Inside the CORE Network: A Visit to NYIT’s EDS/Hypermobility Treatment Center
Last week, Lara Bloom, President and CEO of The Ehlers-Danlos Society, visited the NYIT EDS/Hypermobility Treatment Center while on a trip to New York, a member of our global CORE Network of Excellence. Located
The Ehlers-Danlos Society Celebrates a Decade of Worldwide Reach and Impact
A decade of accelerating diagnosis, research, and development in the care for EDS and HSD. The Ehlers-Danlos Society celebrates ten years as an international organization in 2026, reflecting on the past ten
Help Us Unlock a Matching Gift Before December 9th!
The Ehlers-Danlos Society is taking part in the Big Give #ChristmasChallenge in the UK this year! Every donation made through our Big Give page by December 9th will be matched
The Future of EDS and HSD
The Road to 2026 is a global collaboration led by the International Consortium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). The project focuses on updating the 2017
hEDS/HSD Criteria Review Study Update
The hEDS/HSD Criteria Review Study is an international collaboration to improve how hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) are diagnosed. Led by the hEDS/HSD Working Group of
Hedge Study Update
The Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE) Study continues to advance understanding of hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD). The HEDGE team expects to share its first publications in late 2025 or early
Exciting New Research Sheds Light on hEDS Biology
We are excited to share a new paper published yesterday: Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology by Griggs M, Gensemer C, et al. (ImmunoHorizons, 2025;
September is World Pain Month
Pain is one of the most common struggles for people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). EDS and HSD can cause both acute and chronic pain.
New CORE Network of Excellence Cohort Announced
The Ehlers-Danlos Society is delighted to announce new members of its CORE Network of Excellence Program. The CORE (Collaboration, Outreach, Research & Education) Network of Excellence is a global network
PTSD Awareness Day
Content Warning: This post discusses PTSD and distressing clinical experiences. Please take care while reading and scroll past if you need to. Your well-being comes first. June 27 is PTSD
