Help Us Unlock a Matching Gift Before December 9th!
The Ehlers-Danlos Society is taking part in the Big Give #ChristmasChallenge in the UK this year! Every donation made through our Big Give page by December 9th will be matched
The Future of EDS and HSD
The Road to 2026 is a global collaboration led by the International Consortium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). The project focuses on updating the 2017
hEDS/HSD Criteria Review Study Update
The hEDS/HSD Criteria Review Study is an international collaboration to improve how hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) are diagnosed. Led by the hEDS/HSD Working Group of
Hedge Study Update
The Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE) Study continues to advance understanding of hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD). The HEDGE team expects to share its first publications in late 2025 or early
Exciting New Research Sheds Light on hEDS Biology
We are excited to share a new paper published yesterday: Proteomic discoveries in hypermobile EhlersDanlos syndrome reveal insights into disease pathophysiology by Griggs M, Gensemer C, et al. (ImmunoHorizons, 2025;
September is World Pain Month
Pain is one of the most common struggles for people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). EDS and HSD can cause both acute and chronic pain.
New CORE Network of Excellence Cohort Announced
The Ehlers-Danlos Society is delighted to announce new members of its CORE Network of Excellence Program. The CORE (Collaboration, Outreach, Research & Education) Network of Excellence is a global network
PTSD Awareness Day
Content Warning: This post discusses PTSD and distressing clinical experiences. Please take care while reading and scroll past if you need to. Your well-being comes first. June 27 is PTSD
Scoliosis Awareness Month
June is Scoliosis Awareness Month. Did you know that scoliosis is a common feature in several types of Ehlers-Danlos syndrome (EDS)? Scoliosis is a condition where the spine curves sideways,
An Open Letter to Protect Disability Benefits for Those with EDS and HSD in the UK
The Ehlers-Danlos Society has co-signed a joint open letter to the Department of Work and Pensions (DWP), urging them to reconsider proposed changes to the Personal Independence Payment (PIP) system
