Published: 01/06/2017 Tags: Ehlers-Danlos in the News

‘Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder’, a new book by Claire Smith

Book overview provided by Redcliff House Publications

Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017, brings together all the information you most want to know about the newly classified ‘hypermobile Ehlers-Danlos syndrome’ and ‘hypermobility spectrum disorder’ (previously known as ‘Ehlers-Danlos hypermobility type’ and ‘joint hypermobility syndrome’, respectively).

The author has not only managed to compile clear and concise answers to frequently asked questions, such as ‘How do these conditions overlap?’ and ‘Why are people affected so differently?’, she has provided detailed descriptions of symptoms and associated co-morbidities, and has provided comprehensive, accessible, evidence-based information relating to diagnosis and management. Exercise, physiotherapy, surgery and the psychological effects of the disorder are discussed, as well as what to expect during clinical assessment, and much, much more.

From postural orthostatic tachycardia syndrome to mast cell activation syndrome, and from clinical assessment to self-management – if you ever wished that you could find all of the information you need, together, in one place…Look no further!

Preface for this title from Ehlers-Danlos International Consortium member Dr. Alan Hakim

Both hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) can be very complex and daunting conditions.

Claire’s approach to addressing this is methodical and thoughtful throughout, with great care given to the language used, and information provided. The result – a remarkably clear and concise text.

There is a wonderful balance to Claire’s writing arising from her extensive experience as a writer and editor of patient information booklets and journals; her own health needs; being a carer herself; the exposure to, and the support of others with these conditions through her work with several charities, and the relationships she has developed world-wide with health and social care professionals in this field of Medicine.

Citing the literature and incorporating the reflections of patients and professional colleagues, Claire carefully guides us through the world of hEDS and HSD, dividing the book in to three chapters, each broken down into manageable sections, and flagging information through post-it notes along the way.

Claire takes us through the biology, classification, and diagnosis of hEDS and HSD, cutting through the medical language and bringing us right up to date with the latest knowledge of the associations between a variety of issues, their medical treatment, and ways to self-manage.

I commend this terrific book to anyone wishing to learn more about these conditions, the different concerns that can arise, the effects these can have on peoples’ lives, and the modern methods of treatment.

This is very much a book for patients, carers, and health and social care colleagues alike.
Alan Hakim MA PGCert-TM FRCP
Consultant Rheumatologist
Specialising in hypermobility related disorders

Click here for more information and to purchase this book

Disclaimer: The Ehlers-Danlos Society was not involved with the production of this book and cannot officially endorse any claims written. 

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