The Ehlers-Danlos Society Featured in Historic Leadership Publication and Invited to Westminster Abbey Launch
The Ehlers-Danlos Society is proud to announce that Professor Lara Bloom, President and CEO, has been featured in Monarchy and Democracy: A History of Leadership, a landmark publication produced by
Receiving this award helped assure me of my place in medicine
“May is a special month for me – it is my birth month and Ehlers-Danlos Syndrome Awareness Month. But this year, May is extra special as I will also be
April 20-26 is Feet Week!
Our feet support us by helping with balance, movement, and stability. Some types of Ehlers-Danlos syndrome (EDS) are known to affect foot shape, positioning, and movement. For some people, these
April 16 is World Voice Day!
Did you know that some types of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) can affect the voice? EDS and HSD are connective tissue disorders, which means the
Research Grant Awardee: Biomarker Identification in hEDS/HSD Sub-Phenotypes.
In 2024, The Ehlers-Danlos Society awarded its Pathophysiological and Therapeutic Markers research grant, which aims to advance the understanding of pathophysiology and the utilization of biological markers in the Ehlers-Danlos syndromes (EDS) and hypermobility
The Ehlers-Danlos Society Announces Collaboration with Program in Global Primary Care to Develop Models of Care for EDS and HSD
New initiative will help identify strategies for the 2026 diagnostic update to translate into practice The Ehlers-Danlos Society today announced a collaboration* with the Program in Global Primary Health Care
World Oral Health Day
March 20th is World Oral Health Day! Let's talk about periodontal Ehlers-Danlos syndrome (EDS). Collagen defects can affect oral health by impacting vascularity, bone, teeth, gum tissue, and nerve tissue.
A Major Update Is Coming to EDS and HSD Diagnosis
For the first time since 2017, the diagnostic criteria for all types of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) will be updated. The new framework will be published on December 1,
March 3rd is World Hearing Day!
Some types of Ehlers‑Danlos syndrome (EDS) can affect hearing. Hearing problems are seen in: Musculocontractural Ehlers-Danlos Syndrome (mcEDS) Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS) - FKBP14 variant Brittle Cornea Syndrome (BCS) Swipe
Eating Disorders Week is February 23–March 1, 2026
Eating disorders are a group of mental health conditions that involve a persistent disturbance of eating behavior that affects physical or mental health. Research shows that some eating disorders, particularly
