Every May, our global community comes together to raise awareness, share experiences, and drive progress for those living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
This May, we set out to raise $100,000—and thanks to your incredible support, we reached our goal! Together, we funded groundbreaking research, provided education for healthcare professionals, and delivered critical support to those impacted worldwide.
Whether you walked, rolled, shared your story, or fundraised, every act of awareness fueled real change.
To thank our dedicated community, we offered exclusive fundraising reward tiers for those who raised over $60—and many of you claimed them!
You joined the movement. You made a difference. Thank you.
May is EDS and HSD Awareness Month 2025 – Over $100K for Raised for Change!
Every May, our global community comes together to raise awareness, share experiences, and drive progress for those living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
This May, we set out to raise $100,000—and thanks to your incredible support, we reached our goal! Together, we funded groundbreaking research, provided education for healthcare professionals, and delivered critical support to those impacted worldwide.
Whether you walked, rolled, shared your story, or fundraised, every act of awareness fueled real change.
To thank our dedicated community, we offered exclusive fundraising reward tiers for those who raised over $60—and many of you claimed them!
You joined the movement. You made a difference. Thank you.
Welcome to the Zebra Walk and Roll: Walk of Fame!
We’re rolling out the red carpet for our incredible Walk and Roll participants!
Your passion, dedication, and efforts toward awareness are truly making a difference. Thank you for walking, rolling, and raising your voices for the EDS and HSD community — you’re all stars in our eyes!
Natalie L
Christina D
Luca B
Jackie D
Jessica B
Danielle H
Katherine (Kat) L
Stephanie B
Madison C
Patricia S
Elli A
Janice R
Jesse D
Leah C
Suzanne O
Sam H
Erika C
Adriana H
Joseph C
Hazel K
Ellie M
Stacey S
Khalian D
Shannon W
Order May Awareness Merchandise
May Awareness merchandise collection is now available in our shop! From hoodies to mugs and stickers, there is something for everyone. Worldwide shipping is available and sizes XS-5XL. Up to $8 of proceeds from each purchase goes to The Ehlers-Danlos Society’s global mission. Shop here.
Be Part of the Movement
💡 Every action you take helps us get closer to our $100K goal—funding research, improving care, and supporting the EDS and HSD community.
🦓 Together, we dazzle. Together, we change lives.
