2022 Global Learning Conference

2022 Global Learning Conference Arizona

August 4-6, 2022

We are delighted to welcome you to register for our 2022 Global Learning Conference in Scottsdale, Arizona! We will be hosting this exciting hybrid event, both in-person and virtually. 

Join individuals and families with EDS and HSD for three days of learning, collaboration, and networking. The conference theme is “EDS and HSD Through a Lifetime” and will feature presentations, case studies, and panel discussions led by experts on the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The event is suitable for community members and their friends and families, as well as healthcare professionals who are interested in learning from a lay perspective.

The in-person conference will be held at the JW Marriott Scottsdale Camelback Inn Resort & Spa, 5402 E Lincoln Dr, Scottsdale, AZ 85253, United States. Full event information and FAQs can be found here, including information on tickets, registration, COVID-19 precautions, accommodation, and travel. For those unable to travel to join us in person, we will be offering a comprehensive virtual experience with access to our event app, Whova.

Our Junior Zebras program, held concurrently with the main program schedule, will allow our younger attendees aged 6-17 the chance to make friends as they learn more about their condition in a fun and age-appropriate environment.

Healthcare professionals including physicians, nurses, and allied health professionals, are welcome to join sessions during the three-day period, to learn more about EDS and HSD and how to improve the management and care for their patients.

An application for CME/CE/CEU credits for attending healthcare professionals has been submitted for this conference. Further details will be announced soon.

Accessibility Survey

Visit this link to complete the accessibility survey, and let us know what you would like to see at future events to continue to improve accessibility.

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Registration Options

Please follow the buttons below to view the in-person registration options, early bird in-person registration pricing is available until midnight July 1, 2022, after which full registration costs will apply. Full agenda will be published in the near future.

Scholarships Applications Are Now Open!

Thanks to the generosity of our donors, The Ehlers-Danlos Society is able to offer a number of in-person and virtual scholarships to the 2022 Global Learning Conference. In-person scholarship applications will be accepted through June 10, 2022; virtual scholarship applications will be accepted through July 8, 2022.

Venue Details

JW Marriott Scottsdale Camelback Inn Resort & Spa is an award-winning hotel located at the base of Camelback Mountain in Paradise Valley.

JW Marriott Scottsdale Camelback Inn Resort & Spa,
5402 E Lincoln Drive,
Scottsdale, AZ 85243,
USA

We have secured a special discounted rate with the ​JW Camelback Inn Hotel​ at $119 per room per night (normally $419).​ Up to four guests can share one room. The room rate includes​ t​he resort fee (normally an additional $35 per room per night). Learn more in our Event FAQs.

Book your reduced rate hotel accommodation here.

The Ehlers-Danlos Society Volunteer Program

Become A Conference Volunteer!

Our hybrid conferences would not be possible without the help of our volunteers, if you are planning to attend this conference in person and would like to volunteer some of your time do click the button below to learn more. To show our appreciation, event volunteers will receive an Ehlers-Danlos Society branded t-shirt, lapel pin, water bottle, and a 25% off coupon to use towards a future Ehlers-Danlos Society event. 

Michelle shares her experience of volunteering at the 2019 Global Learning Conference in Nashville:

“I volunteered for the first time with the Society at the Global Learning Conference in Nashville, 2019, having attended my first conference in 2018 in Baltimore. I’ll never forget that first conference. I met and was greeted with open arms by so many of the diligent society members and staff. Having been on such a long journey to obtain my diagnosis, to sit in a massive conference hall beside people who finally understood you, was simply overwhelming. For the first time, I felt safe to speak about my experiences and challenges with regard to my condition. I spoke to so many people and listened to so many stories just like my own. I learned there were many common themes among the issues we face as a community. What struck me most, however, was the often silent understanding among members of the community where a look, a pause, or a single tear was intuitively understood with compassion and validation. 

“The experience was profound and will stay with me for life. Sitting in the airport before boarding the plane home, I burst into tears. I realized that without the sheer dedication and passion of the Society and its volunteers, I would never have had this experience. Needless to say, I gained so much from the experience personally, that it was important for me to give back in some way to the society and community which helped me in ways they couldn’t begin to imagine. When the opportunity arose to volunteer for the next Global Learning Conference which took place in Nashville, I jumped at the chance.

“Volunteering gave me the opportunity to “pay it forward” in my own little way. It allowed me to learn from the best and aspire to do more. It took me out of my comfort zone and helped me grow as a person. It marked a personal turning point for me in accepting my diagnosis and helped me to see opportunities once more.”

Volunteering gave me hope. I was very proud to wear my volunteer shirt. It was time to give back and this was just the beginning! 

Michelle has long brown hair, wears a black shirt, and smiles into the camera whilst holding a book.

Thank You to Our Event Sponsors!

Partner Sponsors

Silver Ring Splint Company

My name is Natalie, and I’m so excited to return with Silver Ring Splint Company for another Ehlers-Danlos Society event. For more than 35 years, Silver Ring Splint Company has provided high-quality, custom-fit SilverRing™ Splints to individuals around the world who have hand problems. They are medically effective, visually appealing, and, most importantly, they allow individuals to continue participating in the activities they love. Silver Ring Splints can be used in a variety of ways to help with the issues and symptoms of EDS, HSD, and hypermobility.

If you don’t know about our products or have heard about them but want to see them in person, the conference is a great time to come talk to us and perhaps even make a measuring appointment. As in years past, we will be bringing staff with us that will be offering 30 minute measuring appointments. Signups and appointments will start Thursday, August 4, and continuing on until the end of day on Saturday, August 6. These appointments can be used to obtain sizing to order the products directly from us, and we will have a limited inventory of splints on hand for sale, with custom orders shipping out in the weeks following the conference.

These slots will go quickly, but even if you aren’t sure about our products, you can come sit down and try on a few samples to see if Silver Ring Splints are right for you! We can’t wait to see everyone in Arizona!

1140 E. Market St.
Charlottesville, VA 22902

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Sponsorship Opportunities

Sponsorships are available for this conference, with virtual and in-person package options. Please see our sponsorship prospectus and commitment form, or contact our team directly on giving@ehlers-danlos.com to discuss sponsorship opportunities.