Updated: September 21, 2020
We know members of our community are feeling overwhelmed with the current situation with Coronavirus Disease (COVID-19). We will continue to update this page regularly in line with recommendations from the WHO [World Health Organization], the Center for Disease Control and Prevention [CDC], and other official sources. Throughout these webpages, we will use the term COVID-19 to imply Coronavirus / Coronavirus Disease and referring to the causative virus SARS-CoV-2.
The wellbeing of our community and health professionals is our utmost priority. Given the current situation, we have postponed some of our events. Our helpline is also receiving an increasing number of calls and emails of concern. We would like to reassure our community that we will do our very best to help you with questions you may have. We have scheduled additional Let’s Chat – Virtual Support Calls.
This is an excerpt from a recent EDS ECHO session where the main focus was to guide providers on navigating care for patients with EDS & HSD during the COVID-19 pandemic. To read more about EDS ECHO and to apply for a place on an upcoming program, please click here.