Living with Ehlers-Danlos syndrome (EDS) is a lifelong process that requires constant monitoring on how to remain active, yet also physically secure and safe.
EDS is a condition that leads to deformed connective tissue, the “glue” that holds the body together. Any sudden move or jolt, and your muscles and joints may come apart.
There is no cure for EDS, so living life with this condition means accepting a certain level of chronic pain.
I want to share some safety tips that I have learned that I hope will help others, like myself, who have EDS.