ehlers-danlos.com to discuss sponsorship opportunities.