2022 Hybrid Global Learning Conference
August 3-6, 2022
We are delighted to welcome you to register for our 2022 Global Learning Conference! We will be hosting this exciting hybrid event, both in-person in Scottsdale, Arizona, USA, and with a virtual attendance option for people to join worldwide.
- The conference theme is “EDS and HSD Through a Lifetime” and will feature presentations, case studies, and panel discussions led by experts on the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). An exciting, all-new agenda includes topics and tracks covering pregnancy and childbirth, children and teenagers, sex and intimacy, and aging.
Presentations will include:
- Gastrointestinal and Urogynecological Concerns
- Autonomic Dysfunction
- Bruising, Bleeding, and Skin
- Head and Neck Concerns in EDS and HSD
- Orthopedic Management
- Pain Medication and Alternative Treatments
- Sex and Intimacy
- Pregnancy and Childbirth
- Holistic Approaches to Care for Children & Adolescents with Hypermobility & EDS
- Keeping Children Active
- The Challenges of Living with a Rare Disorder
- Things to Assist in Daily Life with a Chronic Condition
The agenda can be viewed in detail below.
Continuing Education credits available for healthcare professionals
Healthcare professionals including physicians, nurses, and allied health professionals, are welcome to join sessions both in-person and virtually, to learn more about EDS and HSD and how to improve the management and care for their patients. 21 CME/CEU/CE credits will be available for healthcare professionals to claim for sessions that are viewed LIVE.
Junior Zebras program for kids and teens 6-17
Our Junior Zebras program, held concurrently with the main program schedule in-person in Arizona, will allow our younger attendees aged 6-17 the chance to make friends as they learn more about their condition in a fun and age-appropriate environment.
JW Marriott Scottsdale Camelback Inn Resort & Spa is an award-winning hotel located at the base of Camelback Mountain in Paradise Valley.
JW Marriott Scottsdale Camelback Inn Resort & Spa,
5402 E Lincoln Drive,
Scottsdale, AZ 85243,
Hotel rooms at The Ehlers-Danlos Society group rate are now sold out. For any accommodation inquiries please email firstname.lastname@example.org.
Color Coded Comfort System
To ensure you are as comfortable as possible being back at in-person events we will offer a color-coded comfort system. Green, amber, and red wristbands will be available should you wish to communicate if and how you would like to socially distance with fellow attendees. Your wristbands will be offered to you at the registration desk upon arrival.
In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 21 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an ineligible company.
None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.
Dr. Alan Hakim, Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Adrijana Kekic, Dr. Alan Pocinki, Dr. Chad Shepherd, Dr. Chip Norris, Dr. Christina Laukaitis, Constance O’Connor, Dr. Dacre Knight, Dr.Ellen Elias, Emily Block, Emily Rich, Dr. Heidi Collins, Dr. Irman Forghani, Dr. Isabelle Brock, Jacqui Main, Dr. Jane Simmonds, Jeannie Di Bon, Jennifer Glayzer, Dr. Jessica Salyers, Dr. John Heusinkveld, Dr. Jordan Tishler, Dr. Keren Machol, Laurie Bilyeu, Dr. Leslie Russek, Dr. Mark Lavallee, Prof. Martin Birchall, Maureen Kelly Galindo, Dr. Melissa Russo, Dr. Natalie Blagowidow, Natasha Silverman, Dr. Nimish Mittal, Dr. Paldeep Atwal, Patricia Stott, Dr. Patrick Agnew, Dr. Rebecca Schaffer, Dr. Sally Pezaro, Dr. Sarah Schwartz, Scarlett Eagle, Dr. Serwet Demirdas, Dr. Shar Hashemi, Sophie Roberts, Dr. Sumana Koduri, Dr. William Ericson, Emma-Louise Williams, Susan Hawkins.
The following planners/presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.
|Nature of Relationship||Name of Ineligible Company|
|Dr. Anne Maitland||Speaker||Blueprint Medicines|
|Dr. Clair Francomano||Consultant||Acer Therapeutics|
|Dr. Hal Dietz||Advisor, Individual Stocks and Stock Options, Nonexecutive Director, Consultant, Royalties or patent beneficiary||GlaxoSmithKline, Aytu BioPharma|
|Kevin Muldowney||Ownership Interest||Muldowney Publishing|
|Kathleen Muldowney||Ownership Interest, Royalties, or Patent Beneficiary||Muldowney Publishing|
|Dr. Laura Pace||Advisor||Mauna Kea|
|Dr. Gisela Chelimsky||Ownership Interest||PainStakers, LLC|
|Dr. David Saperstein||Advisor, Speaker||CSL-Behring, Argenyx, Grifols|
|Dr. James Kustow||Consultant, Speaker||Flynn Pharma|
|Dr. Fraser Henderson||Consultant||LIFE SPINE Inc.|
All of the relevant financial relationships listed for these individuals have been mitigated.
Thank You to Our Event Sponsors!
Silver Ring Splint Company
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We provide soft fabric orthoses to help adults and children with challenging conditions like EDS. Our orthoses help with pain management, postural realignment and reduce subluxation and dislocation through the strategic way our fabrics are manufactured, providing you with a product that helps improve daily life.
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Thrive “Far Infrared” Kinesiology Tape provides muscle and joint support for active individuals of all ages who want to improve their quality of life. It also offers the unique added benefit of Far Infrared, which is derived from our proprietary blend of natural minerals, to offer targeted pain relief * and assist in recovery from most common injuries*. The latex-free, hypoallergenic fabric is made of 97% cotton and 3% spandex allowing for natural movement and free range of motion.
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